Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease

建立医疗之家，为患有镰状细胞病的青少年和成人提供循证护理

• 批准号: 10005725
• 负责人: Robert William Gibson
• 金额: $ 2.85万
• 依托单位: AUGUSTA UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-08-05 至 2022-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10005725
• 关键词: Academic Medical Centers; Address; Adolescent; Adult; Advisory Committees; Authorship; Award; Behavior; Caring; Client satisfaction; Clinical; Clinical Research; Communication; Community Health Aides; Development; Development Plans; Family; Gambling; Health Personnel; Home environment; Intervention; Interview; Journals; Manuscripts; Medical; Mentors; Minority; Modeling; National Heart, Lung, and Blood Institute; Outcome; Parents; Patient Care Team; Preparation; Protocols documentation; Publications; Reporting; Research Project Grants; Research Proposals; Self Care; Sickle Cell; Sickle Cell Anemia; Structure; Training; Universities; Work; care coordination; career development; community based participatory research; evidence base; member; patient oriented; symposium

Scope of Work: Tilicia L. Mayo-Gamble Proposal Title: Minority Supplement Sponsor: National Heart, Lung, and Blood Institute Task: Dr. Mayo-Gamble (Georgia Southern University), will conduct supplemental aims to Dr. Abdullah Kutlar’s (Augusta University Medical Center) parent award 5U01HL134004-03, Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease. Dr. Mayo-Gamble will: 1) assess the feasibility of integrating a community health worker (CHW) into a PCCC team for SCD; 2) evaluate the efficacy of enhanced care coordination using an integrated PCCC-CHW model, on patient satisfaction with medical care, self-care behaviors, and clinical outcomes; and 3) determine the acceptability of the intervention and protocol among patients and care team members through semi-structured interviews. Dr. Mayo-Gamble will work closely with her mentors (Dr. Kutlar and Dr. Telfair) to implement her career development plan and execute the research project. She will also engage in didactic and experiential training in sickle cell community-based and clinical research, participate in professional development activities, and conduct the aims of the supplemental research proposal through the guidance of her mentoring team and scientific advisory committee. Dr. Mayo-Gamble will be responsible for maintaining communication with mentors and all stakeholders. Deliverables: Dr. Mayo-Gamble will contribute authorship in the preparation of journal manuscripts for publication in interdisciplinary journals and presentation at a professional conference. She will also contribute to reports to be submitted to NHLBI including the mid- project report and the final project report.

工作范围：Tilicia L. Mayo-Gamble 提案标题：少数群体补充 赞助商：国家心脏，肺和血液研究所 任务：Mayo-Gamble博士（佐治亚州南部大学）将对博士进行补充目标。 阿卜杜拉·库特拉（Abdullah Kutlar）（奥古斯塔大学医学中心）父母奖5U01HL134004-03， 实施医疗家庭，以基于证据的青少年和成年人 镰状细胞性贫血症。 Mayo-Gamble博士将：1）评估整合社区的可行性 卫生工作者（CHW）加入SCD的PCCC团队； 2）评估增强护理的效率 使用集成的PCCC-CHW模型协调，以对患者对医疗的满意度， 自我保健行为和临床结果； 3）确定干预的可接受性 以及患者和护理团队成员之间的协议，通过半结构化访谈。博士 Mayo-Gamble将与她的导师（Kutlar博士和Telfair博士）紧密合作，以实施她 职业发展计划并执行研究项目。她还将进行教学和 基于镰状细胞社区和临床研究的经验培训，参与 专业发展活动，并进行补充研究的目的 通过她的指导团队和科学咨询委员会的指导提案。博士 Mayo-Gamble将负责与导师和所有人保持沟通 利益相关者。 可交付成果：Mayo-Gamble博士将在准备期刊上贡献作者身份 在跨学科期刊上出版的手稿和专业的演讲 会议。她还将为报告提交给NHLBI的报告，包括中期 项目报告和最终项目报告。