Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease

建立医疗之家，为患有镰状细胞病的青少年和成人提供循证护理

基本信息

批准号：
10436589
负责人：
Robert William Gibson
金额：
$ 17.66万
依托单位：
AUGUSTA UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-08-05 至 2024-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10436589
关键词：
Acute Acute pain management Address Adherence Adolescent Adoption Adult Age Benefits and Risks Caring Child Childhood Chronic Clinical Management Communities Consent Consolidated Framework for Implementation Research Country Data Development Diagnosis Disease Dissemination and Implementation Education Emergency Department Physician FDA approved Faculty Focus Groups Funding Future Goals Guidelines Health Care Costs Healthcare Systems Hematology Home Individual Infant Care Intervention Interview Letters Life Expectancy Location Medical Medical center Modeling Modernization National Heart, Lung, and Blood Institute Needs Assessment Neighborhoods Neonatal Screening Oncology Organ Outcome Pain Participant Patients Penicillins Phase Population Positioning Attribute Practice Guidelines Primary Health Care Process Provider Recording of previous events Registries Research Research Project Grants Rural Sickle Cell Sickle Cell Anemia Site Stigmatization Surveys Teenagers Underinsured Underserved Population Uninsured Universities base burden of illness care providers chronic pain clinical care cohort community involvement design disease natural history disease registry education planning effective therapy eligible participant evidence base experience health care settings hydroxyurea implementation intervention implementation science improved interest member outreach clinics participant enrollment patient oriented patient population patient registry practice setting prophylactic recruit response treatment guidelines

项目摘要

PROJECT SUMMARY Life expectancy for patients with sickle cell disease (SCD) has increased from teens to late forties over the last 30 years. The increase in the number of adults with the disease has created new unmet needs, due to the heavy disease burden and organ damage which increase with age. This is confounded by the inability of the health care system to adequately meet the needs of this population, and thus has resulted in disparities and increase in health care costs. This project attempts to address these problems by creating medical homes and medical neighborhoods in four different settings throughout rural Georgia, which has the fourth largest population of patients with SCD in the country. This will be achieved by building on the GRU Sickle Cell Center's experience in taking care of SCD patients through its outreach clinics, and more recently through its partnership with primary care practices and Hematology/Oncology practices at different locations in the state. In the first two years of the project (Phase I) a needs assessment of patients, communities, and providers will be carried out and a Community Advisory Council will be established. The results of this needs assessment will be used to develop and implement interventions to establish medical homes and neighborhoods to improve evidence-based care for SCD patients in Phase II.

项目摘要镰状细胞疾病（SCD）患者的预期寿命已从青少年增加到晚期过去30年中四十年代。疾病成年人的数量增加由于疾病负担和器官损害的重大损害，新的未满足需求随着年龄。这是由于医疗保健系统无法充分满足需求而感到困惑在这个人群中，因此导致差异和医疗保健成本的增加。这项目试图通过创建医疗家庭和医疗来解决这些问题佐治亚州农村四种不同环境中的社区，该环境拥有第四大该国SCD患者的人口。这将通过在GRU上建造来实现镰状细胞中心通过其外展诊所照顾SCD患者的经验，最近，通过与初级保健实践和血液学/肿瘤学的合作伙伴关系在该州的不同地点进行练习。在项目的前两年（第一阶段）将对患者，社区和提供者进行评估，并进行社区咨询委员会将建立。这些需求评估的结果将用于制定和实施干预措施以建立医疗家庭和社区以改进 II期SCD患者的循证护理。