Roybal Translational Research Center to Promote Context-Specific Caregiving of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders

皇家转化研究中心将促进对患有阿尔茨海默病或相关疾病的社区居民进行具体护理

• 批准号: 10470817
• 负责人: Ken W Hepburn
• 金额: $ 74.36万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10470817
• 关键词: Acute; Address; Aging; Alzheimer' s Disease; Alzheimer' s disease caregiver; American; Capsicum; Caregivers; Caring; Center for Translational Science Activities; Chronic; Communication; Communities; Country; Deep South; Dementia caregivers; Development; Diagnosis; Disease; Education; Elderly; Elements; Ensure; Evidence based intervention; Family; Fostering; Future; Geographic Locations; Geriatric Nursing; Geriatrics; Gerontology; Goals; Grant; Growth; Health Care Costs; Health Expenditures; Health system; Heterogeneity; Human Resources; Individual; Infrastructure; Institution; Intervention; Intervention Studies; Letters; Living Wills; Location; Medical; Mentors; Methods; Minority; Minority Groups; Monitor; Neurocognitive; Outcome; Persons; Phase; Pilot Projects; Politics; Population Group; Primary Progressive Aphasia; Process; Quality of life; Recommendation; Reporting; Research; Research Personnel; Resources; Rest; Role; Rural; School Nursing; Science; Science Enrichment; Sex Orientation; Source; Statutes and Laws; Structure; Testing; Thinking; Time; United States National Institutes of Health; Voice; Work; base; care recipients; caregiver interventions; caregiving; clinical center; community living; comorbidity; design; ethnic diversity; evidence base; experience; healthy aging; improved; informal caregiver; informal caregiving; interest; intervention program; outreach; pilot test; programs; public health relevance; racial and ethnic; racial diversity; social; social cognitive theory; success; therapy design; therapy development; uptake

Abstract. The goal of the proposed Roybal Translational Research Center is to provide support to investiga- tors across the nation to conduct NIH Stage I-III intervention research that will enhance the context-specific role-mastery of informal caregivers of persons living with Alzheimer’s disease and similar illnesses. We look to the future: by 2050, as many as 20 million Americans will be living with these illnesses, and the number of informal caregivers will expand to 40-50 million. Informal caregiving is the key to the quality of life and continued community living of persons living with Alzheimer’s and similar illnesses; it is also a bulwark against rising health care costs. Our Center rests on the premise that informal caregiving is not one homogenous entity but is context-specific. As the U.S. continues to experience major reconfigurations in its social and demographic composition (we will, for instance, be a “minority majority” country by 2043), we expect caregiving to occur in an ever-increasing set of heterogeneous contexts. These contexts are framed by various illness conditions, family, cultural, or social caregiving situations, geographical location, and care recipients’ transitions through care settings, especially the acute setting. The two pilots proposed in this application exemplify topics shaped by heterogeneous contexts: one focuses on caregiving for persons with Primary Progressive Aphasia, the other on the situation of caregivers from a sexual-orientation minority group. Our Center’s second assertion is that interventions developed to address these contexts must be designed with the involvement of caregivers/consumers from within these contexts. Our Center builds on substantial contributed support from our institution and a set of existing relationships with key national networks of Alzheimer’s and caregiver researchers, centers and investigators engaged in geriatrics and gerontology research, and centers and organizations focused on promoting diversity and the voice of the consumer. Our Center will provide a set of integrated processes and a method of “design thinking” (product-focused facilitated multi-perspective discourse) embedded in our Design Studio that creates a pipeline leading to increasingly sophisticated caregiver interventions. The Center incorporates an outreach function to attract and engage investigators and consumers in discussions about and design of interventions. It includes a function for mentoring interested investigators in the development of effective pilot proposals and a rigorous method for selecting especially meritorious proposals. In the implementation phase of supported pilots, the Center’s Pilot Core assumes a mentoring and monitoring role to ensure pilot success, and the Administrative Core provides structure to ensure the responsible conduct of the pilots. The Pilot Core and Design Studio work with pilot investigators to craft and follow an individual plan by which a proposal for the next stage of development for the pilot is created to seek support from us or other sources. The inter-related activities of the Center will enable it to pursue a second overall aim, the continued advancement of the science of intervention development.

抽象的。拟议的皇家翻译研究中心的目标是为研究提供支持 全国各地的TOR进行NIH阶段I-III阶段干预研究，以增强上下文特定的 非正式护理人员患有阿尔茨海默氏病和类似疾病的人的角色掌握。我们看 未来：到2050年，多达2000万美国人将与这些疾病生活在一起， 非正式护理人员将扩大到400至5000万。非正式护理人员是生活质量和 持续的社区生活在阿尔茨海默氏症和类似疾病中；这也是一个反对的堡垒 医疗保健费用上升。我们的中心基于非正式护理不是一个同质实体的前提 但是特定于上下文的。随着美国的社会和 人口组成（例如，到2043年，我们将成为“少数多数”国家），我们希望照顾 发生在不断增加的异质环境集中。这些环境是由各种疾病构成的 条件，家庭，文化或社会护理情况，地理位置和护理接收者 通过护理设置，尤其是急性环境的过渡。在此应用中提出的两个小球 体现了由异构背景所塑造的主题：专注于针对主要的人的护理 进步的失语症，另一个关于性取向少数群体的照顾者的状况。我们的 中心的第二个断言是，为解决这些环境而开发的干预措施必须由 在这些情况下，照顾者/消费者的参与。我们的中心以实质性贡献为基础 我们机构的支持，以及与阿尔茨海默氏症的主要国家网络的一系列现有关系 护理人员的研究人员，中心和研究人员从事老年医学和老年学研究以及中心 组织专注于促进多样性和消费者的声音。我们的中心将提供一套 集成过程和一种“设计思维”的方法（以产品为中心准备的多个观点 话语）嵌入了我们的设计工作室中，该工作室创建了一条管道，导致越来越复杂 护理人员干预措施。该中心纳入了外展功能，以吸引和吸引调查人员和 关于干预措施的讨论和设计的消费者。它包括一个有兴趣的心理功能 开发有效的试点建议和一种严格选择的方法，尤其是 有功的建议。在支持钢琴的实施阶段，该中心的飞行员核心资产A 指导和监视角色以确保飞行员成功，而行政核心为 确保负责移动者的负责行为。飞行员核心和设计工作室与试点调查员一起工作 制作并遵循一个个人计划，通过该计划为飞行员提出下一阶段开发阶段的建议 寻求我们或其他来源的支持。该中心的相互关联活动将使它能够追求 第二个整体目标是干预发展科学的持续发展。