Accelerating Autoimmune Treatments through Alopecia Areata Research

通过斑秃研究加速自身免疫治疗

基本信息

批准号：
8969037
负责人：
DAVID A. NORRIS
金额：
$ 1万
依托单位：
NATIONAL ALOPECIA AREATA FOUNDATION
依托单位国家：
美国
项目类别：
财政年份：
2014
资助国家：
美国
起止时间：
2014-09-01 至 2015-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8969037
关键词：
Address Affect Age Alopecia Areata American Animal Model Autoimmune Diseases Autoimmune Process Biological Products Clinical Research Clinical Trials Collaborations Comorbidity Dermatology Development Disabled Persons Discipline Disease Ensure Equilibrium Ethnic Origin Family member Fostering Foundations Funding Future Genetic Genomics Goals Government Agencies Grant Hair Health Hearing Heredity Immune Targeting Immunology Insulin-Dependent Diabetes Mellitus Knowledge Lead Learning Life Methods Minority Mission Monitor Nonprofit Organizations Participant Patients Phototherapy Process Public Health Published Comment Publishing Race Registries Research Research Design Research Personnel Research Priority Research Project Grants Research Proposals Research Support Risk Seasons Series Talents Testing Time United States National Institutes of Health Voice Woman base career clinical investigation disease natural history improved innovation medical specialties meetings posters psychologic social

项目摘要

DESCRIPTION (provided by applicant): Alopecia areata is a disease characterized by hair loss that affects 6.5 million Americans of all ages, races and ethnicities. It occurs more frequently in people who have affected family members, suggesting heredity and genetics are a factor in disease occurrence. The profound effects of the disease are physical, social and psychological. The National Alopecia Areata Foundation (NAAF) is a nonprofit organization that supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata. This summit is central to the research mission of the Foundation: bringing together investigators from relevant specialties around the world to distill learning from previous research advances and determine future priorities. NAAF uses these priorities to evaluate research proposals and make grant funding decisions. The long-term objective is a safe, effective, affordable treatment or a cure for alopecia areata. This research summit is planned for December 4-5, 2014 in Bethesda, MD. The summit will bring together esteemed researchers representing genetics, immunology, related autoimmune diseases like type 1 diabetes, dermatology and other fields including phototherapy. Summit objectives are to: 1) review new knowledge; 2) identify and prioritize promising new needed research; 3) develop plans and facilitate partnerships; and 4) publish meeting results to share findings. Inclusion of women, minorities, and people with disabilities is a priority so we draw on a broad and balanced field of knowledge. We encourage early-career investigators to join us and bring fresh ideas and new talent. Attendees with alopecia areata will ensure that the patient perspective is heard and considered in the prioritization process. The design of this research summit is two days combining a series of short presentations with expansive discussion facilitated by each participant having a microphone. Key findings are periodically summarized by senior researchers and co-chairs will lead presenters and participants to collectively analyze findings and recommend new research priorities and partnerships. Our method of enabling researchers to hear findings across multiple disciplines and engage in substantive Q&A and discussion fosters innovation and collaboration.

描述（由申请人提供）：斑秃是一种以脱发为特征的疾病，影响着各个年龄、种族和民族的 650 万美国人。它更常见于有家庭成员影响的人，这表明遗传和遗传学是疾病发生的一个因素。该疾病对身体、社会和心理产生深远影响。国家斑秃基金会 (NAAF) 是一个非营利组织，支持寻找斑秃治疗方法或可接受的治疗方法的研究，为患有该疾病的人提供支持，并对公众进行关于斑秃的教育。这次峰会是基金会研究使命的核心：汇集世界各地相关专业的研究人员，从以前的研究进展中汲取经验并确定未来的优先事项。 NAAF 使用这些优先事项来评估研究提案并做出拨款决策。长期目标是安全、有效、负担得起的治疗或治愈斑秃。本次研究峰会计划于 2014 年 12 月 4 日至 5 日在马里兰州贝塞斯达举行。此次峰会将汇集代表遗传学、免疫学、1型糖尿病等相关自身免疫性疾病、皮肤病学和包括光疗在内的其他领域的知名研究人员。峰会的目标是：1）回顾新知识； 2）确定有前景的新需求研究并确定优先顺序； 3）制定计划并促进伙伴关系； 4) 发布会议结果以分享调查结果。妇女、少数族裔和残疾人的包容是优先考虑，因此我们利用广泛而平衡的知识领域。我们鼓励早期职业研究人员加入我们并带来新的想法和新的人才。患有斑秃的参加者将确保在优先顺序确定过程中听取并考虑患者的观点。这次研究峰会的设计为期两天，结合了一系列简短的演讲和广泛的讨论，每个参与者都拥有麦克风。主要研究结果由高级研究人员定期总结，联合主席将带领演讲者和参与者集体分析研究结果并推荐新的研究重点和合作伙伴关系。我们使研究人员能够听到跨学科的研究结果并参与实质性问答和讨论，从而促进创新和协作。