Improving Quality Care for Children with Special Needs

提高对有特殊需要的儿童的护理质量

基本信息

批准号：
6891113
负责人：
CARMEN BERTUCCI LOZZIO
金额：
$ 20万
依托单位：
UNIVERSITY OF TENNESSEE KNOXVILLE
依托单位国家：
美国
项目类别：
财政年份：
2004
资助国家：
美国
起止时间：
2004-09-30 至 2005-09-29
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/6891113
关键词：
Internet bioinformatics child with disability clinical research communication disorder diagnosis computer network data management health care facility information system health care quality health care service planning health disparity health science research support health services research tag human data medical records newborn human (0-6 weeks)rural area technology /technique development

项目摘要

DESCRIPTION (provided by the applicant): The proposed project plans to develop a database to include diagnosis, health records, and educational information on children with special healthcare needs (CSHCN), especially those with genetic conditions and developmental disabilities. A major task for this project will be to establish partnerships between the providers of services and data generators for CSHCN, with database holders in the Departments of Health, Education, Mental Retardation, and TennCare. The proposed project Goals are: I. To develop the health information technology (HIT) infrastructure needed to promote and improve the safety and quality of healthcare for CSHCN. II. To promote cooperative agreements among providers of healthcare for CSHCN and linkage into a single data warehouse that will be accessible by each provider. III. To make available to healthcare providers access to an integrated electronic health record of CSHCN (with parental permission) through a secure web-based system. The specific aims for these goals are: I.1 To include other CSHCN in the Tennessee Child Health Profile (TN CHP), a HIT system for infants identified by state newborn screening (NBS) and newborn hearing screening (NHS). I.2 To improve coordination of services, timelines of followup and patient tracking to avoid loss of cases and to reduce delays in delivering appropriate treatments. I.3 To reduce misinformation and give easy access to healthcare specialists of the primary diagnosis for CSHCN. II.1 To incorporate and integrate into a common data warehouse the databases from various state departments. II.2 To integrate systems of early identification with early intervention services. II.3 To increase communication between all aspects of the healthcare and educational systems to improve the quality of life for CSHCN. III.1. To offer healthcare providers all relevant health information on a child (with parental permission) from a single secure web source (TN-CHP). III.2 To give parents access to their child's records and an electronic mechanism to communicate their concerns, progress, and other relevant information.

描述（由申请人提供）：拟议项目计划开发一个数据库，其中包括有特殊医疗保健需求的儿童（CSHCN）的诊断、健康记录和教育信息，特别是那些患有遗传性疾病和发育障碍的儿童。该项目的一项主要任务是在 CSHCN 的服务提供商和数据生成者与卫生、教育、精神发育迟滞和 TennCare 部门的数据库持有者之间建立伙伴关系。拟议项目的目标是： I. 开发促进和提高 CSHCN 医疗保健安全和质量所需的卫生信息技术 (HIT) 基础设施。二.促进 CSHCN 医疗保健提供者之间的合作协议，并链接到每个提供者都可以访问的单一数据仓库。三．使医疗保健提供者可以通过安全的网络系统访问 CSHCN 的集成电子健康记录（经家长许可）。这些目标的具体目标是： I.1 将其他 CSHCN 纳入田纳西州儿童健康档案 (TN CHP)，这是一个针对通过州新生儿筛查 (NBS) 和新生儿听力筛查 (NHS) 确定的婴儿的 HIT 系统。 I.2 改善服务协调、随访时间表和患者跟踪，以避免病例丢失并减少提供适当治疗的延误。 I.3 减少错误信息并让医疗保健专家能够轻松获得 CSHCN 的初步诊断。 II.1 将各个国家部门的数据库合并并集成到一个公共数据仓库中。 II.2 将早期识别系统与早期干预服务相结合。 II.3 加强医疗保健和教育系统各方面之间的沟通，以提高 CSHCN 的生活质量。三.1.从单一安全网络源 (TN-CHP) 向医疗保健提供者提供儿童的所有相关健康信息（经父母许可）。 III.2 允许家长访问孩子的记录和电子机制，以传达他们的担忧、进展情况和其他相关信息。