Increasing Minority Population Awareness through Community Teaching for Improved Organ Donation (IMPACT for Improved Organ Donation)

通过改善器官捐赠的社区教学提高少数群体的意识（改善器官捐赠的影响）

• 批准号: 9920711
• 负责人: Sumit Mohan
• 金额: $ 24万
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-08-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9920711
• 关键词: Adopted; Area; Asian Americans; Asians; Attitude; Awareness; Behavior; Belief; Caring; Chinese People; Cities; Cognitive; Collaborations; Communities; Community Physician; Consent; Country; County; Coupled; Cultural Diversity; Distal; Education; Educational Curriculum; Educational Materials; Educational process of instructing; Effectiveness; End stage renal failure; Ensure; Ethnic group; Exposure to; Flushing; Fright; Goals; Grant; Health; Individual; Intention; Interview; Knowledge; Knowledge acquisition; Koreans; Licensing; Linguistics; Liver diseases; Logistics; Medical; Methods; Minority; Minority Groups; Modality; Multilingualism; Multimedia; New York; New York City; Organ; Organ Donations; Organ Donor; Organ Transplantation; Patient Education; Patients; Personality; Physicians; Population; Presbyterian Church; Primary Health Care; Privatization; Process; Provider; Registries; Religion and Spirituality; Religious Belief; Research; Resources; Site; Source; Statutes and Laws; Surveys; System; Transplantation; United States; Waiting Lists; design; ethnic diversity; ethnic minority population; falls; health care settings; improved; informant; medical specialties; member; minority communities; outreach; programs; psychosocial; racial and ethnic; willingness

Abstract Organ donation rates in the United States continue to fall far short of the needs of patients with end stage renal and liver disease. While New York represents about 10% of the national waitlist, it ranks 50th of 50 states for organ donor registration rates currently. The Asian community is the fastest growing minority population in the country and is the group with the largest disparity in the demand and supply of organs of any racial/ethnic group. Queens County, NY, which is one of the most densely populated and most diverse areas in the country is over 25% Asian but has one of the lowest donor registration rates in the country (13% vs national average of 52% currently). Understanding the cultural, logistical and other barriers to donor registration among Asian Americans is essential to improve organ donor registration in this group. Increasing knowledge and awareness about organ donation and transplantation and improving organ donor registration rates are strongly associated with subsequent organ donation. Our grant proposes to: 1) develop an understanding of the barriers to registration and donation among Asians in Flushing, Queens; 2) utilize the resources of the New York Presbyterian-Columbia Asian Health Program (NYP-CAHP) and; 3) capitalize on their existing relationship with the Asian community and community physicians in Flushing to accomplish our goals that include increasing knowledge of organ donation and registration, influencing intent to register as a donor, and increasing actual donor registration rates. We will use a mixed methods approach to develop an understanding of the barriers to registration as an organ donor among Asian physicians and patients. The information gained from this effort will be used to develop print and multimedia educational curricula for physicians and patients that is tailored to the cognitive, cultural, religious, linguistic, and pragmatic barriers identified. The materials will then be introduced to the Chinese population followed by the Korean. Individual education and patient educational materials will be provided to the physicians at Flushing practices to increase the ability of physicians to respond to patient-initiated conversation about organ donation thereby ensuring a sustainable long-term impact of our enduring educational material. Patient education will be conducted at NYP-CAHP physician partner sites and will include the opportunity to complete an organ donor registration form immediately following a one-on-one educational session delivered by a bicultural/multilingual research team member. Widespread dissemination of our education materials to the 10 other regions in the country that have large Asian populations and low donor registration rates will positively impact donor registration nationally.

抽象的 美国的器官捐献率仍然远远低于患者的需求 终末期肾脏和肝脏疾病。虽然纽约约占全国候补名单的 10%， 目前其器官捐献者登记率在 50 个州中排名第 50 位。亚裔社区是 该国少数族裔人口增长最快，也是贫富差距最大的群体 任何种族/族裔群体的器官的需求和供应。纽约州皇后县，这是其中之一 该国人口最稠密、最多样化的地区中有超过 25% 是亚洲人，但 全国捐献者注册率最低的国家之一（13%，而全国平均水平为 52%） 现在）。了解捐助者登记的文化、后勤和其他障碍 亚裔美国人对于改善该群体的器官捐献者登记至关重要。增加 器官捐献和移植的知识和意识以及改善器官状况 捐献者登记率与随后的器官捐献密切相关。我们的资助 建议： 1) 了解登记和捐赠的障碍 皇后区法拉盛的亚洲人； 2）利用纽约长老会哥伦比亚分会的资源 亚洲健康计划 (NYP-CAHP) 和； 3）利用他们与企业现有的关系 法拉盛的亚洲社区和社区医生实现我们的目标，包括 增加对器官捐献和登记的了解，影响登记为器官捐献者的意愿 捐助者，并提高实际捐助者登记率。我们将使用混合方法 了解亚洲人登记为器官捐献者的障碍 医生和患者。从这项工作中获得的信息将用于开发印刷品和 为医生和患者量身定制的多媒体教育课程， 已确定的文化、宗教、语言和实用障碍。然后材料将是 引入中国人群，随后引入韩国。个体教育和患者 将向法拉盛诊所的医生提供教育材料，以提高 医生回应患者发起的有关器官捐赠的对话的能力 确保我们持久的教育材料产生可持续的长期影响。患者教育 将在 NYP-CAHP 医生合作伙伴地点进行，并将包括机会 在一对一的教育后立即填写器官捐献者登记表 会议由双文化/多语言研究团队成员主持。广泛传播 我们的教育材料向该国其他 10 个拥有大量亚洲人的地区提供 人口和低捐助者登记率将对全国捐助者登记产生积极影响。