Community Engagement Core

社区参与核心

• 批准号: 10749786
• 负责人: Gladys E. Maestre
• 金额: $ 32.83万
• 依托单位: UNIVERSITY OF TEXAS RIO GRANDE VALLEY
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-18 至 2028-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10749786
• 关键词: Address; Affect; Anthropology; Biomedical Research; Censuses; Clinical Research; Communication; Communities; Community Networks; Diabetes Mellitus; Disease; Educational workshop; Ethnic Population; Evaluation; Event; Facebook; Family; Focus Groups; Fostering; Future; Genetic; Genetic study; Genome; Genomic medicine; Genomics; Goals; Growth; Health; Health Disparities Research; High School Student; Hispanic; Hispanic Populations; Human Genome; Hybrids; Individual; Interview; Length; Medical; Medicine; Mental disorders; Methods; Mexican; Mexican Americans; Minority; Minority Groups; Obesity; Participant; Persons; Physicians; Population; Process; Reporting; Research; Research Methodology; Research Personnel; Research Project Grants; Resources; Services; Shapes; South Texas; Surveys; Translational Research; Trust; Twitter; United States National Institutes of Health; Update; Woman; Work; community based research; community engagement; community involvement; community organizations; design; equity, diversity, and inclusion; evidence base; experience; health care delivery; health disparity; health equity; improved; induced pluripotent stem cell; information gathering; interest; investigator training; literacy; meetings; member; precision medicine; recruit; response; success; tool; underserved area; uptake; web site

PROJECT SUMMARY The Mexican American population is the fastest growing minority group in the US and experiences significant health disparities. However, Mexican Americans are underrepresented in biomedical research, and the population has barely benefited from the exponential growth of genetic and genomic research that has taken place in recent decades. It is critical that genomic literacy and participation in genomic research improve if the Mexican American population is to benefit from recent and future advances in genomics and precision medicine. The Community Engagement Core (CEC) of the UTRGV Diversity Center for Genome Research is designed to establish new relationships and extend existing relationships with community members and community-based organizations in order to 1) address community-wide health concerns, 2) promote participation in genomic research, and 3) disseminate genomic research findings. The CEC will work closely with each of the other components of the Center to maximize opportunities for engagement with the community. The CEC will build on established networks of interaction and trust in the local community that have been developed over many years by Center investigators through both research and health care delivery efforts. Through a range of activities, the Core will enhance research capacity by improving participation and retention of Mexican Americans in genomic research projects. The Core will address four Specific Aims: 1) to assess the south Texas community needs for, priorities for, barriers to, and interest in biomedical and genomic research through focus group discussions, in-depth interviews, and surveys; 2) to build a network of community contacts and enhance community involvement with the Center to improve partnerships and support the recruitment of Mexican American study participants; 3) to foster communication to enhance dissemination and uptake of research results; and 4) to evaluate the success of the Core, and make adjustments as required to meet community and research needs.

项目摘要 墨西哥裔美国人是美国增长最快的少数群体，经历了重要的 健康差异。但是，墨西哥裔美国人在生物医学研究中的人数不足， 人口几乎没有受益于遗传和基因组研究的指数增长 近几十年来。至关重要的是，如果基因组素养和参与基因组研究会改善 墨西哥裔美国人的人口将从基因组学和精确医学的最新进展中受益。 UTRGV基因组研究中心的社区参与核心（CEC）旨在 建立新的关系并扩展与社区成员和基于社区的现有关系 为了解决社区范围内的健康问题，组织的组织，2）促进参与基因组 研究和3）传播基因组研究结果。 CEC将与彼此紧密合作 中心的组成部分，以最大程度地与社区互动。 CEC将构建 在已经建立的互动和信任网络上，这些网络已经开发了许多 中心研究人员通过研究和医疗保健提供工作的年份。通过一系列 活动，核心将通过提高墨西哥裔美国人的参与和保留来增强研究能力 在基因组研究项目中。核心将解决四个具体目标：1）评估南德克萨斯州社区 通过焦点小组对生物医学和基因组研究的需求，优先事项，对生物医学和基因组研究的障碍和兴趣 讨论，深入访谈和调查； 2）建立社区联系网络并增强 社区参与该中心，以改善伙伴关系并支持墨西哥的招募 美国研究参与者； 3）促进交流以增强研究的传播和吸收 结果; 4）评估核心的成功，并根据需要进行调整，以满足社区和 研究需求。