Development of a Quality Assessment Tool for Adult Congenital Heart Disease

成人先天性心脏病质量评估工具的开发

• 批准号: 8183768
• 负责人: Michelle Gurvitz
• 金额: $ 13.56万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-06-01 至 2015-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8183768
• 关键词: Accident and Emergency department; Active Learning; Adoption; Adult; Affect; Age; Applications Grants; Award; Canada; Cardiac Surgery procedures; Cardiology; Caring; Child; Childhood; Clinic; Clinical; Clinical Services; Complex; Congenital Abnormality; Data; Data Collection; Data Sources; Development; Education; Environment; Europe; Funding; Future; Generations; Goals; Guidelines; Health Policy; Health Services; Healthcare Systems; Heart; Hospitalization; K-Series Research Career Programs; Learning; Left; Live Birth; Measures; Medical; Medical Records; Medical center; Mentored Patient-Oriented Research Career Development Award; Methodology; Methods; Morbidity - disease rate; Newborn Infant; Operative Surgical Procedures; Outcome; Outcomes Research; Outpatients; Patient Recruitments; Patients; Pediatric Hospitals; Population; Population Research; Practice Guidelines; Principal Investigator; Process; Provider; Publications; Publishing; Quality Indicator; Quality of Care; Recommendation; Research; Research Methodology; Research Personnel; Resources; Review Literature; Series; Services; Severities; Specialist; Surveys; Techniques; Testing; Training; United States; Universities; Visit; Washington; abstracting; base; congenital heart disorder; design; experience; health care economics; health related quality of life; improved; interest; medical specialties; meetings; mortality; tool; validation studies

DESCRIPTION (provided by applicant): Congenital heart disease (CHD) is a common condition affecting 0.8% of live births. With new medical and surgical techniques, over 85% of these children survive to adulthood. Adult patients transitioning to adult providers from their pediatric specialists often suffer fragmented and inconsistent care, which may result in overall poor quality of care. My principal academic interests are improving the care for these adults with CHD, by assessing the quality of care received and evaluating the effect of providing appropriate, high quality care on patient and healthcare system outcomes. The education and research plans in this career development award are designed to support my own transition to an independent clinical and health services investigator studying quality of care and outcomes. The educational plan includes classes, directed learning, and experiential learning in quality of care assessment and outcomes research methods, advanced statistical design and analysis, and healthcare economics and health policy. The educational, research and clinical resources at the University of Washington and Children's Hospital and Regional Medical Center, with millions of dollars in research funding, hundreds of experienced researchers, and large, active cardiology divisions, provide an environment that will greatly assist me in realizing my goals. During this award period, I will develop, feasibility test and validate a comprehensive quality assessment tool for selected adult CHD conditions (QAT-ACHD). The tool will be comprised of quality indicators developed using the RAND QA Tools method. It will be feasibility tested at two adult CHD clinics. It will also be validated by comparing quality scores from the QAT-ACHD with outcomes, including health-related quality of life, hospitalizations and emergency department visits among the patients at 2 adult CHD clinics. In the long term, I plan to expand this type of research with further grant applications to study additional CHD conditions and different care environments. This type of quality assessment should facilitate future research on what services are needed in the healthcare system to provide high quality care to patients with CHD. Relevance: Adults born with heart conditions comprise about 1 million people in the United States and likely outnumber children with these conditions. The conditions vary in severity and treatment and care is often inconsistent when leaving childhood doctors which may result in poor outcomes. Quality assessment measures can help study and standardize high quality care, providing better outcomes for this large patient group.

描述（由申请人提供）：先天性心脏病 (CHD) 是一种常见疾病，影响 0.8% 的活产儿。借助新的医疗和外科技术，超过 85% 的儿童能够存活到成年。成年患者从儿科专家过渡到成人提供者往往会遭受支离破碎和不一致的护理，这可能导致整体护理质量较差。我的主要学术兴趣是通过评估所接受的护理质量以及评估提供适当、高质量的护理对患者和医疗保健系统结果的影响，改善对这些患有先心病的成年人的护理。该职业发展奖中的教育和研究计划旨在支持我自己过渡到研究护理质量和结果的独立临床和健康服务研究者。教育计划包括护理质量评估和结果研究方法、先进统计设计和分析以及医疗保健经济学和卫生政策方面的课程、定向学习和体验式学习。华盛顿大学、儿童医院和地区医疗中心的教育、研究和临床资源，包括数百万美元的研究经费、数百名经验丰富的研究人员以及大型、活跃的心脏病科，提供了一个将极大地帮助我实现这一目标的环境。我的目标。在此奖励期间，我将开发、可行性测试和验证针对选定的成人先心病病症的综合质量评估工具（QAT-ACHD）。该工具将由使用兰德质量保证工具方法开发的质量指标组成。它将在两家成人先心病诊所进行可行性测试。它还将通过比较 QAT-ACHD 的质量评分与结果进行验证，包括 2 个成人 CHD 诊所患者的健康相关生活质量、住院情况和急诊就诊情况。从长远来看，我计划通过进一步的拨款申请来扩展此类研究，以研究其他先心病状况和不同的护理环境。这种类型的质量评估应该有助于未来研究医疗保健系统需要哪些服务来为先心病患者提供高质量的护理。 相关性：在美国，患有先天性心脏病的成年人大约有 100 万人，而且可能比患有这些疾病的儿童人数还要多。病情的严重程度各不相同，离开儿童医生时的治疗和护理往往不一致，这可能会导致不良结果。质量评估措施可以帮助研究和标准化高质量护理，为这一庞大的患者群体提供更好的结果。