Sibling and Parent Bereavement from Childhood Cancer

因儿童癌症而失去兄弟姐妹和父母

• 批准号: 7618250
• 负责人: CYNTHIA A GERHARDT
• 金额: $ 40.19万
• 依托单位: RESEARCH INST NATIONWIDE CHILDREN'S HOSP
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-08-16 至 2011-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7618250
• 关键词: Accounting; Adolescent; Adult; Affect; Age; Aggressive behavior; Alcohol or Other Drugs use; Area; Attention; Behavioral; Bereavement; Biometry; Caring; Cessation of life; Characteristics; Child; Childhood; Chronically Ill; Clinical; Clinical Trials; Cognitive; Communities; Compassion; Complement; Conflict (Psychology); Consult; Controlled Study; Coping Skills; Data; Data Collection; Development; Disease; Distress; Emotional; Emotional Bonds; Family; Fathers; Feasibility Studies; Female Adolescents; Friendships; Gender; Goals; Grief reaction; Growth; Home environment; Home visitation; House Call; Individual; Institution; Intervention; Learning; Left; Literature; Malignant Childhood Neoplasm; Malignant Neoplasms; Mediating; Modeling; Morbidity - disease rate; Mothers; Outcome; Pain; Parent-Child Relations; Parents; Personal Satisfaction; Population; Positioning Attribute; Process; Psychoanalytic Theory; Race; Recovery; Recruitment Activity; Reporting; Research; Research Design; Research Personnel; Resistance; Risk; Schools; Self Concept; Siblings; Sister; Site; Social support; Source; Stress; Stress and Coping; Subgroup; Symptoms; System; Testing; Theoretical model; Time; Trauma; Uncertainty; Variant; Work; aged; base; coping; depressive symptoms; design; expectation; experience; follow-up; innovation; killings; novel; oncology; peer; prevent; programs; psychosocial; psychosocial adjustment; resilience; resistance factors; response; social; standardize measure; teacher; theories

DESCRIPTION (provided by applicant): Cancer kills more children than any other disease, but the impact of a child's death on families is understudied. Bereaved families may be at risk for numerous psychosocial difficulties, which can persist for years. Others may experience new competencies and personal growth (e.g., maturity, compassion) after the initial grieving period; a variety of risk and resistance factors (e.g., age, coping skills, and social support) may affect outcomes, but little is known about what ameliorates difficulties and what promotes resilience. A primary problem has been a lack of well-designed research on the topic. Our long-term goal is to reduce the suffering and morbidity of families affected by cancer and the loss of a child through controlled, longitudinal research on the psychosocial outcomes of these families. The objective of this application is to differentiate subgroups of siblings and parents in need of assistance and to identify modifiable factors associated with adjustment, in our four-site study, we will recruit 180 families of children who died from cancer in the past 3- 12 months, and 180 non-bereaved comparison families. One sibling (aged 8-17 years) from each bereaved family will be randomly selected to participate and matched to a classmate of the same gender, race, and age as a comparison. Data will be collected from multiple sources in each child's classroom (i.e., peer, teacher, child) and home (i.e., mother, father, child) during the first year post-loss (T1) and during a follow-up home visit one year later (T2). This information will identify specific factors and subgroups of bereaved individuals to target in clinical trials to hasten recovery from grief and prevent long-term morbidity. Aim 1: compare the psychosocial adjustment (i.e., social, emotional, behavioral, family functioning) of bereaved and comparison families over time and examine mediating and moderating associations. Aim 2: Examine the course of grief symptoms and psychosocial adjustment as a function of characteristics of the illness/death, the child's developmental level, and grief work.

