Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

小儿皮肤病学研究联盟 (PeDRA) 年会

基本信息

批准号：
9762587
负责人：
Anna Lee Bruckner
金额：
$ 2万
依托单位：
UNIVERSITY OF COLORADO DENVER
依托单位国家：
美国
项目类别：
财政年份：
2017
资助国家：
美国
起止时间：
2017-08-01 至 2021-07-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9762587
关键词：
Address Affect Area Basic Science Caring Child Childhood Clinical Clinical Research Collaborations Communication Consensus Critiques Data Dermatologic Dermatology Disease Education FDA approved Faculty Foundations Funding Funding Mechanisms Genetic Goals Grant Guidelines Health Inflammatory Institution Lead Learning Mentors Mentorship Mission Natural History Neonatal Outcome Patient advocacy Pilot Projects Procedures Productivity Prospective Studies Reaction Recommendation Research Research Methodology Research Personnel Research Priority Research Project Grants Seeds Series Site Skin Neoplasms Standardization Strategic Planning Therapeutic Translational Research Treatment Protocols Work Writing advocacy organizations cancer therapy cohesion comparative effectiveness design evidence base evidence based guidelines improved infancy innovation interest knowledge base lectures medical specialties meetings member organizational structure posters premature prevent skills skin disorder success symposium working group

项目摘要

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA- approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to promote and facilitate high-quality collaborative research in pediatric dermatology by creating and sustaining multi-site research networks. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures, expert-led interactive discussions, panel and poster sessions, and disease-focused small-group sessions are the foundation of PeDRA's meetings. This proposal is for four annual meetings from 2017 to 2020 with the following aims: 1) Provide education and mentorship to new and established pediatric dermatology investigators that attend to gaps and obstacles in research methodology, grant writing, and project management; 2) Advance existing research projects and develop new research priorities within PeDRA's five focus areas; and 3) Initiate research strategies and collaborative clinical studies that synchronize with organization-wide priorities. The expected outcome of these meetings will be productive interactions and partnerships that will enhance the productivity of clinical researchers in pediatric dermatology and lead to the conduct of impactful, high-quality studies. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children.

项目概要小儿皮肤病学是一个相对年轻的专业，缺乏关于儿童皮肤病的可靠数据。从婴儿期和儿童期开始的皮肤病的自然史和长期结果。在此外，基于证据的护理指南、标准化治疗方案和 FDA- 针对大多数儿科皮肤病的批准疗法很少。儿科皮肤病学研究联盟 (PeDRA) 成立于 2012 年，旨在解决这些尚未解决的关键问题未满足的需求。 PeDRA 的主要使命是促进和促进高质量的协作通过创建和维持多站点研究网络来开展儿科皮肤病学研究。这 PeDRA 的长期目标是利用此类研究来改善人们的健康结果有皮肤病的儿童。年会对于 PeDRA 的成功至关重要，提供一个论坛来教育研究人员、确定研究需求并确定其优先顺序机会，以及开发和启动创新项目。教学相结合讲座、专家主导的互动讨论、小组和海报会议以及以疾病为重点的小组会议是 PeDRA 会议的基础。该提案适用于四个年度 2017 年至 2020 年召开的会议，其目标如下： 1) 为以下人员提供教育和指导：新的和已建立的儿科皮肤病学研究人员致力于解决儿童皮肤病学领域的差距和障碍研究方法、资助写作和项目管理； 2）推进现有研究在 PeDRA 的五个重点领域内开展项目并制定新的研究重点； 3) 启动与整个组织同步的研究策略和协作临床研究优先事项。这些会议的预期成果将是富有成效的互动和合作伙伴关系将提高儿科皮肤病学临床研究人员的生产力并导致进行有影响力的高质量研究。这些活动将加速儿科皮肤病学研究的步伐，使临床医生能够更好地了解、预防和治疗儿童皮肤病。