Technology to Empower Changes in Health (TECH) Network Participant Technologies Center

技术赋能健康变革 (TECH) 网络参与者技术中心

• 批准号: 10013434
• 负责人: Eric Jeffrey Topol
• 金额: $ 944.61万
• 依托单位: SCRIPPS RESEARCH INSTITUTE, THE
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-16 至 2023-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10013434
• 关键词: Accelerometer; Address; Age; American; Android; Apple; Back; Blue Cross; Blue Shield; Cellular Phone; Climacteric; Communication; Computer software; Consent; Data; Data Analyses; Data Collection; Development; Devices; Ecosystem; Enrollment; Ensure; Foundations; Future; Goals; Growth; Health; Infrastructure; Institutes; International; Internet; Knowledge; Language; Lead; Life; Longitudinal cohort; Maintenance; Medical; Methods; PMI cohort; Participant; Patients; Persons; Population Heterogeneity; Privacy; Provider; Research; Research Personnel; Resources; Safety; Secure; Security; Stream; System; Technology; Telephone; Testing; Time; Translational Research; Vendor; Vision; Wireless Technology; Work; data acquisition; data management; design; digital; empowered; experience; flexibility; health care delivery; improved; innovation; lens; mHealth; member; microphone; mobile application; peer; programs; sensor; support network; usability; web services

Abstract/Project Summary Remarkable advancements in our nation's digital infrastructure combined with explosive growth in pervasive wireless connectivity have created the unprecedented potential to improve both our health and the delivery of healthcare. Beyond their universal availability, smartphones and the mobile networks that support them offer an unparalleled platform for health-related data acquisition and communications. The visionary Precision Medicine Initiative Cohort Program (PMI-CP) is possible, in large part, due to the availability of this digital infrastructure. However, to convert the enormous pool of mostly disjointed information available through a million-person longitudinal cohort into meaningful, life-changing medical knowledge requires development of an innovative, member-centric, engaging, and secure digital network that is state-of-art today, and by design, sustainably so over ensuing years and decades. In order to assure that the PMI-CP achieves its goal to transform the existing culture of medical practice and research by empowering patients, researchers and providers to work together as peers requires the collaborative support of many people with diverse expertise but a singular focus on participant-centeredness. The Participant Technologies Center (PTC) is a critical component to making that happen, and to ensure that we are able to successfully meet the needs of the PMI Steering Committee, and most importantly, the PMI participants, we have formed a network or world-class partners that together have the resources, experience and capabilities necessary to expertly address the known and not-yet known challenges of an endeavor as transformational and far-sighted as the PMI-CP. The Technology to Empower Change in Health (TECH) network is led by Scripps Translational Science Institute and Sage Bionetworks, and includes PatientsLikeMe, Qualcomm, Walgreens, Verizon, Lockheed-Martin, and the Blue Cross Blue Shield Association, bringing together unprecedented experience and knowledge around participant engagement, digital security and personal technologies. Although the PTC is designed to optimize the utilization of technologies in the PMI-CP, our unwavering focus will be on the PMI participant and how to maximize the benefit of participation for them personally. We will accomplish this by laying a foundation built upon personalized engagement strategies, an resolute commitment to security and privacy, and assuring the availability of the state-of-the-art technology needed to meet all current and future data and information sharing needs. .

摘要/项目摘要 我国数字基础设施的显着进步和爆炸性增长 无线连接的普及创造了前所未有的潜力，可以改善我们的生活 健康和医疗保健的提供。除了普遍可用性之外，智能手机和 支持它们的移动网络为健康相关数据提供了无与伦比的平台 采集和通信。富有远见的精准医学倡议队列计划 (PMI-CP) 之所以成为可能，很大程度上要归功于这种数字基础设施的可用性。然而， 将数百万人获得的大量杂乱的信息进行转换 纵向队列研究有意义的、改变生活的医学知识需要发展 当今最先进的创新、以会员为中心、有吸引力且安全的数字网络， 并且按照设计，在接下来的几年和几十年里可持续地如此。 为了确保 PMI-CP 实现其改变现有医疗文化的目标 通过授权患者、研究人员和提供者共同努力进行实践和研究 同行需要许多具有不同专业知识但单一的人的协作支持 注重以参与者为中心。参与者技术中心 (PTC) 是一个关键的 实现这一目标的组成部分，并确保我们能够成功满足 PMI 指导委员会的需求，最重要的是 PMI 参与者的需求，我们有 形成了一个网络或世界级的合作伙伴，共同拥有资源、经验和 熟练地解决已知和未知挑战所必需的能力 像 PMI-CP 一样具有变革性和远见的努力。科技赋能 健康变革 (TECH) 网络由斯克里普斯转化科学研究所和 Sage 领导 Bionetworks，包括PatientsLikeMe、高通、沃尔格林、威瑞森、洛克希德马丁、 和蓝十字蓝盾协会，汇集了前所未有的经验和 有关参与者参与、数字安全和个人技术的知识。 尽管 PTC 旨在优化 PMI-CP 中技术的利用，但我们的 坚定不移的重点将放在 PMI 参与者以及如何最大化参与收益上 对于他们个人而言。我们将通过建立基于个性化的基础来实现这一目标 参与策略、对安全和隐私的坚定承诺以及确保 满足所有当前和未来数据所需的最先进技术的可用性 信息共享需求。 。