Emory Alzheimer's Disease Research Center

埃默里阿尔茨海默病研究中心

基本信息

批准号：
10212233
负责人：
Ken W Hepburn
金额：
$ 21.55万
依托单位：
EMORY UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2020
资助国家：
美国
起止时间：
2020-07-15 至 2025-04-30
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10212233
关键词：
Address Advocacy Affect African American Aging Alzheimer&apos s Disease Area Basic Science Brain Caregivers Caring Clinic Clinical Research Clinical Services Collaborations Communities Consultations Continuing Education Dementia Development Diagnosis Diagnostic Diagnostic Services Disease Distance Learning E-learning Education Education and Outreach Employee Assistance Program (Health Care)Etiology Event Faculty Family Family Caregiver Frontotemporal Dementia Funding Goals Health Personnel Health system Heterogeneity Home Impaired cognition Incubated Incubators Individual Institution Interdisciplinary Study Lead Lesbian Gay Bisexual Transgender Lewy Body Dementia Link Medical Memory Nurses Online Systems Participant Patients Persons Positioning Attribute Primary Care Physician Provider Public Health Nursing Recruitment Activity Research Research Activity Research Personnel Resources Services System Technology Testing Training Training Activity Training and Education Translational Research Underrepresented Populations Vascular Dementia Videoconferencing Work aging brain brain health care systems caregiving cohort design disability education research empowerment family support implementation research improved innovation interest learning strategy member memory care mild cognitive impairment novel outreach programs recruit research and development response rural area rural families service providers skills social stigma web site

项目摘要

SUMMARY/ABSTRACT – OUTREACH,RECRUITMENT & ENGAGEMENT CORE The Outreach, Recruitment, and Engagement (ORE) Core works with all ADRC Cores, with other initiatives of the Emory Brain Health Center, and with interdisciplinary colleagues at other ADRCs to advance the overall goals of the Goizueta ADRC in support of the national plan to address Alzheimer’s disease (AD) and related disorders (ADRD). The ORE Core will pursue three main aims and one developmental aim: Aim 1, Provide outreach and educational programs to promote recruitment into research and brain donation with particular emphasis on reaching a wide variety of dementing illnesses and caregiving situations; Aim 2, Target educational programs and consultation to clinicians and academics, including those engaged in in training activities in the Research Education Component, to promote research recruitment and interdisciplinary research; Aim 3, Engage with community and academic partners in providing recruitment-related, innovative educational programs, including extending the ORE Core reach to rural locations, particularly those linked to the Georgia Memory Net, using videoconferencing and other distance approaches; Developmental Aim, Expand networking activities at Emory and partnering ADRCs to enhance care services for persons living with dementing illnesses. As a part of a fully-integrated ADRC, the ORE Core works collaboratively with other cores to perform four main functions: disseminate ADRC activities to partners and potential research participants; reach out to a broad network of service providers, advocacy groups, and researchers to strengthen our dissemination and recruitment capacities; expand education and training offerings to individuals and professionals, especially in the great heterogeneity of dementing illnesses and caregiving situations; and lead and collaborate in the development of responses to unmet research and service needs of those living with dementing illnesses and their family caregivers. The Core builds on strong partnerships with academic, provider, and advocacy groups, including with Georgia Memory Net (GMN), a new statewide initiative to provide diagnostic, treatment, and care planning services to Georgia. Our connection with the Emory’s Mild Cognitive Impairment Empowerment Center (MCIEP), deepens our capacity to educate and recruit this large group of cognitively impaired individuals and their family caregivers. Going forward, the ORE core will offer the kind of large-scale outreach and education programs that have proved to successful in the past and will broadcast many of these. Additionally, we will sponsor or co-sponsor at least three programs targeted to various aspects of the heterogeneity of care situations. In support of Aims 2 and 3, we will provide at least educational programs for providers, focused on issues of diagnosis, management, and support of family caregivers and will collaborate in provider training in the GMN. We will expand our linkages with partners in the MCIEP, the Emory Brain Health Center, and Emory’s dementia-specific medical home, to explore needs related to and innovations in care services to persons living within a wide variety of dementia situations.

摘要/摘要 - 外展，招聘和参与核心外展，招聘和参与（矿石）核心与所有ADRC核心合作， Emory Brain Health Center，以及其他ADRC的跨学科同事，以促进整体 Goizueta ADRC的目标支持国家计划解决阿尔茨海默氏病（AD）及相关计划疾病（ADRD）。矿石核心将追求三个主要目标和一个发展目标：目标1，提供推广和教育计划，以促进招募研究和大脑捐赠的特定强调达到各种各样的痴呆疾病和照料情况；目标2，目标对临床医生和学者的教育计划和咨询，包括参加培训的人研究教育部分的活动，以促进研究招聘和跨学科研究;目标3，与社区和学术伙伴互动，以提供与招聘有关的创新性教育计划，包括将矿石核心扩展到粗糙的地点，尤其是与之相关的地方使用视频会议和其他距离方法的佐治亚记忆网；发展目的，扩展Emory的网络活动并与ADRC合作，以增强与之相关的人的护理服务痴呆疾病。作为完全集成的ADRC的一部分，矿石核心与其他核心执行四个主要功能：向合作伙伴传播ADRC活动和潜在的研究参与者；与广泛的服务提供商，倡导团体和研究人员接触到加强我们的传播和招聘能力；扩大对个人的教育和培训提供和专业人士，尤其是在痴呆疾病和照料情况的极端异质上；和领导和合作，开发了与与之相处的人的未满足研究和服务需求的回应痴呆疾病及其家庭护理人员。核心是与学术，提供者和倡导团体，包括佐治亚州内存网（GMN），这是一项新的全州倡议向佐治亚州提供诊断，治疗和护理计划服务。我们与埃默里温和的联系认知损害赋权中心（MCIEP），加深了我们教育和招募这么大的能力一群认知受损的个人及其家庭护理人员。展望未来，矿石核心将提供过去已证明成功的大规模宣传和教育计划，并将广播其中许多。此外，我们将至少发起或共同发起人的三个针对的计划护理情况异质性的各个方面。为了支持目标2和3，我们至少将提供提供者的教育计划，专注于诊断，管理和家庭支持问题护理人员将在GMN的提供者培训中进行合作。我们将扩大与合作伙伴的联系 McIep，Emory Brain Health Center和Emory的痴呆症特定医疗之家，以探索需求与生活在各种痴呆症情况下的人有关的护理服务和创新。