Improving Quality Care for Children with Special Needs

提高对有特殊需要的儿童的护理质量

• 批准号: 7056924
• 负责人: CARMEN BERTUCCI LOZZIO
• 金额: $ 36.55万
• 依托单位: UNIVERSITY OF TENNESSEE KNOXVILLE
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-30 至 2008-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7056924
• 关键词: Internet; adolescence (12-20); automated medical record system; behavioral /social science research tag; child (0-11); child behavior disorders; child mental disorders; clinical research; cooperative study; developmental disease /disorder; genetic disorder; health care policy; health care quality; health care service availability; health care service evaluation; health services research tag; human subject; longitudinal human study; patient care management; patient safety /medical error; pediatrics; shared health service

DESCRIPTION (PROVIDED BY THE APPLICANT): The purpose of this project is to implement plans to develop the Health Information Technology (HIT) infrastructure in Tennessee to promote and improve the safety and quality of health care for Children with Special Health Care Needs (CSHCN). An electronic health record called Child Health Profile (CHP) is being developed for infants with disorders detected by the state Newborn Screening (NBS) and Newborn Hearing (NBH) programs. The proposed project will expand the CHP to include children with other genetic disorders and developmental disabilities diagnosed at the major Genetic and Child Development Centers in the state. The use of this electronic health record (CHP) by pediatricians and case managers will improve the quality of follow up and management services for CSHCN. The project goals include: (a) expanding the Health Information Technology (HIT) infrastructure in Tennessee and providing the essential information to improve the safety and quality of health care for CSHCN; (b) providing accurate, comprehensive and integrated health and educational information on CSHCN by linkage of databases developed by providers of health and educational services; and (c) making available to health care providers (with parental permission) access to a secure web based integrated electronic health record (CHP) to ensure current information and continuity of care. The key partners in the project, including the University of Tennessee, Department of Medical Genetics (Knoxville), University Health Systems, the Vanderbilt University Genetic Center and Center for Child Development, and the University of Tennessee Health Sciences Center (Memphis) Boling Center for Developmental Disabilities and Genetic Center, will leverage state resources to implement a comprehensive data linking and sharing network across the state to enhance the quality of services for CSHCN. The project is relevant because it will provide secure, accurate health information on CSHCN to authorized providers from a single electronic source, thereby improving healthcare delivery to CSHCN. Furthermore, the data sharing arrangements will allow developmental milestone tracking of CSHCN across the continuum of development from birth to adulthood and beyond. Success of the project will lead to further data sharing efforts between states and on a national level as part of Regional Health Information Organizations (RHIOs) and a proposed National Health Information Network (NHIN).

描述（由申请人提供）：该项目的目的是实施在田纳西州开发健康信息技术 (HIT) 基础设施的计划，以促进和改善有特殊医疗保健需求的儿童 (CSHCN) 的医疗保健安全和质量。正在为患有国家新生儿筛查 (NBS) 和新生儿听力 (NBH) 计划检测到的疾病的婴儿开发一种名为儿童健康档案 (CHP) 的电子健康记录。拟议的项目将扩大 CHP，将在该州主要遗传和儿童发展中心诊断出的患有其他遗传性疾病和发育障碍的儿童纳入其中。 儿科医生和病例管理员使用电子健康记录 (CHP) 将提高 CSHCN 的随访和管理服务质量。项目目标包括： (a) 扩大田纳西州的健康信息技术 (HIT) 基础设施，并提供必要信息以提高 CSHCN 医疗保健的安全性和质量； (b) 通过连接卫生和教育服务提供者开发的数据库，在 CSHCN 上提供准确、全面和综合的卫生和教育信息； (c) 向医疗保健提供者（经家长许可）提供基于安全网络的综合电子健康记录 (CHP)，以确保当前信息和护理的连续性。该项目的主要合作伙伴包括田纳西大学医学遗传学系（诺克斯维尔）、大学健康系统、范德比尔特大学遗传中心和儿童发展中心、田纳西大学健康科学中心（孟菲斯）博林中心发育障碍与遗传中心将利用国家资源，在全州范围内建立全面的数据链接和共享网络，以提高 CSHCN 的服务质量。 该项目具有重要意义，因为它将通过单一电子来源向授权提供商提供 CSHCN 上安全、准确的健康信息，从而改善 CSHCN 的医疗保健服务。 此外，数据共享安排将允许 CSHCN 在从出生到成年及以后的连续发展过程中跟踪发展里程碑。该项目的成功将导致各州之间和国家层面上进一步的数据共享工作，作为区域卫生信息组织（RHIO）和拟议的国家卫生信息网络（NHIN）的一部分。