Archiving and Documenting Child Health and Human Development Data Sets

归档和记录儿童健康和人类发展数据集

• 批准号: 9543523
• 负责人: William G. Axinn
• 金额: $ 7.8万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-01 至 2019-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9543523
• 关键词: American; Anemia; Archives; Award; Behavior; Behavioral; Behavioral Sciences; Blood; British; Cessation of life; Child; Child Health; Communities; Contraceptive Usage; DNA; Data; Data Analyses; Data Files; Data Quality; Data Set; Demography; Ecosystem; Europe; Evaluation; Family; Family Study; Family member; Fertility; General Population; Habitats; Health; Health Sciences; Household; Human; Human Development; Individual; International; Investments; Journals; Learning; Life Cycle Stages; Link; Longitudinal Studies; Marriage; Measures; Modeling; National Institute of Child Health and Human Development; Nepal; Nomads; Online Systems; Paper; Peer Review; Personal Satisfaction; Population; Population Sciences; Public Policy; Publishing; Reporting; Research; Resources; Saliva; Sampling; Scientific Advances and Accomplishments; Scientist; Series; Services; Social Sciences; Sociology; Source; Speed; Spouses; Surveys; Testing; Time; Western Europe; Work; base; comparative; data resource; data sharing; design; discrete time; environmental change; experience; gene environment interaction; hazard; improved; innovation; intergenerational; land cover; land use; migration; panel study of income dynamics; population health; programs; response; screening; social; study population; support tools; tool; usability; web site

The creation of large scientific studies of human behavior and social experience in the general popula- tion constitutes an enormous scientific investment – the high value of such studies creates a high scientific pri- ority on dissemination tools that significantly expand the scientific use of such data. To date the limitation of dissemination efforts to data on the U.S. population greatly restricts the ability to test the external validity of key findings, raising the possibility that even within the U.S. population findings from any particular study population may not apply to other important populations. Dissemination of similar data resources from populations living under circumstances quite different from the U.S. and Western Europe are urgently needed so that social and behavioral scientists can quickly and easily test the breadth of external validity of key findings. We will take advantage of NICHD's long-term investment in the Chitwan Valley Family Study (CVFS) in Nepal to achieve this high priority objective. Built from more than a dozen different awards from NICHD over 20 years, the CVFS is a very valuable data resource from outside the U.S. in social and health sciences. Harnessing this R03 program for “archiving and documenting of existing data sets in population science”, we will implement a series of data improvements and new dissemination and data-user support tools to dramati- cally enhance the availability and usability of the CVFS data. The CVFS is an excellent comparative data re- source, featuring a 20-year panel study from Nepal with many important features. First, CVFS was specifically designed to replicate design features from the best longitudinal studies in the U.S. and Europe, such as the Panel Study of Income Dynamics (PSID). Second, it was designed to measure dynamics of change over time in the community level, not just the individual and household levels. Third, the CVFS measures environmental changes over time, including changes in land use/land cover, habitat quality, and eco-system. Fourth, the CVFS follows all migrants (both individuals and households) no matter where they move and periodically re- freshes the sample with in-migrants. Finally, CVFS now has saliva based DNA samples from all family mem- bers and blood based anemia screening for all children. As a result the CVFS is an unparalleled resource for study change over time in contraceptive use and non-use, health across the life course, and gene by environ- ment interactions. We will transform access to this special resource with changes focused on use of the CVFS data, measures specially designed to facilitate comparisons, construction of new data files to speed data linking and data analysis, construction of new learning tools, and new web-based analysis tools. The activities are specifically designed to improve the transparency of comparability between CVFS and data from other settings to assist scientists making these comparisons. We will also improve data quality and user experience so the complexity of these multi-level, 20-year, multi-topic data is not an obstacle to data use.

创建了人类行为和社会经验群的大型科学研究 - 构成了巨大的科学投资 - 此类研究的高价值产生了高度的科学知识 在传播工具上的ority可以显着扩大此类数据的科学用途。 传播对美国人口数据的努力极大地限制了测试凯西外部有效性的能力 调查结果，提出了一个可能性，即使在美国的任何特定研究人群中，也有可能 可能不适用于其他重要的人群 在情况下，与美国和西欧完全不同的情况被迫切地陷入了社会和社会状态 行为科学家可以快速，轻松地测试关键发现的外部阀门的广度。 我们将利用NICHD在Chitwan Valley家族（CVFS）中的长期工作 尼泊尔实现这一目标：优先目标。 在20多年的时间里，CVFS是美国以外的社会和健康科学领域的宝贵数据资源。 利用此R03计划“存档和记录人口科学中的EXSTA集”，我们 将实施一系列数据改进以及新的传播和数据用户支持工具 CALLY增强了CVFS数据的可用性和可用性。 资料来源，由尼泊尔进行了20年的小组研究，其中CVF是专门的。 旨在复制美国和欧洲最佳纵向研究的设计功能，例如 收入动态的小组研究（PSID）。 在社区层面，不仅是个人和家庭级别。 随着时间的流逝，倾斜的土地使用/土地覆盖率，栖息地的四分之一和环保系统 CVF会跟随所有移民（无论是个人和家庭），无论他们移动以及定期重新恢复 最终，CVF的样本与所有家庭的DNA样本相关。 基于BERS和基于血液的贫血筛查，因此CVFS是无与伦比的资源 随着时间的推移，研究随着避孕药的使用和不使用，整个生活过程中的健康以及环境的基因变化 互动。 我们将通过关注CVFS数据的更改来转换对特殊资源的访问， 专门设计的措施是为了促进比较，新数据文件与加快数据链接的限制 数据分析，新学习工具的重量以及新的基于Web的分析工具 专门设计的，以提高CVF与其他设置可比性可比性可比性的透明度 为了帮助进行这些比较的科学家。 这些多级，20年的多主题数据的复杂性并不是数据使用的障碍。