Caregiving for Alzheimer's Disease and Related Dementias: Enhancing the National Study of Caregiving (NSOC)

阿尔茨海默病和相关痴呆症的护理：加强国家护理研究 (NSOC)

• 批准号: 9977067
• 负责人: VICKI A. FREEDMAN
• 金额: $ 70.36万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-15 至 2023-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9977067
• 关键词: Address; Adherence; Adult; Adult Children; Affect; Aging; Agreement; Alzheimer' s Disease; Alzheimer' s disease related dementia; Alzheimer' s disease risk; Baby Booms; Caregiver well-being; Caregivers; Caring; Cognition; Communities; Companions; Data; Dementia; Dementia caregivers; Disease; Educational workshop; Elderly; Ensure; European; Family; Family Caregiver; Family member; Generations; Goals; Growth; Health; Health system; Healthcare Systems; High birth weight infant; Hour; Impaired cognition; Individual; Interview; Judgment; Knowledge; Life; Link; Long-Term Care; Measures; Medical; Memory; Myristica fragrans; Nursing Homes; Older Population; Participant; Personal Satisfaction; Persons; Policies; Population; Prevalence; Prevention; Quality of Care; Reporting; Research; Research Design; Research Personnel; Residential Treatment; Respondent; Role; Sampling; Sampling Studies; Services; Spouses; Surveys; Time; United States; base; care recipients; caregiving; cost; dementia care; dementia caregiving; depressive symptoms; diaries; disability; experience; family support; informal care; informal caregiver; informal caregiving; information processing; innovation; insight; meetings; population based; satisfaction; trend

PROJECT SUMMARY: There is widespread agreement that growth in the number of people living into their 80s and 90s, when risks of Alzheimer's disease and related dementias (ADRD) are substantial, will dramatically increase the number of people living with dementia over the next few decades. Caregiving to people with ADRD is most often provided by family members and while the National Plan to Address Alzheimer's Disease has among its goals enhancing the care quality for persons with ADRD and expanding supports for family caregivers there are critical gaps in knowledge about how to proceed. This project enhances understanding of caregiving to older adults with Alzheimer's disease and related dementia through new national longitudinal data that builds upon the National Health and Aging Trends Study (NHATS) and its companion National Study of Caregiving (NSOC). The unique NSOC study design and new content proposed for NSOC III will permit contrasts between caregivers to older adults with and without ADRD for a nationally representative sample of caregivers who help older adult participants in the NHATS. Begun in 2011, NHATS collects detailed information annually about the disability and care needs for a nationally representative panel of over 8,000 adults 65 and older. By collecting, disseminating, and analyzing a new round of NSOC, the proposed project will allow researchers to study a range of innovative questions about ADRD caregiving and its consequences from the perspective of both the care recipient and the caregiver. Aims are : 1. Re-interview caregivers who participated in the 2015 NSOC and new caregivers of older adults in the 2017 NHATS. In addition to core NSOC content, administer a new module on involvement in medical care and two time diary interviews to capture activities and experienced wellbeing on the previous day. Altogether, we expect a nationally representative sample of about 2700 caregivers to older adults, including about 900 caring for older adults with Alzheimer's disease and related dementias. 2. Disseminate the data widely by creating a set of easy-to-use linked longitudinal files; holding user workshops at scientific meetings; and hosting an early results workshop focused on ADRD caregiving; and, 3. Conduct analyses to: 1) identify salient ADRD informal care and caregiving trajectories from both recipient and caregiver perspectives; 2) provide the first national profile of informal ADRD caregivers' health system interactions; and 3) investigate the wellbeing of informal ADRD caregivers and the role of care activities. For each topic, we will provide contrasts with caregivers to older adults without ADRD. The NHATS and NSOC are the only national, population-based surveys that provide insight regarding a well characterized population of older adults as well as the informal caregivers who assist them for health and functioning reasons. These data provide a strong platform for research to inform planning and policies to meet the impending demand for ADRD care and to support ADRD caregivers.

项目摘要：普遍达成的同意，居住在他们的人数中 80年代和90年代，当阿尔茨海默氏病和相关痴呆症（ADRD）的风险很大时， 在接下来的几十年中，大大增加了患有痴呆症的人数。照顾 患有ADRD的人最常由家庭成员提供，而国家计划解决 阿尔茨海默氏病的目标之一可以增强ADRD和扩展的人的护理质量 支持家庭护理人员的支持在有关如何进行的知识方面存在关键的差距。这个项目 通过对老年人的护理人心的了解，通过 基于国家健康和衰老趋势研究（NHATS）及其的新的国家纵向数据 同伴国家护理研究（NSOC）。 NSOC独特的研究设计和提议的新内容 对于NSOC III，将允许有和没有ADRD的老年人之间的看护人与全国性的对比 有助于帮助NHAT的老年人参与者的护理人员样本。始于2011年，NHATS 每年收集有关全国代表性小组残疾和护理需求的详细信息 超过8,000名65岁及以上的成年人。通过收集，传播和分析新一轮的NSOC， 拟议的项目将使研究人员能够研究有关ADRD护理和的一系列创新问题 从护理人员和照料者的角度来看，它的后果。目的是： 1。参加2015年NSOC和新老年人的新老年护理人员的重新接触看护者2017年 NHATS。除了核心NSOC内容外，还管理一个有关参与医疗服务的新模块，两个 时间日记采访了前一天的活动并经历了福祉。总共，我们 期望大约有2700名护理人员的全国代表性样本给老年人，其中约900个 照顾老年人患有阿尔茨海默氏病和相关痴呆症的老年人。 2。通过创建一组易于使用的链接纵向文件来广泛传播数据；持有用户 科学会议的讲习班；并举办一个针对Adrd Caregiving的早期结果研讨会；和， 3。进行分析至：1）从两个接收者那里确定明显的非正式护理和护理轨迹 和看护人的观点； 2）提供非正式ADRD护理人员卫生系统的第一个国家知名度 互动； 3）调查非正式ADRD护理人员的福祉和护理活动的作用。为了 每个主题，我们都会向没有ADRD的老年人提供与护理人员的对比。 NHAT和NSOC 是唯一提供有关人口良好人口的见解的国家，基于人群的调查 出于健康和功能原因，老年人以及非正式护理人员。这些 数据为研究提供了一个强大的平台，以告知规划和政策，以满足即将到来的需求 ADRD护理并支持ADRD护理人员。