PSYCHOSOCIAL CORE

心理社会核心

• 批准号: 6917506
• 负责人: Mary Sherman Mittelman
• 金额: $ 14.28万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-05-01 至 2010-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6917506
• 关键词: Alzheimer' s disease; behavioral /social science research tag; biomedical facility; caregivers; clinical research; genetic counseling; health services research tag; human subject; mental health counseling; psychosocial service; quality of life

The Psychosocial Core conducts a comprehensive assessment of the primary caregivers of all subjects participating in the Clinical Core, and family members of those with MCI and AD, follows them longitudinally and provides them with counseling on request. The routine structured multifaceted assessment is in two parts: the first part includes measures of depression, anxiety, social network and support and quality of life; the second part measures family conflict, behavior problems and caregiver reaction, caregiver appraisal, formal and informal support utilization and other specific characteristics related to caregiving. Family members of patients with AD complete the entire assessment. Subjects with MCI, their study partners and cognitively normal subjects who are not caregivers complete only the first part of this assessment. At the conclusion of every diagnostic evaluation of the Clinical Core, counselors of the Psychosocial Core conduct conferences with the subject, primary caregiver (if appropriate) and other family members. The counseling staff is available to respond to requests for help and information, are a user-friendly resource and a link between center subjects and other center staff. They make regular follow-up telephone calls to all participants in the Psychosocial Core. Their activities facilitate recruitment of new subjects, retention of current subjects and participation of subjects in autopsy tracking and in research studies. The Psychosocial Core data is a resource for the research of the NYU Psychosocial Research Program, and for other collaborating investigators in the field. The Psychosocial Core includes a comprehensive genetic counseling and education program, which will serve the goals of the NIA-Genetics Initiative and ADCC-affiliated researchers in genetics and proteomics and provide data to extend our evaluations of psychosocial interventions to include development of effective counseling and support for concerned subjects and family members about genetic risk for AD. The large database and subject pool, to which we will continue to add new subjects and longitudinal information, will be a valuable research resource in its own right and foster the formulation of new research to improve caregiver and patient well-being.

社会心理核心对参与临床核心的所有受试者的主要护理人员进行了全面评估，并且有MCI和AD的人的家庭成员纵向跟随他们，并根据要求为他们提供咨询。常规结构化的多面评估分为两个部分：第一部分包括抑郁，焦虑，社交网络和支持以及生活质量的措施；第二部分衡量了家庭冲突，行为问题和看护人的反应，护理人员评估，正式和非正式支持利用以及与护理有关的其他特定特征。 AD患者的家庭成员完成整个评估。与MCI的受试者，他们的研究伙伴和不属于护理人员的认知正常受试者仅完成了本评估的第一部分。 在对临床核心进行的每项诊断评估的结论结束时，与受试者的心理社会核心行为会议的辅导员，初级护理人员（如果适当）和其他家庭成员。咨询人员可以响应帮助和信息的请求，是一种用户友好的资源以及中心主题与其他中心工作人员之间的链接。他们定期向所有参与者打电话给大会核心的所有参与者。他们的活动有助于招募新主题，保留当前受试者以及 受试者参与尸检跟踪和研究。社会心理核心数据是纽约大学心理社会研究计划的研究的资源，也是该领域的其他合作研究人员的资源。社会心理核心包括一项全面的遗传咨询和教育计划，该计划将实现NIA基因倡议的目标以及与遗传学和蛋白质组学的ADCC相关研究人员的目标，并提供数据以扩展我们对心理心理干预的评估，以包括开发有效的咨询和有效咨询和咨询的发展。 支持有关AD的遗传风险的相关受试者和家庭成员的支持。大型数据库和主题池，我们将继续添加新主题和纵向 信息本身将是一种宝贵的研究资源，并促进了新研究的制定，以改善照料者和患者福祉。