Tools for Coordination Among Caregivers of Alzheimer's Disease Patients

阿尔茨海默病患者护理人员之间的协调工具

基本信息

批准号：
8464462
负责人：
Gregory John Seifert
金额：
$ 16.67万
依托单位：
ADVANCED MEDICAL ELECTRONICS CORPORATION
依托单位国家：
美国
项目类别：
财政年份：
2012
资助国家：
美国
起止时间：
2012-09-25 至 2015-03-24
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8464462
关键词：
Age Alzheimer&apos s Disease American Appointment Assisted Living Facilities Behavioral Caregivers Caring Child Clinical Complex Computers Confusion Data Data Security Databases Dementia Devices Discipline of Nursing Effectiveness Elderly Electronics Evaluation Event Facility Designs Family Caregiver Family member Focus Groups Friends Fright Frustration Future Grief reaction Health Services Research Healthcare Height Home environment Impaired cognition Individual Internet Intervention Investigation Knowledge Lead Left Life Life Experience Long-Term Care Memory Memory Loss Memory impairment Mental Depression Metadata Names Nonverbal Communication Patients Personal Satisfaction Personality Pharmaceutical Preparations Phase Pilot Projects Population Privacy Progressive Disease Publishing Quality of life Risk Secure Self Care Services Siblings Source Staging Symptoms System Technology Telephone Time Universities Work caregiving computerized cost economic cost experience life history loved ones meetings prototype self esteem tool

项目摘要

DESCRIPTION (provided by applicant): Recent studies have observed that reminiscence intervention is effective for increasing self- esteem and decreasing behavioral disturbances in individuals with dementia. The use of personalized reminiscence therapy for each Alzheimer's patient can be a powerful tool for care providing staff in a nursing facility. Various groups have developed tools for the creation of media that can be used for personalized reminiscence therapy. These tools edit together life history stories, audio, pictures and video of an Alzheimer' patient's past. Unfortunately the creation of a database of each patient's life in the form of fact, events, photos, and video to do reminiscence intervention can be a major undertaking. It is difficult for busy staff caregivers to acquire and retain knowledge of each patient's personal life experiences. When new caregivers begin to work with existing Alzheimer's patients, they need modern tools that they are accustom to using to acquire information about each of their patients life history. Multiple sources of information, such as the patient's siblings, friends and children may be needed to form a more complete set of useful data. A tool is proposed to generate a secure personalized reminiscence database for each dementia patient. Current and future staff caregivers will be able to securely access this information for use in the care and therapy of each Alzheimer's patient. PUBLIC HEALTH RELEVANCE: Alzheimer's disease (AD) is the leading cause of dementia. It is estimated that in 2009, 5.3 million Americans have AD. As the population ages, the number of people with AD will continue to increase to an estimated 7.7 million in 2030 and 11 to 16 million in 2050. The economic costs of treating and caring for people with AD are substantial. Healthcare and long-term care services cost three times as much for individuals with AD or dementia. AD is a progressive disease that often begins with forgetfulness. In the early stages of AD people may have trouble remembering recent events or the names of familiar people or things. As AD progresses to middle stage, memory loss and confusion increase and people may have difficulty even recognizing family members, remembering appointments, or to take medication. When an individual begins to experience cognitive loss there may be various behavioral consequences. They may experience changes in personality, a lesser sense of self, and a loss of independence. This can lead to symptoms which are challenges to caregivers. Examples of these are high levels of depression, grief, fear, and frustration, all of which have a significant impact on the well-being of the individual.

描述（由申请人提供）：最近的研究观察到，回忆干预有效地增加了痴呆症患者的自尊心和减少行为障碍。为每个阿尔茨海默氏症患者使用个性化的回忆疗法可以是为护理设施提供员工的强大工具。各个小组开发了用于创建媒体的工具，可用于个性化的回忆疗法。这些工具将老年痴呆症患者过去的人生历史故事，音频，图片和视频编辑在一起。不幸的是，以事实，事件，照片和视频的形式创建每个患者生活的数据库可能是一项重大任务。忙碌的员工护理人员很难获得和保留对每个患者个人生活的知识经验。当新的护理人员开始与现有的阿尔茨海默氏症患者合作时，他们需要现代工具，这些工具习惯于获取有关每个患者生活史的信息。多种信息来源，例如患者的兄弟姐妹，朋友和孩子可能需要形成更完整的有用数据集。提出了一种工具，为每个痴呆症患者生成安全的个性化回忆数据库。当前和未来的员工护理人员将能够安全地访问此信息，以便在每个阿尔茨海默氏症患者的护理和治疗中使用。公共卫生相关性：阿尔茨海默氏病（AD）是痴呆症的主要原因。据估计，在2009年，有530万美国人有广告。随着人口年龄的增长，AD的人数将在2030年继续增加到估计的770万，在2050年将继续增加11至1600万。治疗和照顾广告患者的经济成本很大。医疗保健和长期护理服务的成本是AD或痴呆症患者的三倍。广告是一种渐进疾病，通常从健忘开始。在广告的早期阶段，人们可能难以记住最近的事件或熟悉的人或事物的名字。随着广告的发展，记忆力丧失和混乱的增加，人们甚至可能很难认识到家庭成员，记住任命或服药。当一个人开始经历认知丧失时，可能会带来各种行为后果。他们可能会经历人格的变化，较少的自我意识和失去独立性。这可能导致症状，这是护理人员的挑战。这些例子是高水平的沮丧，悲伤，恐惧和挫败感，所有这些都对个人的福祉产生了重大影响。