Live Smart Live Safe: Emergency Prep. for People with Intellectual Disabilities

智能生活 安全生活：紧急准备。

• 批准号: 8010718
• 负责人: JENNIFER J. WELLS
• 金额: $ 1.17万
• 依托单位: TECH ASSISTANCE INST/INTELLECTUAL DISABL
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-04-06 至 2010-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8010718
• 关键词: Address; Adult; Advocacy; Age; Algorithms; Allergy to peanuts; American; Area; Avian Influenza; Awareness; Behavior; Behavioral; Biological; CD-I; CD-ROM; Chemicals; Cognitive; Communities; Companions; Computers; Consultations; Development; Diabetes Mellitus; Disabled Persons; Disasters; Disease; Education; Educational process of instructing; Effectiveness; Emergency Situation; Emotional; Environmental Exposure; Evaluation; Event; Family; Food; Germ; Guidelines; Hand; Health; Hearing; Heart Diseases; Home environment; Hurricane; Illness Days; Incidence; Independent Living; Individual; Institutes; Institution; Intellectual functioning disability; Internet; Intervention; Learning; Life; Lung diseases; Marketing; Measurement; Mild mental retardation; Moderate Mental Retardation; National Institute of Nursing Research; Non-Insulin-Dependent Diabetes Mellitus; Nursing Research; Online Systems; Oregon; Paper; Participant; Personal Satisfaction; Phase; Preparation; Prevention; Production; Program Development; Public Health; Public Health Education; Randomized; Readiness; Reading; Research Design; Research Priority; Resources; Risk; Series; Services; Shapes; Shelter facility; Site; Social Work; Structure; Surveys; Target Populations; Technology; Telephone Interviews; Television; Terrorism; Text; Thermometers; Time; Toxic effect; Training; Training Programs; Viral; Work; Writing; base; computer program; design; dietary restriction; digital; disability; evaluation/testing; field study; flu; follow-up; health disparity; health related quality of life; improved; meetings; pandemic disease; pandemic influenza; prevent; programs; prototype; public health emergency; public health relevance; respiratory; satisfaction; skills; transmission process; tv watching; young adult

DESCRIPTION (provided by applicant): The Technological Assistance Institute for Intellectual Disability, Inc. proposes to develop a product line of public health and emergency preparedness education programs to meet the needs of people with disabilities, and the institutions and organizations that serve them. The Live Smart Live Safe (LSLS) programs will address material, behavioral, and emotional preparedness for public health, natural, and man-made disasters. The final result of this work will be the LSLS programs, consisting of CD-ROM, DVD, and pictorial-based "911 Notebook" (911 Notes), designed for the unique learning needs of people with Intellectual Disabilities (ID). The programs will be disseminated through public health and social service, public and private education institutions, and advocacy and support service agencies and families that assist youth and adults with disabilities as they move toward full inclusion and independence in communities across the Nation. Given the National Institute of Nursing Research (NINR) focus on biological and behavioral aspects of critical health problems that confront the Nation, this application addresses NINR priorities including a) improving health-related quality of life by preventing or delaying disease, b) establishing better approaches to promote health and prevent disease, b) promote interventions to eliminate health disparities, and c) to develop technologies to assist individuals in reducing environmental exposures (e.g., chemical and viral agents). Phase II of this application will expand the Phase I prototype program, and develop and evaluate the remaining three interactive CD-ROM computer-based training programs that address public health emergencies, natural, and man-made disasters including terrorism. Along with the CD-ROM programs, four companion DVD programs will be developed as well as a pictorial-based 911 Notes to accompany and support information conveyed via CD-ROM. We will work with one advisory panel of people with ID and conduct 30 telephone interviews with experts in the areas of public health and emergency preparedness to shape content and message presentation. We will evaluate the Phase II programs with 80 individuals with mild ID throughout the State of Oregon employing a pretest, posttest, and follow-up evaluation. PUBLIC HEALTH RELEVANCE: Most Americans rely on television, written materials, and the Internet to learn about, and prepare for potential emergency situations. Although people with Intellectual Disabilities (ID) such as mild, or moderate mental retardation often watch television, most written materials, guidelines, and web-based resources that provide information about public health, natural, and man-made disasters rely heavily on text, and are inaccessible to people with mild or moderate ID. People with ID, many of whom are independent and live on their own do not have access to this potentially life-saving information.

描述（由申请人提供）：智力障碍技术援助研究所提议开发公共卫生和应急准备教育计划的产品线，以满足残疾人以及为他们服务的机构和组织的需求。 Live Smart Live Safe (LSLS) 计划将解决针对公共卫生、自然和人为灾难的物质、行为和情感准备。这项工作的最终成果将是LSLS程序，包括CD-ROM、DVD和图画式“911笔记本”（911 Notes），专为智力障碍者（ID）的独特学习需求而设计。这些计划将通过公共卫生和社会服务、公立和私立教育机构以及宣传和支持服务机构和家庭进行传播，以帮助残疾青年和成人在全国各地的社区中实现全面融入和独立。鉴于国家护理研究所 (NINR) 重点关注国家面临的关键健康问题的生物学和行为方面，该应用程序解决了 NINR 的优先事项，包括 a) 通过预防或延缓疾病来改善与健康相关的生活质量，b) 建立更好的促进健康和预防疾病的方法，b) 促进消除健康差异的干预措施，以及 c) 开发技术以帮助个人减少环境暴露（例如化学和病毒制剂）。该应用程序的第二阶段将扩展第一阶段的原型计划，并开发和评估其余三个交互式 CD-ROM 计算机培训计划，以应对突发公共卫生事件、自然灾害和包括恐怖主义在内的人为灾难。除了 CD-ROM 程序之外，还将开发四个配套 DVD 程序以及基于图片的 911 Notes，以伴随和支持通过 CD-ROM 传达的信息。我们将与一个由智障人士组成的顾问小组合作，并对公共卫生和应急准备领域的专家进行 30 次电话采访，以形成内容和信息呈现方式。我们将通过预测试、后测试和后续评估，对整个俄勒冈州 80 名轻度智力障碍患者进行第二阶段项目评估。公共卫生相关性：大多数美国人依靠电视、书面材料和互联网来了解并为潜在的紧急情况做好准备。尽管患有轻度或中度智力障碍等智力障碍 (ID) 的人经常看电视，但大多数提供有关公共卫生、自然灾害和人为灾害信息的书面材料、指南和网络资源在很大程度上依赖于文本，轻度或中度智力障碍患者无法接触到。患有智力障碍的人，其中许多人是独立的，独自生活，无法获得这种可能挽救生命的信息。