Mindfulness-based Cognitive Coping Mobile App Intervention for caregivers of individuals with Alzheimer’s Disease

针对阿尔茨海默病患者护理人员的基于正念的认知应对移动应用程序干预

基本信息

批准号：
9462298
负责人：
BRUNO KAJIYAMA
金额：
$ 30.66万
依托单位：
PHOTOZIG, INC.
依托单位国家：
美国
项目类别：
财政年份：
2017
资助国家：
美国
起止时间：
2017-09-15 至 2019-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9462298
关键词：
Access to Information Address Adopted Adoption Adult Affect Age Alzheimer&apos s Disease American Android Attitude Awareness Caregiver Burden Caregivers Caring Cellular Phone Centers for Disease Control and Prevention (U.S.)Clinical Trials Cognitive Coping Skills Data Dementia Dementia caregivers Depressed mood Deterioration Development Distress Educational Curriculum Effectiveness Electronic Mail Emergency department visit Evaluation Exercise Family Feeling Focus Groups Fostering Funding Goals Government Group Meetings Health Healthcare Hospitalization Individual Informal Social Control Institutionalization Internet Intervention Lead Learning Location Major Depressive Disorder Measures Mental Depression Mind Modeling Motivation Neurons Outcome Ownership Patients Pattern Pharmaceutical Preparations Phase Process Prophylactic treatment Protocols documentation Quality of life Recruitment Activity Recurrence Relapse Reporting Research Rest Role Services Shoulder Societies Stress Techniques Testing Text Thinking Time Training Translating United States National Institutes of Health Universities base cardiovascular disorder risk care burden care giving burden caregiver depression caregiver education caregiver interventions caregiving coping cost cost effective cost effectiveness dementia caregiving depressive symptoms effective intervention experience group intervention improved informal caregiver innovation insight meetings mindfulness mindfulness based cognitive therapy mobile application novel novel therapeutics physical conditioning prevent programs prototype psychologic public health relevance recurrent depression research and development rural underserved skills training usability

项目摘要

Project Summary: Alzheimer’s Disease (AD) is a devastating illness for patients, families, and society. Most of the care of AD patients rests on shoulders of informal caregivers, largely untrained to undertake the caregiving role, bearing a high level of distress, and suffering deterioration in physical health and psychological well-being. There are over 15 million Americans providing care to dementia patients, experiencing high rates of stress (60%), depression (33%), associated risks for cardiovascular diseases, and many other adverse health effects. For example, in separate studies, hospitalization and emergency department visits were more likely for dementia caregivers than any other types of caregivers. Research suggests that non-pharmacological interventions are beneficial to dementia caregivers. However, many programs depend on facility-based approaches or small group interventions, which limit feasibility, cost- effectiveness, and deployment. The lack of dissemination is due to cost, location (i.e. outside settings, group meetings, etc.) or temporal factors (specific meeting times). In order to address these limitations, we propose the development of a new Mindfulness-based Cognitive Coping (MCC) Mobile App intervention, not only to enable access to caregivers with the mobile app (at any place, and any time), but also to provide an effective intervention to reduce stress and depression in a cost-effective manner to a large number of caregivers. The MCC intervention will be adapted from the Mindfulness-Based Cognitive Therapy (MBCT), which has been effective to treat individuals with major depressive disorder, with the integration of dementia caregiving coping strategies from our past studies, to help caregivers to overcome stressful situations in their caregiver role. Our goal is to enhance the very effective MBCT protocol with core dementia caregiving components and implement it in a mobile app, called Caring Mind App (CMA), with interactive and engaging features, in order to develop an intervention to decrease stress, reduce depression, and improve the psychological well-being of dementia caregivers, which could be disseminated to millions of families struggling with dementia. Innovation: this is the first implementation of the MBCT protocol combined with dementia caregiving coping strategies in a mobile app. As far as we know, there are no similar products in the market place. In partnership with the Alzheimer’s Association, Stanford University, and caregivers, we will determine the curriculum of the new intervention. Focus groups involving caregivers will inform the project and explore caregiver attitudes towards the MCC program, mobile app usage, and overall intervention protocol. A prototype will be developed and tested with dementia caregivers to establish the feasibility of the approach in Phase I. The results will guide the development of the full intervention in Phase II. Commercial Opportunity: MCC program will be available to dementia caregivers (15+ Million people in US) as a mobile app subscription. This model has been very successful with our current mobile apps in App Stores.

项目概要：阿尔茨海默病（AD）是一种对患者、家庭和社会来说都是毁灭性的疾病。病人靠在非正式护理人员的肩膀上，这些护理人员基本上没有接受过承担护理角色的培训，承担着高度痛苦，身体健康和心理健康恶化。有超过 1500 万美国人为痴呆症患者提供护理，他们承受着很高的压力 (60%)、抑郁症 (33%)、心血管疾病的相关风险以及许多其他不良健康影响。例如，在单独的研究中，住院和急诊就诊的可能性更大痴呆症护理人员比任何其他类型的护理人员都要多。研究表明非药物干预对痴呆症护理人员有益。许多计划依赖于基于设施的方法或小组干预，这限制了可行性、成本有效性和部署的缺乏是由于成本、地点（即外部环境、群体）造成的。为了解决这些限制，我们建议。开发新的基于正念的认知应对（MCC）移动应用程序干预，不仅是为了允许通过移动应用程序（在任何地点、任何时间）访问护理人员，同时还提供有效的以具有成本效益的方式为大量护理人员提供减少压力和抑郁的干预措施。 MCC 干预措施将改编自基于正念的认知疗法 (MBCT)，该疗法已被结合痴呆症护理应对措施，可有效治疗重度抑郁症患者我们过去研究中的策略，帮助护理人员克服护理角色中的压力情况。我们的目标是通过核心痴呆症护理组件和在名为 Caring Mind App (CMA) 的移动应用程序中实施该应用程序，该应用程序具有交互式和引人入胜的功能，以便制定干预措施以减轻压力、减少抑郁并改善心理健康痴呆症护理人员，可以将其传播给数百万患有痴呆症的家庭。创新：这是MBCT方案与痴呆症护理应对相结合的首次实施据我们所知，市场上还没有类似的产品。我们将与阿尔茨海默病协会、斯坦福大学和护理人员合作，确定涉及护理人员的焦点小组将为该项目提供信息并进行探索。护理人员对 MCC 计划、移动应用程序使用和整体干预协议的态度原型。将与痴呆症护理人员一起开发和测试，以确定该方法在第一阶段的可行性。结果将指导第二阶段全面干预的发展。商业机会：MCC 计划将向痴呆症护理人员（美国超过 1500 万人）提供移动应用程序订阅模式对于我们当前在应用程序商店中的移动应用程序来说非常成功。