Development of a technology-enabled care coaching service for families caring for AD/ADRD & a 300-family study to assess the service's impact on CG financial knowledge, efficacy, strain & action.

为 AD/ADRD 护理家庭开发技术支持的护理指导服务

• 批准号: 10681361
• 负责人: Joseph Chung
• 金额: $ 113.34万
• 依托单位: KINTO
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-01 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10681361
• 关键词: Address; Age; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Behavior; Behavioral; Caregiver support; Caregivers; Caring; Client; Collaborations; Confusion; Decision Making; Dementia; Dementia caregivers; Development; Disease; Distress; E-learning; Educational Curriculum; Effectiveness; Elements; Empathy; Evaluation; Family; Family Caregiver; Family Study; Feasibility Studies; Feedback; Financial Hardship; Grant; Health Benefit; Human; Hybrids; Journals; Knowledge; Methodological Studies; Modeling; Multilingualism; Paper; Participant; Patients; Peer Review; Persons; Phase; Protocols documentation; Publishing Peer Reviews; Quality of Care; Readiness; Research; Self Efficacy; Services; Source; Stress; Support Groups; Surveys; Technology; Testing; Time; Training; Uninsured Medical Expense; United States; Work; care costs; caregiving; community living; experience; family caregiving; family support; financial decision making; financial literacy; human old age (65+); improved; life time cost; loved ones; mobile computing; novel; peer support; prototype; psychosocial wellbeing; randomized, controlled study; symposium; technological innovation; usability; virtual; virtual healthcare

5.8 million Americans age 65+ are living with AD/ADRD and by 2050, the number of people over the age of 65 with AD is projected to reach 13.8 million. There are currently 16.1 million unpaid U.S. caregivers providing care to people with dementia. Family caregivers are typically untrained in this work, uneducated about the disease and their treatment options, and struggling to take care of their loved ones while managing their own lives and families. The total lifetime cost of care is estimated at $357,297 per person with 70% of this borne by family caregivers in the form of unpaid care and out-of-pocket expenses, and many AD/ADRD caregivers bear the responsibility of making financial decisions on behalf of the person they’re caring for. Research has recently begun to examine the connection between financial strain and caregiver psychosocial well-being; many findings suggest that financial stress is a significant predictor of caregiver distress, which often may lead to suboptimal decision making and lower quality of care. In partnership with the Alzheimer’s Association, Kinto proposes to help to address this challenge by developing a solution which leverages mobile technology to deliver a highly scalable caregiver support and training service that combines three mutually reinforcing elements: Virtual Care Coaching, Personalized eLearning Curriculum, and Virtual Peer Support Groups. We are collaborating with the Alzheimer’s Association to provide trained and experienced Masters-level coaches who develop an individualized action plan with each client, imparting expert advice and introducing relevant curriculum modules to address each family’s specific needs. Regular peer support groups facilitated via video conference and in-app messaging underpin the coaching and curriculum by providing a forum for caregivers to share experiences, solutions, and empathy. In Phase I, we propose integrating these elements to develop a prototype platform and service, and testing the usability and efficacy of the solution to address caregivers’ financial literacy and planning needs. The prototype solution will be tested by a diverse group of caregivers in both English and US-Spanish to establish its impact on financial knowledge, efficacy, strain and action. Based on these results, and feedback from participant caregivers and coaches, Phase II proposes the development of a fully scalable and integrated solution that will then be tested in a detailed 300-person study. Kinto and the Alzheimer’s Association will collaborate to share results from these studies in peer-reviewed journals and at dementia and caregiving conferences.

65岁以上的580万美国人与广告/ADRD一起生活，到2050年，该年龄段的人数 预计有65张广告将达到1380万。目前有1610万未付的美国护理人员 为痴呆症患者提供护理。家庭护理人员通常在这项工作中没有受过训练， 对这种疾病及其治疗方案没有教育，并努力照顾亲人 在管理自己的生活和家庭的同时。终身护理总成本估计为357,297美元 家庭护理人员以无偿护理和自付费用的形式拥有70％的人 费用，许多广告/adrd护理人员负责代表财务决策 他们照顾的人。研究最近开始研究 财务压力和照顾者的社会心理健康；许多发现表明财务压力是 护理人员遇险的重要预测指标，这通常可能导致次优决策并降低 护理质量。 与阿尔茨海默氏症协会合作，Kinto提案，以帮助应对这一挑战 开发一种利用移动技术提供高度可扩展的护理人员支持的解决方案 和结合三个相互加强元素的培训服务：虚拟护理教练， 个性化的电子学习课程和虚拟同伴支持小组。我们正在与 阿尔茨海默氏症协会提供训练有素且经验丰富的大师级教练 与每个客户的个性化行动计划，提供专家建议并介绍相关课程 满足每个家庭的特定需求的模块。通过视频准备的常规同伴支持小组 会议和应用内消息传递通过提供一个论坛来支撑教练和课程 照顾者分享经验，解决方案和同理心。 在第一阶段，我们建议整合这些元素以开发一个原型平台和服务，以及 测试解决方案的可用性和效率，以解决护理人员的财务素养和计划 需要。原型解决方案将由一个英语和英语和 美国 - 西班牙人对财务知识，效率，压力和行动的影响建立影响。基于这些 结果以及参与的护理人员和教练的反馈，第二阶段提议开发了 完全可扩展和集成的解决方案将在详细的300人研究中进行测试。 Kinto和 阿尔茨海默氏症协会将在同行评审期刊和 在痴呆症和照料会议上。