Trends and Dynamics in Caregiving for Alzheimer’s Disease and Related Dementias: Extending the National Study of Caregiving

阿尔茨海默病和相关痴呆症护理的趋势和动态：扩展国家护理研究

• 批准号: 10430150
• 负责人: VICKI A. FREEDMAN
• 金额: $ 211.51万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-06-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10430150
• 关键词: Address; Adult; Age; Aging; Alzheimer' s disease related dementia; American; Americas; Baby Booms; Caregivers; Caring; Collection; Companions; Contracts; Data; Dementia; Dementia caregivers; Demographic Factors; Educational workshop; Elderly; Employment; Ensure; Environment; Family; Family Caregiver; Family member; Foundations; Future; Generations; Health; Household; Individual; Infrastructure; Internet; Interview; Knowledge; Laws; Life; Link; Long-Term Care; Longitudinal trends; Measures; Myristica fragrans; Older Population; Online Systems; Outcome; Participant; Personal Satisfaction; Persons; Population; Process; Research; Research Personnel; Resources; Sampling Studies; Self Care; Services; Shapes; Surveys; Telephone; Time; Training; base; care recipients; caregiving; cost effective; dementia care; dementia caregiving; design; disability; driving force; end of life; end of life care; experience; falls; high risk; human very old age (85+); informal care; informal caregiver; informal caregiving; innovation; longitudinal design; primary caregiver; symposium; telephone-based; trend

Project Summary This project will enhance understanding of informal caregiving to older adults with Alzheimer's disease and related dementia (ADRD) through new national longitudinal data that builds upon the National Health and Aging Trends Study (NHATS) and its companion National Study of Caregiving (NSOC). Together, NHATS and NSOC are the only national data on caregiving to a well characterized population of older adults that offer perspectives from both caregiver and recipient. NHATS collects detailed information annually about the disability and care needs for a nationally representative panel of over 8,000 adults 65 and older. NSOC interviews caregivers of NHATS participants about the care provided, positive and negative aspects of caring, the support environment, and other life circumstances (e.g. employment, health, wellbeing). Until now NSOC has been conducted at irregular intervals (2011, 2015 and 2017). Although offering important analytic opportunities, key aspects of caregiving including dynamics over time and at the end of life for older adults with and without ADRD cannot be adequately addressed with these data. And basic knowledge is lacking about how impending changes in underlying demographic forces will shape caregiver experiences and outcomes as the Baby Boom generation continues to age. This project will fill these gaps by: (1) Conducting four annual rounds of NSOC (2020-2023); (2) Disseminating NSOC each year through www.nhatsdata.org, developing online user materials, holding workshops to train users to use multiple waves of NSOC, and hosting an NSOC User Research Conference; and (3) Conducting targeted analyses to describe recent (2011-2020) and longer-term (1999-2020) trends in informal ADRD care experiences and outcomes, understand demographic forces driving such trends, and highlight contrasts between ADRD and other caregivers. By collecting and disseminating a new, annual NSOC, the proposed project will allow researchers to study a variety of innovative questions about informal caregiving for older adults with ADRD.

项目摘要 该项目将增强对阿尔茨海默氏病的老年人对非正式照顾的理解， 相关痴呆症（ADRD）通过新的国家纵向数据，建立在国家健康和衰老的基础上 趋势研究（NHAT）及其同伴的国家护理研究（NSOC）。一起，NHAT和NSOC 是唯一关于提供观点的老年人人群的唯一有关照料的国家数据 来自护理人员和接收者。 NHAT每年收集有关残疾和护理的详细信息 对8,000多名65岁及以上的成年人的全国代表性小组的需求。 NSOC采访护理人员 NHATS参与者关于提供的护理，关怀的积极和负面方面，支持环境， 以及其他生活环境（例如，就业，健康，福祉）。到目前为止，NSOC已在 不规则间隔（2011年，2015年和2017年）。尽管提供了重要的分析机会，但 护理人员包括随着时间的推移和生活结束时的动态，没有ADRD的老年人 充分解决了这些数据。基本知识缺乏关于即将发生的变化 作为婴儿繁荣的一代 继续老化。该项目将通过以下方式填补这些空白：（1）进行四次年度NSOC（2020-2023）； （2）每年通过www.nhatsdata.org开发NSOC，开发在线用户材料，持有 培训用户使用多个NSOC的讲习班，并举办NSOC用户研究会议； （3）进行有针对性的分析以描述最近（2011-2020）和长期（1999-2020）的趋势 非正式的ADRD护理经验和成果，了解推动这种趋势的人口力量，以及 突出显示ADRD与其他护理人员之间的对比。通过收集和传播新的NSOC， 拟议的项目将允许研究人员研究有关非正式护理的各种创新问题 适用于ADRD的老年人。