Perception, preparing for childbirth among women and their family who are suspected with a congenital anormaly baby and difficulty in genetic nursing care

疑似先天异常婴儿及遗传护理困难的妇女及其家人的认知、分娩准备

• 批准号: 19592493
• 负责人: MURAKAMI Kyoko
• 金额: $ 1.58万
• 依托单位: Yamaguchi University
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (C)
• 财政年份: 2007
• 资助国家: 日本
• 起止时间: 2007 至 2009
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-19592493/
• 关键词: 先天異常; 出生前診断; 超音波検査; 看護職; 遺伝看護; インフォームド・コンセント; 育児; インフォームドコンセント

To investigate the attachment between pregnant women and their baby who is suspected with a congenital anormaly, we had studies for reproductive age students and their mothers. The image of children is affected number of brothers/sisters, own breeding experiences, frequency of contact with children, and type of children. Seventy percents participants who were grandmothers aged thought that they will be involved in childbearing for their grandchild. We had found that perinatal and pediatric nurses had been frequently involved in care for postnatal abnormality baby, artificial termination, and pregnant woman suspected with fetal anomaly. Through a systematic literature review, only five Japanese papers were eligible for genetic competences. Changes to nursing curricula and further continuing education are required.

为了调查怀疑先天性厌氧的孕妇与婴儿之间的依恋，我们对生殖年龄的学生及其母亲进行了研究。儿童的形象是受影响的兄弟/姐妹，自己的育种经历，与儿童的接触频率以及儿童类型。祖母老年人的70名盛产参与者认为，他们将与孙子一起育儿。我们发现，围产期和小儿护士经常参与护理产后异常婴儿，人造终止和怀疑胎儿异常的孕妇。通过系统的文献综述，只有五篇日本论文有资格获得遗传能力。需要更改护理课程和进一步的继续教育。

项目成果

先天異常児を持つ家族への乳幼児期の支援

为有先天畸形儿童的家庭提供早期儿童支持

• 发表时间: 2007
• 期刊: 日本遺伝看護学会誌 5(2)
• 作者: 末広 寛;Heather Skirton;村上 京子
• 通讯作者: 村上 京子