描述（由申请人提供）：癌症导致的儿童死亡人数比任何其他疾病都多，但儿童死亡对家庭的影响尚未得到充分研究。失去亲人的家庭可能面临许多心理社会困难的风险，这些困难可能会持续数年。其他人在最初的悲伤期后可能会经历新的能力和个人成长（例如成熟、同情心）；各种风险和阻力因素（例如年龄、应对技能和社会支持）可能会影响结果，但人们对什么可以缓解困难和什么可以提高复原力知之甚少。主要问题是缺乏针对该主题的精心设计的研究。我们的长期目标是通过对这些家庭的心理社会结果进行受控的纵向研究，减少受癌症和失去孩子影响的家庭的痛苦和发病率。该应用程序的目的是区分需要帮助的兄弟姐妹和父母的亚组，并确定与调整相关的可修改因素，在我们的四地点研究中，我们将招募 180 个在过去 3-12 年死于癌症的儿童家庭。月，以及 180 个非失去亲人的比较家庭。每个死者家庭将随机选择一名兄弟姐妹（8-17岁）参加，并与一名相同性别、种族和年龄的同学进行比较。将从每个孩子的教室（即同伴、老师、孩子）和家庭（即母亲、父亲、孩子）的多个来源收集数据，这些数据是在失去亲人后的第一年（T1）和后续家访期间收集的。一年后（T2）。这些信息将确定临床试验中针对的特定因素和失去亲人的亚组，以加速从悲伤中恢复并防止长期发病。目标 1：比较失去亲人的家庭和比较家庭随时间的心理社会调整（即社交、情感、行为、家庭功能），并检查中介和调节关联。目标 2：根据疾病/死亡特征、儿童发育水平和悲伤工作，检查悲伤症状和心理社会调整的过程。

项目成果

Bereaved parents and siblings offer advice to health care providers and researchers.

• DOI: 10.1097/mph.0b013e31828afe05
• 发表时间: 2013-05
• 期刊: Journal of pediatric hematology/oncology
• 作者: Steele AC;Kaal J;Thompson AL;Barrera M;Compas BE;Davies B;Fairclough DL;Foster TL;Jo Gilmer M;Hogan N;Vannatta K;Gerhardt CA
• 通讯作者: Gerhardt CA

Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer.

• DOI: 10.1007/s10880-021-09797-x
• 发表时间: 2022-03
• 期刊: Journal of clinical psychology in medical settings
• 影响因子: 2.2
• 作者: Kenney AE;Tutelman PR;Fisher RS;Lipak KG;Barrera M;Gilmer MJ;Fairclough D;Akard TF;Compas BE;Davies B;Hogan NS;Vannatta K;Gerhardt CA
• 通讯作者: Gerhardt CA

The Influence of Parent Distress and Parenting on Bereaved Siblings' Externalizing Problems.

• DOI: 10.1007/s10826-019-01640-0
• 发表时间: 2020-04
• 期刊: Journal of child and family studies
• 影响因子: 2.1
• 作者: Howard Sharp KM;Meadows EA;Keim MC;Winning AM;Barrera M;Gilmer MJ;Akard TF;Compas BE;Fairclough DL;Davies B;Hogan N;Vannatta K;Gerhardt CA
• 通讯作者: Gerhardt CA

Associations between parental depression, communication, and self-worth of siblings bereaved by cancer.

父母抑郁、沟通和因癌症失去亲人的兄弟姐妹的自我价值之间的关联。

• DOI: 10.1037/fam0001137
• 发表时间: 2023
• 期刊: Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association (Division 43)
• 作者: Garcia,Dana;Olsavsky,AnnaL;Hill,KylieN;Patterson,Valdeoso;Baughcum,AmyE;Long,KristinA;Barrera,Maru;Gilmer,MaryJo;Fairclough,DianeL;Akard,TerrahFoster;Compas,BruceE;Vannatta,Kathryn;Gerhardt,CynthiaA
• 通讯作者: Gerhardt,CynthiaA

Factors associated with mental health service use among families bereaved by pediatric cancer.

与小儿癌症失去亲人的家庭使用心理健康服务相关的因素。

• DOI: 10.1017/s1478951522001018
• 发表时间: 2023
• 期刊: Palliative & supportive care
• 影响因子: 2.2
• 作者: Hill,KylieN;Olsavsky,Anna;Barrera,Maru;Gilmer,MaryJo;Fairclough,DianeL;Akard,TerrahFoster;Compas,BruceE;Vannatta,Kathryn;Gerhardt,CynthiaA
• 通讯作者: Gerhardt,CynthiaA