Person-Centered Mobile App for AD/ADRD Family Caregivers

面向 AD/ADRD 家庭护理人员的以人为本的移动应用程序

• 批准号: 10019464
• 负责人: Joseph Chung
• 金额: $ 79.14万
• 依托单位: KINTO
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-08-15 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10019464
• 关键词: Address; Adoption; Alzheimer' s Disease; Alzheimer' s disease related dementia; Arts; Belief; Caregiver Burden; Caregivers; Caring; Communication; Communities; Data; Development; Disease; Ecosystem; Emotional; Emotional Stress; Family; Family Caregiver; Family member; Feedback; Feeling; Focus Groups; Fostering; Funding; Goals; Home environment; Hour; Hypersensitivity; Individual; Medical; Medical History; Personal Satisfaction; Persons; Pharmaceutical Preparations; Phase; Play; Positioning Attribute; Privacy; Protocols documentation; Recommendation; Recording of previous events; Reporting; Residencies; Role; Security; Stress; Stretching; Talents; Technology; Vision; Visit; base; care preference; care recipients; caregiving; dementia care; design; family caregiving; family support; innovation; loved ones; member; mobile application; mobile computing; person centered; phase 1 testing; prototype; rapid growth; tool; treatment duration; usability

PROJECT SUMMARY More than 5 million people in the US suffer from AD/ADRD, and the Alzheimer's Association predicts that the number of sufferers will increase to as many as 14 million by 2050. New recommendations for the care of dementia place a strong focus on Person-Centered care. Family caregivers can play a vital role in supporting this approach, but they are already stretched. The Alzheimer's Association estimates that 15.9 million people in the US contribute 18.2 billion hours of unpaid care in support of people suffering from AD/ADRD (averaging >21.9 hours per week). Half of all caregivers for AD/ADRD sufferers report feeling emotional stress, resulting from the practical, financial, and emotional strains of this role. Family caregivers need more help, and a significant majority want technology to support them in their caregiving activities; however, technology solutions are limited, adoption rates are low, and existing solutions are failing to keep pace with the rapid growth of mobile technology. Kinto has begun to address this gap by developing a mobile application designed to promote and support person-centered care. The proposed application will allow caregivers to create a detailed profile of the care recipient called the Person-Centered Care Profile. This information is then used to generate Kinto's Care Reports, summaries that are personalized to the care recipient, and tailored to the information needs of specific members of the circle of care (including doctors, caregivers and family members). Users will also receive expert recommendations tailored to their needs and caregiving situation, in addition to the support of Kinto's caregiving community. Phase II aims are to: 1. Expand the breadth and depth of data capture to create a Person-Centered Care Profile: a detailed profile of the care recipient organized by care topics that include care preferences and goals, doctors, conditions, medications, allergies, medical history, personal history, likes, dislikes, values, and beliefs 2. Enhance communication within the circle of care through the introduction of new Kinto Care Reports: detailed summaries that are personalized to the care recipient, and specifically tailored to the information needs of doctors, family members, and paid caregivers 3. Implement new privacy and security protocols to support deeper connections with the medical ecosystem The goals of the application will be to promote person-centered care, increase family engagement in AD/ADRD caregiving activities, reduce individual caregiver burdens and overall stress, prolong in-home residency, and to provide family caregivers access to best-in-class support and guidance relating to AD/ADRD caregiving.

项目摘要 美国有超过500万人患有广告/ADRD，阿尔茨海默氏症协会预测 到2050年，患者人数将增加到多达1400万。 痴呆症将重点放在以人为中心的护理上。家庭护理人员可以在支持方面发挥至关重要的作用 这种方法，但它们已经伸展了。阿尔茨海默氏症协会估计有1,590万人 在美国，贡献了182亿小时的无薪护理，以支持患有广告/ADRD的人（平均 >每周21.9小时）。 AD/ADRD患者的所有护理人员中有一半报告会感到情绪压力，从而 来自该角色的实用，财务和情感菌株。 家庭护理人员需要更多的帮助，而重要的多数人希望技术在他们的 照料活动；但是，技术解决方案有限，采用率很低，现有解决方案 未能跟上移动技术的快速增长。 Kinto已开始通过开发旨在促进和支持的移动应用程序来解决这一差距 以人为中心的护理。拟议的申请将允许护理人员创建护理的详细信息 接收者称为以人为中心的护理程序。然后将此信息用于生成Kinto的护理 报告，个性化给护理接收者的摘要，并根据信息需求量身定制 护理圈的特定成员（包括医生，看护人和家人）。用户也会 收到针对他们的需求和护理状况量身定制的专家建议，此外 Kinto的护理社区。 第二阶段的目的是： 1。扩大数据捕获的广度和深度，以创建一个以人为本的护理文件：详细的信息。 由护理主题组织的护理接收者，包括护理偏好和目标，医生，条件， 药物，过敏，病史，个人历史，喜欢，不喜欢，价值观，并相信 2。通过引入新的Kinto护理报告来增强护理圈内的沟通： 详细的摘要，这些摘要是个性化的，专门针对信息量身定制的 医生，家庭成员和有偿照顾者的需求 3.实施新的隐私和安全协议，以支持与医学生态系统的更深层次的联系 申请的目标将是促进以人为本的护理，增加家庭参与广告/ADRD 照顾活动，减少伯恩斯的个人护理人员和整体压力，延长家庭住所，并 为家庭护理人员提供与广告/ADRD护理有关的一流支持和指导。