Home Alone: Developing a Home-Based Intervention for People with Cognitive Impairment Who Live Alone

独自在家：为独居认知障碍患者制定家庭干预措施

基本信息

批准号：
10590347
负责人：
JOSEPH E. GAUGLER
金额：
$ 20.45万
依托单位：
UNIVERSITY OF MINNESOTA
依托单位国家：
美国
项目类别：
财政年份：
2023
资助国家：
美国
起止时间：
2023-01-01 至 2024-12-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10590347
关键词：
Acute Address Adoption Adult Age Age-associated memory impairment Alzheimer&apos s disease related dementia Behavioral COVID-19 pandemic Caregivers Caring Characteristics Cognition Collection Communities Complex Data Data Element Dementia Dependence Development Diagnosis Effectiveness Elderly Elements Enrollment Environment Evaluation Family Caregiver Feeling Goals Health Healthcare Systems Home Hospitalization Impaired cognition Independent Living Individual Institutionalization Intervention Length Literature Loneliness Measures Mental Health Services Methods Modeling Morbidity - disease rate Outcome Participant Persons Phase Positioning Attribute Process Provider Randomized Recommendation Research Resources Risk Risk Factors Services Social Well-Being Stress Supportive care Testing dementia care design evidence base experience feasibility testing flexibility home test implementation science improved indexing innovation insight instrumental activity of daily living lens mild cognitive impairment novel pilot test programs psychologic response social engagement symposium telephone based theories therapy design therapy development

项目摘要

Project Abstract Descriptive research suggests that living alone with cognitive impairment (CI) is associated with many complex challenges, such as a lack of available and accessible services to facilitate living independently, and an elevated risk of hospitalization and institutionalization. Additionally, almost half of older adults who live alone with CI experience difficulty with a basic or instrumental activity of daily living. However, there are few interventions designed to assist older adults with CI who live alone to help them remain socially engaged in their existing living environment. We propose to develop a novel home-based intervention, called Home Alone, for persons living alone with CI (defined here as someone diagnosed with mild cognitive impairment/MCI or as someone with cognitive impairment without dementia as established on a validated telephone-based screener). Home Alone is a seven-module home-based program that is adapted from established, evidence- based mental health and dementia care interventions (behavioral activation, Skills2Care®, and the Tailored Activities Program). This proposed R21 will examine the feasibility, acceptability, and usefulness of Home Alone to assist persons living alone with CI or AD/ADRD to successfully navigate the challenges of living independently with dementia. The Specific Aims are: to 1) develop and adapt Home Alone for pilot testing among 15 persons with CI who live alone over a 3-month period. A convergent parallel mixed methods design will be utilized to determine whether various elements of Home Alone (e.g., delivery mode, length, and other intervention characteristics) require adaptation; and 2) pilot-test a revised version of Home Alone over a 6- month period among 50 participants living alone with CI. A sequential explanatory mixed methods design will be utilized to do so. We will determine whether Home Alone is carried out as intended and is deemed feasible, acceptable, and useful. The development of this theory- and evidence-informed intervention will directly address the need for further understanding of how to support people living alone with CI. If successful, the proposed R21 will position Home Alone for a subsequent randomized controlled evaluation and later as a flexible, much-needed evidence-based resource that is scalable for healthcare systems and dementia support programs.

项目摘要描述性研究表明，患有认知障碍 (CI) 的独居与许多因素有关复杂的挑战，例如缺乏可用且方便的服务来促进独立生活，以及此外，近一半的独居老年人住院和住院的风险较高。 CI 患者在日常生活的基本或工具性活动方面遇到困难。旨在帮助患有 CI 的独居老年人的干预措施，帮助他们保持社交参与我们建议开发一种新颖的家庭干预措施，称为“小鬼当家”，患有 CI 的独居人士（此处定义为被诊断患有轻度认知障碍/MCI 的人或根据经验证的基于电话的结果，患有认知障碍但未患痴呆症的人小鬼当家是一个由七个模块组成的家庭计划，改编自已建立的证据- 基于心理健康和痴呆症护理干预措施（行为激活、Skills2Care® 和定制活动计划）。拟议的 R21 将审查 Home 的可行性、可接受性和有用性。独自帮助患有 CI 或 AD/ADRD 的独居人士成功应对生活挑战独立治疗痴呆症的具体目标是： 1) 开发和调整“小鬼当家”以进行试点测试。对 15 名独自生活超过 3 个月的 CI 患者进行收敛并行混合方法设计。将用于确定小鬼当家的各种元素（例如交付模式、长度和其他干预特征）需要适应；2）在 6 年内对《小鬼当家》的修订版进行试点测试为期一个月的 50 名 CI 独居参与者将进行顺序解释性混合方法设计。我们将确定“小鬼当家”是否按预期进行并被认为是可行的，这种基于理论和证据的干预措施的发展将直接是可接受的和有用的。解决进一步了解如何支持 CI 独居者的需要。拟议的 R21 将把《小鬼当家》定位为随后的随机对照评估，并随后作为灵活、急需的循证资源，可扩展用于医疗保健系统和痴呆症支持程序。