Caregiving for Alzheimer's Disease and Related Dementias: Enhancing the National Study of Caregiving (NSOC)

阿尔茨海默病和相关痴呆症的护理：加强国家护理研究 (NSOC)

基本信息

批准号：
9977067
负责人：
VICKI A. FREEDMAN
金额：
$ 70.36万
依托单位：
JOHNS HOPKINS UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-09-15 至 2023-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9977067
关键词：
Address Adherence Adult Adult Children Affect Aging Agreement Alzheimer&apos s Disease Alzheimer&apos s disease related dementia Alzheimer&apos s disease risk Baby Booms Caregiver well-being Caregivers Caring Cognition Communities Companions Data Dementia Dementia caregivers Disease Educational workshop Elderly Ensure European Family Family Caregiver Family member Generations Goals Growth Health Health system Healthcare Systems High birth weight infant Hour Impaired cognition Individual Interview Judgment Knowledge Life Link Long-Term Care Measures Medical Memory Myristica fragrans Nursing Homes Older Population Participant Personal Satisfaction Persons Policies Population Prevalence Prevention Quality of Care Reporting Research Research Design Research Personnel Residential Treatment Respondent Role Sampling Sampling Studies Services Spouses Surveys Time United States base care recipients caregiving cost dementia care dementia caregiving depressive symptoms diaries disability experience family support informal care informal caregiver informal caregiving information processing innovation insight meetings population based satisfaction trend

项目摘要

PROJECT SUMMARY: There is widespread agreement that growth in the number of people living into their 80s and 90s, when risks of Alzheimer's disease and related dementias (ADRD) are substantial, will dramatically increase the number of people living with dementia over the next few decades. Caregiving to people with ADRD is most often provided by family members and while the National Plan to Address Alzheimer's Disease has among its goals enhancing the care quality for persons with ADRD and expanding supports for family caregivers there are critical gaps in knowledge about how to proceed. This project enhances understanding of caregiving to older adults with Alzheimer's disease and related dementia through new national longitudinal data that builds upon the National Health and Aging Trends Study (NHATS) and its companion National Study of Caregiving (NSOC). The unique NSOC study design and new content proposed for NSOC III will permit contrasts between caregivers to older adults with and without ADRD for a nationally representative sample of caregivers who help older adult participants in the NHATS. Begun in 2011, NHATS collects detailed information annually about the disability and care needs for a nationally representative panel of over 8,000 adults 65 and older. By collecting, disseminating, and analyzing a new round of NSOC, the proposed project will allow researchers to study a range of innovative questions about ADRD caregiving and its consequences from the perspective of both the care recipient and the caregiver. Aims are : 1. Re-interview caregivers who participated in the 2015 NSOC and new caregivers of older adults in the 2017 NHATS. In addition to core NSOC content, administer a new module on involvement in medical care and two time diary interviews to capture activities and experienced wellbeing on the previous day. Altogether, we expect a nationally representative sample of about 2700 caregivers to older adults, including about 900 caring for older adults with Alzheimer's disease and related dementias. 2. Disseminate the data widely by creating a set of easy-to-use linked longitudinal files; holding user workshops at scientific meetings; and hosting an early results workshop focused on ADRD caregiving; and, 3. Conduct analyses to: 1) identify salient ADRD informal care and caregiving trajectories from both recipient and caregiver perspectives; 2) provide the first national profile of informal ADRD caregivers' health system interactions; and 3) investigate the wellbeing of informal ADRD caregivers and the role of care activities. For each topic, we will provide contrasts with caregivers to older adults without ADRD. The NHATS and NSOC are the only national, population-based surveys that provide insight regarding a well characterized population of older adults as well as the informal caregivers who assist them for health and functioning reasons. These data provide a strong platform for research to inform planning and policies to meet the impending demand for ADRD care and to support ADRD caregivers.

项目摘要：人们普遍认为，居住在自己的国家的人口数量的增长 80 年代和 90 年代，阿尔茨海默病和相关痴呆症 (ADRD) 的风险很大，未来几十年，痴呆症患者数量将急剧增加。照顾到 ADRD 患者通常由家庭成员提供帮助，而国家解决计划阿尔茨海默病的目标之一是提高 ADRD 患者的护理质量，并扩大对家庭照顾者的支持在如何进行方面存在严重的知识差距。这个项目通过以下方式增强对患有阿尔茨海默病和相关痴呆症的老年人的护理的理解新的国家纵向数据建立在国家健康和老龄化趋势研究 (NHATS) 及其同伴国家护理研究 (NSOC)。独特的NSOC研究设计和提出的新内容 NSOC III 将允许在全国范围内对有和没有 ADRD 的老年人的护理人员进行对比帮助 NHATS 中老年人的护理人员的代表性样本。 NHATS 于 2011 年开始每年为全国代表小组收集有关残疾和护理需求的详细信息超过 8,000 名 65 岁及以上的成年人。通过收集、传播和分析新一轮的 NSOC，拟议的项目将允许研究人员研究一系列有关 ADRD 护理和治疗的创新问题从护理接受者和护理者的角度来看其后果。目标是： 1. 重新访谈参加 2015 年 NSOC 的护理人员和 2017 年新的老年人护理人员 NHATS。除了核心 NSOC 内容外，还管理一个关于参与医疗保健的新模块和两个时间日记访谈记录前一天的活动和体验的幸福感。总而言之，我们预计全国代表性样本约有 2700 名老年人护理人员，其中约 900 名照顾患有阿尔茨海默病和相关痴呆症的老年人。 2. 通过创建一组易于使用的链接纵向文件来广泛传播数据；持有用户科学会议上的讲习班；举办一个重点关注 ADRD 护理的早期成果研讨会；和， 3. 进行分析以： 1) 确定双方接受者的显着 ADRD 非正式护理和护理轨迹和看护者的观点； 2) 提供第一个全国非正式 ADRD 护理人员医疗系统概况互动； 3) 调查非正式 ADRD 护理人员的健康状况以及护理活动的作用。为了每个主题，我们都会与没有 ADRD 的老年人的护理人员进行对比。 NHATS 和 NSOC 是唯一一项以人口为基础的全国性调查，可以提供有关明确人口特征的见解老年人以及出于健康和功能原因为他们提供帮助的非正式护理人员。这些数据提供了强大的研究平台，可以为规划和政策提供信息，以满足迫在眉睫的需求 ADRD 护理并支持 ADRD 护理人员。