Roybal Translational Research Center to Promote Context-Specific Caregiving of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders

皇家转化研究中心将促进对患有阿尔茨海默病或相关疾病的社区居民进行具体护理

• 批准号: 10017863
• 负责人: Ken W Hepburn
• 金额: $ 28.89万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10017863
• 关键词: Address; Alzheimer' s Disease; Award; Basic Science; Caregiver support; Caregivers; Center for Translational Science Activities; Collaborations; Communities; Consumer Participation; Contracts; Country; Creativeness; Development; Discipline of Nursing; Disease; Documentation; Education; Educational workshop; Elderly; Ensure; Evaluation; Gap Junctions; Goals; Hand; Heterogeneity; Human Resources; Institution; Interest Group; Intervention; Leadership; Letters; Link; Mentors; Modeling; National Institute on Aging; Newsletter; Outcome; Output; Paper; Persons; Pilot Projects; Play; Process; Reporting; Research; Research Personnel; Role; Schedule; School Nursing; Science; Services; Structure; Testing; Time; Travel; United States National Institutes of Health; Valverde; Voice; Work; base; care recipients; caregiving; clinical center; design; dissemination research; effective intervention; experience; informal caregiver; informal caregiving; innovation; interest; intervention program; meetings; member; public health research; senior faculty; success; successful intervention; symposium; therapy development; webinar

Abstract. The goal of our proposed Roybal Center for Translational Research to Promote Context-Specific Caregiving Mastery for Informal Caregivers of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders is to identify, support, and advance intervention programs that effectively address caregiving challenges across a broad range of heterogeneous caregiving contexts and to strengthen informal caregiving mastery within these contexts. The Administrative Core will play three key roles. It will play a development role in implementing and managing structures and processes that ensure an ample flow of pilot intervention proposals grounded in genuine participatory dialogue with caregiver and care recipient consumers, the effective selection support, oversight, and stage advancement of pilot interventions, and the advancement of the science of intervention development. The Core will coordinate the activities of the two national Research Interest Groups (RIG) that will be pivotal in stimulating pilot ideas and drawing interest to the Center's theme of the need to develop interventions targeted to the heterogeneity of caregiving contexts. It will be responsible for quarterly newsletters and webinars highlighting Center pilots and the discourse emanating from the RIGs and the implementation of the pilots. The Core will also be the nexus for all of the linkages the Center will maintain and expand over the course of the project, building on the Dual-PI's linkages with the NIA Alzheimer's Disease Centers and the VA Geriatric Research, Education, and Clinical Centers as well as the documented links to other national centers from which ideas and pilot researchers are expected to be drawn. The Core will play a management role. Supported by the pre- and post-award capabilities of Emory's Nursing and Public Health Research Administration Service, the Core will assume the central management role in the Center, providing administrative and financial oversight to the Pilot Core and the Center's pilot projects to enable pilot project investigators to advance successful interventions to the next stage of development. It will coordinate the activities of the Consumer, External, and Local Advisory Boards and the Center's Design Studio, and it will be responsible for the scheduling, conduct, and documentation of the variety of meetings, including an Annual Meeting, meant to keep the Center and the pilots on track. In this role, the Administrative Core will also provide linkage and coordination with the National Institute on Aging and with the Roybal Coordinating Center, ensuring timely reports, collaboration, and participation in Roybal Center national meetings. The Administrative Core will play a key role in activities designed to promote the sustainability of the Center. It will be responsible for the conduct and analysis of the Center's evaluation plan and for taking any steps identified by the evaluation to advance Center success. Finally, the Administrative Core will drive Center dissemination activities, organizing pre-conference workshops at national meetings, promoting reports of pilot findings, and developing annual White Papers on the advancement of the science of intervention development.

抽象的。我们拟议的皇家翻译研究中心的目标是促进特定于上下文 护理掌握非正式护理人员的社区居民患有阿尔茨海默氏病或 相关疾病是识别，支持和提高干预计划，以有效解决护理 各种各样的异构护理环境中的挑战并加强非正式护理 在这些情况下掌握。行政核心将扮演三个关键角色。它将发挥发展 在实施和管理结构和流程中的作用，以确保大量飞行员干预 提案以与照料者和护理人员的真正参与对话为基础 试点干预措施的有效选择支持，监督和阶段进步以及 干预发展科学。核心将协调两项国家研究的活动 利益集团（钻机）将在刺激飞行员思想并吸引该中心主题的兴趣中至关重要 需要制定针对护理背景异质性的干预措施。它将负责 季度新闻通讯和网络研讨会强调中心飞行员以及钻机和 飞行员的实施。核心也将是中心将维护的所有联系的联系 并在整个项目过程中扩展，建立在双PI与NIA阿尔茨海默氏病的联系基础上 中心以及VA老年研究，教育和临床中心以及已记录的链接 预计将从中心和飞行员研究人员那里吸引的其他国家中心。核心将发挥 管理角色。在埃默里护理和公共卫生的备受奖前和敏捷后能力的支持下 研究管理服务，核心将在中心担任中央管理角色，提供 对飞行员核心和中心的试点项目的行政和财务监督，以实现飞行员项目 调查人员将成功的干预措施推向下一阶段。它将协调 消费者，外部和本地咨询委员会以及中心的设计工作室的活动，这将是 负责各种会议的安排，行为和文档，包括年度会议 会议，旨在使中心和飞行员保持正轨。在这个角色中，行政核心也将 与国家老化研究所以及皇家协调中心提供联系和协调 确保及时报告，合作和参加皇家中心国家会议。行政 核心将在旨在促进中心可持续性的活动中发挥关键作用。它将负责 为了进行中心评估计划的行为和分析，并采取任何步骤 评估以提高中心成功。最后，行政核心将推动中心传播 活动，在国家会议上组织会议前研讨会，促进试点调查结果的报告以及 开发有关干预发展科学发展的年度白皮书。