Development of a technology-enabled care coaching service for families caring for AD/ADRD & a 300-family study to assess the service's impact on CG financial knowledge, efficacy, strain & action.

为 AD/ADRD 护理家庭开发技术支持的护理指导服务

• 批准号: 10654937
• 负责人: Joseph Chung
• 金额: $ 121.81万
• 依托单位: KINTO
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-01 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10654937
• 关键词: Address; Age; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Behavior; Behavioral; Caregiver support; Caregivers; Caring; Client; Confusion; Decision Making; Dementia; Dementia caregivers; Development; Disease; Distress; E-learning; Educational Curriculum; Effectiveness; Elements; Empathy; Evaluation; Family; Family Caregiver; Family Study; Feasibility Studies; Feedback; Financial Hardship; Grant; Health Benefit; Human; Hybrids; Journals; Knowledge; Lead; Methodological Studies; Modeling; Multilingualism; Paper; Participant; Patients; Peer Review; Persons; Phase; Pre-Post Tests; Protocols documentation; Publishing Peer Reviews; Quality of Care; Readiness; Research; Self Efficacy; Services; Source; Stress; Support Groups; Surveys; Technology; Testing; Time; Training; Training Support; Uninsured Medical Expense; United States; Ursidae Family; Videoconferencing; Work; base; care costs; caregiver education; caregiving; community living; dementia caregiving; experience; family caregiving; financial decision making; financial literacy; human old age (65+); innovation; life time cost; loved ones; mobile computing; novel; peer support; prototype; psychosocial wellbeing; randomized controlled study; research study; symposium; usability; virtual; virtual healthcare

5.8 million Americans age 65+ are living with AD/ADRD and by 2050, the number of people over the age of 65 with AD is projected to reach 13.8 million. There are currently 16.1 million unpaid U.S. caregivers providing care to people with dementia. Family caregivers are typically untrained in this work, uneducated about the disease and their treatment options, and struggling to take care of their loved ones while managing their own lives and families. The total lifetime cost of care is estimated at $357,297 per person with 70% of this borne by family caregivers in the form of unpaid care and out-of-pocket expenses, and many AD/ADRD caregivers bear the responsibility of making financial decisions on behalf of the person they’re caring for. Research has recently begun to examine the connection between financial strain and caregiver psychosocial well-being; many findings suggest that financial stress is a significant predictor of caregiver distress, which often may lead to suboptimal decision making and lower quality of care. In partnership with the Alzheimer’s Association, Kinto proposes to help to address this challenge by developing a solution which leverages mobile technology to deliver a highly scalable caregiver support and training service that combines three mutually reinforcing elements: Virtual Care Coaching, Personalized eLearning Curriculum, and Virtual Peer Support Groups. We are collaborating with the Alzheimer’s Association to provide trained and experienced Masters-level coaches who develop an individualized action plan with each client, imparting expert advice and introducing relevant curriculum modules to address each family’s specific needs. Regular peer support groups facilitated via video conference and in-app messaging underpin the coaching and curriculum by providing a forum for caregivers to share experiences, solutions, and empathy. In Phase I, we propose integrating these elements to develop a prototype platform and service, and testing the usability and efficacy of the solution to address caregivers’ financial literacy and planning needs. The prototype solution will be tested by a diverse group of caregivers in both English and US-Spanish to establish its impact on financial knowledge, efficacy, strain and action. Based on these results, and feedback from participant caregivers and coaches, Phase II proposes the development of a fully scalable and integrated solution that will then be tested in a detailed 300-person study. Kinto and the Alzheimer’s Association will collaborate to share results from these studies in peer-reviewed journals and at dementia and caregiving conferences.

580 万 65 岁以上的美国人患有 AD/ADRD，到 2050 年，65 岁以上的人数将增加 65 岁的 AD 患者预计将达到 1380 万人 目前美国有 1610 万名无薪护理人员。 为痴呆症患者提供护理的家庭护理人员通常没有接受过这项工作的培训， 对这种疾病及其治疗方案缺乏了解，并且难以照顾亲人 同时管理自己的生活和家庭。每人一生的总护理费用估计为 357,297 美元。 其中 70% 由家庭护理人员以无偿护理和自付费用形式承担的人 许多 AD/ADRD 护理人员有责任代表患者做出财务决策 研究最近开始研究他们所照顾的人之间的联系。 经济压力和照顾者的社会心理健康；许多研究结果表明，经济压力是一个 照顾者痛苦的重要预测因素，这通常可能导致次优决策并降低 护理质量。 Kinto 与阿尔茨海默病协会合作，建议通过以下方式帮助应对这一挑战： 开发利用移动技术提供高度可扩展的护理人员支持的解决方案 培训服务结合了三个相辅相成的要素：虚拟护理指导、 我们正在与个性化电子学习课程和虚拟同伴支持小组合作。 阿尔茨海默病协会将提供训练有素、经验丰富的大师级教练，帮助他们培养 为每位客户制定个性化的行动计划，提供专家建议并介绍相关课程 通过视频促进定期同伴支持小组满足每个家庭的具体需求。 会议和应用程序内消息传递通过提供论坛来支持辅导和课程 护理人员分享经验、解决方案和同理心。 在第一阶段，我们建议整合这些元素来开发原型平台和服务，并且 测试该解决方案的可用性和有效性，以解决护理人员的财务知识和规划问题 原型解决方案将由不同的护理人员小组用英语和英语进行测试。 美国-西班牙将在此基础上确定其对金融知识、功效、压力和行动的影响。 根据结果​​以及参与者护理人员和教练的反馈，第二阶段建议开发一个 完全可扩展的集成解决方案，然后将在 300 人的详细研究中进行测试。 阿尔茨海默病协会将合作在同行评审的期刊上分享这些研究的结果 在痴呆症和护理会议上。