Archiving and Documenting Child Health and Human Development Data Sets

归档和记录儿童健康和人类发展数据集

• 批准号: 9543523
• 负责人: William G. Axinn
• 金额: $ 7.8万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-01 至 2019-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9543523
• 关键词: American; Anemia; Archives; Award; Behavior; Behavioral; Behavioral Sciences; Blood; British; Cessation of life; Child; Child Health; Communities; Contraceptive Usage; DNA; Data; Data Analyses; Data Files; Data Quality; Data Set; Demography; Ecosystem; Europe; Evaluation; Family; Family Study; Family member; Fertility; General Population; Habitats; Health; Health Sciences; Household; Human; Human Development; Individual; International; Investments; Journals; Learning; Life Cycle Stages; Link; Longitudinal Studies; Marriage; Measures; Modeling; National Institute of Child Health and Human Development; Nepal; Nomads; Online Systems; Paper; Peer Review; Personal Satisfaction; Population; Population Sciences; Public Policy; Publishing; Reporting; Research; Resources; Saliva; Sampling; Scientific Advances and Accomplishments; Scientist; Series; Services; Social Sciences; Sociology; Source; Speed; Spouses; Surveys; Testing; Time; Western Europe; Work; base; comparative; data resource; data sharing; design; discrete time; environmental change; experience; gene environment interaction; hazard; improved; innovation; intergenerational; land cover; land use; migration; panel study of income dynamics; population health; programs; response; screening; social; study population; support tools; tool; usability; web site

The creation of large scientific studies of human behavior and social experience in the general popula- tion constitutes an enormous scientific investment – the high value of such studies creates a high scientific pri- ority on dissemination tools that significantly expand the scientific use of such data. To date the limitation of dissemination efforts to data on the U.S. population greatly restricts the ability to test the external validity of key findings, raising the possibility that even within the U.S. population findings from any particular study population may not apply to other important populations. Dissemination of similar data resources from populations living under circumstances quite different from the U.S. and Western Europe are urgently needed so that social and behavioral scientists can quickly and easily test the breadth of external validity of key findings. We will take advantage of NICHD's long-term investment in the Chitwan Valley Family Study (CVFS) in Nepal to achieve this high priority objective. Built from more than a dozen different awards from NICHD over 20 years, the CVFS is a very valuable data resource from outside the U.S. in social and health sciences. Harnessing this R03 program for “archiving and documenting of existing data sets in population science”, we will implement a series of data improvements and new dissemination and data-user support tools to dramati- cally enhance the availability and usability of the CVFS data. The CVFS is an excellent comparative data re- source, featuring a 20-year panel study from Nepal with many important features. First, CVFS was specifically designed to replicate design features from the best longitudinal studies in the U.S. and Europe, such as the Panel Study of Income Dynamics (PSID). Second, it was designed to measure dynamics of change over time in the community level, not just the individual and household levels. Third, the CVFS measures environmental changes over time, including changes in land use/land cover, habitat quality, and eco-system. Fourth, the CVFS follows all migrants (both individuals and households) no matter where they move and periodically re- freshes the sample with in-migrants. Finally, CVFS now has saliva based DNA samples from all family mem- bers and blood based anemia screening for all children. As a result the CVFS is an unparalleled resource for study change over time in contraceptive use and non-use, health across the life course, and gene by environ- ment interactions. We will transform access to this special resource with changes focused on use of the CVFS data, measures specially designed to facilitate comparisons, construction of new data files to speed data linking and data analysis, construction of new learning tools, and new web-based analysis tools. The activities are specifically designed to improve the transparency of comparability between CVFS and data from other settings to assist scientists making these comparisons. We will also improve data quality and user experience so the complexity of these multi-level, 20-year, multi-topic data is not an obstacle to data use.

创造了一般人类的人类行为和社会经验的大型科学研究 - 构成了巨大的科学投资 - 此类研究的高价值创造 在传播工具上的ority，可以显着扩大此类数据的科学用途。迄今为止的限制 传播对美国人口的数据的努力极大地限制了测试关键的外部有效性的能力 调查结果，提出了一个可能性，即使在美国的任何特定研究人群中，也有可能 可能不适用于其他重要人群。传播类似的数据资源从生活人群中 在与美国和西欧完全不同的情况下，迫切需要社会和 行为科学家可以快速，轻松地测试关键发现的外部有效性的广度。 我们将利用NICHD对Chitwan Valley Family研究（CVFS）的长期投资 尼泊尔实现这一高优先级目标。由NICHD的十几个不同的奖项建立 在20多年的时间里，CVFS是来自美国以外的社会和健康科学的非常有价值的数据资源。 利用此R03计划，以“归档和记录人口科学中现有数据集”，我们 将实施一系列数据改进以及新的传播和数据用户支持工具 调用可增强CVFS数据的可用性和可用性。 CVFS是一个极好的比较数据。 消息来源，由尼泊尔进行了20年的小组研究，并具有许多重要的特征。首先，CVF是专门的 旨在复制美国和欧洲最佳纵向研究的设计功能，例如 小组收入动态研究（PSID）。其次，它旨在衡量随着时间的变化动态 在社区层面，不仅是个人和家庭层面。第三，CVFS测量环境 随着时间的流逝，包括土地使用/土地覆盖，栖息地质量和生态系统的变化。第四， CVF遵循所有移民（无论是个人和家庭），无论他们在哪里移动并定期重新搬迁 将样本与内移民一起新鲜。最后，CVF现在拥有来自所有家庭成员的基于唾液的DNA样品 为所有儿童提供BERS和基于血液的贫血筛查。结果，CVFS是无与伦比的资源 随着时间的推移，研究随着避孕药的使用和不使用，整个生活过程中的健康以及环境的基因变化 互动。 我们将通过关注CVFS数据的更改来转换对此特殊资源的访问， 专门设计的措施旨在促进比较，构建新数据文件以加快数据链接 以及数据分析，新学习工具的构建以及新的基于Web的分析工具。活动是 专门为提高CVF和来自其他设置数据之间可比性的透明度而设计的 协助科学家进行这些比较。我们还将提高数据质量和用户体验，因此 这些多级，20年的多主题数据的复杂性并不是数据使用的障碍。