Development of a Quality Assessment Tool for Adult Congenital Heart Disease

成人先天性心脏病质量评估工具的开发

• 批准号: 8451399
• 负责人: Michelle Gurvitz
• 金额: $ 13.59万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-06-01 至 2015-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8451399
• 关键词: Accident and Emergency department; Active Learning; Adoption; Adult; Affect; Age; Applications Grants; Award; Canada; Cardiac Surgery procedures; Cardiology; Caring; Child; Childhood; Clinic; Clinical; Clinical Services; Complex; Congenital Abnormality; Data; Data Collection; Data Sources; Development; Education; Environment; Europe; Funding; Future; Generations; Goals; Guidelines; Health Policy; Health Services; Healthcare Systems; Heart; Hospitalization; K-Series Research Career Programs; Learning; Left; Live Birth; Measures; Medical; Medical Records; Medical center; Mentored Patient-Oriented Research Career Development Award; Methodology; Methods; Morbidity - disease rate; Newborn Infant; Operative Surgical Procedures; Outcome; Outcomes Research; Outpatients; Patient Recruitments; Patients; Pediatric Hospitals; Population; Population Research; Practice Guidelines; Principal Investigator; Process; Provider; Publications; Publishing; Quality Indicator; Quality of Care; Recommendation; Research; Research Methodology; Research Personnel; Resources; Review Literature; Series; Services; Severities; Specialist; Surveys; Techniques; Testing; Training; United States; Universities; Visit; Washington; abstracting; base; congenital heart disorder; design; experience; health care economics; health related quality of life; improved; interest; medical specialties; meetings; mortality; tool; validation studies

DESCRIPTION (provided by applicant): Congenital heart disease (CHD) is a common condition affecting 0.8% of live births. With new medical and surgical techniques, over 85% of these children survive to adulthood. Adult patients transitioning to adult providers from their pediatric specialists often suffer fragmented and inconsistent care, which may result in overall poor quality of care. My principal academic interests are improving the care for these adults with CHD, by assessing the quality of care received and evaluating the effect of providing appropriate, high quality care on patient and healthcare system outcomes. The education and research plans in this career development award are designed to support my own transition to an independent clinical and health services investigator studying quality of care and outcomes. The educational plan includes classes, directed learning, and experiential learning in quality of care assessment and outcomes research methods, advanced statistical design and analysis, and healthcare economics and health policy. The educational, research and clinical resources at the University of Washington and Children's Hospital and Regional Medical Center, with millions of dollars in research funding, hundreds of experienced researchers, and large, active cardiology divisions, provide an environment that will greatly assist me in realizing my goals. During this award period, I will develop, feasibility test and validate a comprehensive quality assessment tool for selected adult CHD conditions (QAT-ACHD). The tool will be comprised of quality indicators developed using the RAND QA Tools method. It will be feasibility tested at two adult CHD clinics. It will also be validated by comparing quality scores from the QAT-ACHD with outcomes, including health-related quality of life, hospitalizations and emergency department visits among the patients at 2 adult CHD clinics. In the long term, I plan to expand this type of research with further grant applications to study additional CHD conditions and different care environments. This type of quality assessment should facilitate future research on what services are needed in the healthcare system to provide high quality care to patients with CHD. Relevance: Adults born with heart conditions comprise about 1 million people in the United States and likely outnumber children with these conditions. The conditions vary in severity and treatment and care is often inconsistent when leaving childhood doctors which may result in poor outcomes. Quality assessment measures can help study and standardize high quality care, providing better outcomes for this large patient group.

描述（由申请人提供）：先天性心脏病（CHD）是影响活产0.8％的常见状况。借助新的医疗和手术技术，超过85％的儿童生存到成年。从小儿专家过渡到成人提供者的成年患者通常会遭受分散且不一致的护理，这可能会导致整体护理质量差。我的主要学术兴趣正在通过评估收到的护理质量并评估提供适当，高质量护理对患者和医疗保健系统成果的适当影响的影响，从而改善了这些成年人的护理。该职业发展奖的教育和研究计划旨在支持我向独立临床和卫生服务调查员的过渡，研究了护理质量和成果。教育计划包括课程，定向学习以及护理评估质量和结果研究方法，高级统计设计和分析以及医疗保健经济学和健康政策的体验式学习。华盛顿大学以及儿童医院和地区医疗中心的教育，研究和临床资源，数百万美元的研究资金，数百名经验丰富的研究人员以及大型活跃的心脏病学部门，提供了一个环境，可以极大地帮助我实现实现我的目标。在此奖励期间，我将开发可行性测试并验证针对成人冠心病条件（QAT-ACHD）的全面质量评估工具。该工具将由使用RAND QA工具方法开发的质量指标组成。这将是在两个成人冠心病诊所测试的可行性。还将通过将QAT-ACHD的质量得分与结果进行比较，包括与健康相关的生活质量，住院和急诊科的质量分数，在2家成人冠心病诊所的患者中访问。从长远来看，我计划通过进一步的赠款申请扩大此类研究，以研究其他CHD条件和不同的护理环境。这种类型的质量评估应促进对医疗保健系统中需要哪些服务为冠心病患者提供高质量护理的未来研究。 相关性：患有心脏病的成年人在美国约有100万人，可能超过患有这些条件的儿童。在离开儿童时期医生时，严重程度，治疗和护理的条件通常不一致，这可能会导致结果不佳。质量评估措施可以帮助研究和标准化高质量的护理，为这个大型患者组提供更好的结果。