Community Engagement Core

社区参与核心

• 批准号: 10678990
• 负责人: Nicole Ennis
• 金额: $ 33.72万
• 依托单位: FLORIDA STATE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-10 至 2026-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10678990
• 关键词: AIDS prevention; Address; Adolescent; Adolescent Medicine Trials Network; Adoption; Advertisements; Alcohol consumption; Alcohols; Behavior Therapy; Behavioral Sciences; COVID-19 pandemic; Characteristics; Clinical Sciences; Collaborations; Communication; Communities; Data Collection; Data Science Core; Ensure; Equity; Florida; Foundations; Funding; Gays; Goals; Guidelines; HIV; Health; Individual; Informed Consent; Intervention; Measurement; Measures; Monitor; Outcome; Participant; Patient Recruitments; Perception; Persons; Police; Policy Maker; Population; Populations at Risk; Procedures; Process; Process Assessment; Protocols documentation; Provider; Public Health; Research; Research Personnel; Resources; Self Management; Sexual Health; Site; Solid; Testing; Translational Research; United States National Institutes of Health; Viral Load result; Work; Youth; alcohol prevention; community engaged research; community engagement; cost effective; design; electronic consent; emerging adult; experience; implementation facilitation; implementation science; improved; innovation; interest; participant retention; pre-clinical; preventive intervention; programs; recruit; scale up; social media; success; tool; translational pipeline; virtual; web portal; web site; young adult

PROJECT SUMMARY The translational science spectrum represents each stage of research: pre-clinical, clinical, and implementation science. Conducting research across the translational spectrum, as proposed in this P01, that meaningfully addresses alcohol use among young people living with HIV (YPLWH) in Florida, necessitates active involvement of young people, policy makers and key stakeholders. The Community Engagement Core (CEC) co-directed by Drs. Nicole Ennis and M. Isabel Fernandez, is tasked with developing and maintaining authentic partnerships between researchers and YPLWH as well as those with the power and resources to quickly scale- up scientific discoveries into practice using a community engaged research (CEnR) approach. We have centralized all of the recruitment, engagement, retention and assessment functions for all of the three studies into this resources core which is more efficient and cost effective than relegating these functions to the individual projects as is typically done. From the start, the CEC will engage YPLWH and key stakeholders to develop: 1) tailored advertisements and insta-stories to post on targeted social media sites and gay dating apps to promote interest in and recruitment into the three studies: 2) the e-Informed Consents; 3) the SHARE website; and 4) review of the assessment measures and onboarding procedures. The primary activities of stakeholder engagement will be: 1) Refine project protocols in conjunction with stakeholders to ensure an equitable CEnR Context; 2) Manage a web-based portal for bidirectional communication to ensure an equitable CEnR Process; 3) Evaluate our CEnR Process by assessing stakeholder: a) perceptions of the CEC activities; b) adoption of new guidelines and polices that result from CEC participation; and c) perceived challenges and benefits of participation; and 4) Support the recruitment of participants who reflect the characteristics of YPLWH in Florida. Therefore, the overall goal of the CEC for the SHARE P01 is to serve as a resource for participant and stakeholder engagement and retention in the research process and to measure the impact of the CEnR approach across all three projects in this P01. The CEC has two specific aims: Aim 1. Direct and manage recruitment, engagement, retention and assessment activities associated with implementation of the three projects proposed in this SHARE P01. Aim 2: Manage and evaluate the dynamic process that supports sustained engagement and active participation of our stakeholders (i.e., community stakeholder organizations and Youth Advisory Council) in the research and dissemination efforts of the SHARE P01. The expected outcome is that ongoing community input and collaborative agenda setting will result in evidence and interventions tailored to the settings and populations being studied thereby making it more readily accepted by those communities.

项目概要 转化科学范围代表研究的每个阶段：临床前、临床和实施 科学。正如本 P01 中所提议的那样，在整个转化领域开展研究，这有意义 解决佛罗里达州年轻人艾滋病毒感染者 (YPLWH) 的饮酒问题，需要积极采取行动 年轻人、政策制定者和主要利益攸关方的参与。社区参与核心 (CEC) 共同导演。 Nicole Ennis 和 M. Isabel Fernandez 的任务是开发和维护真实的 研究人员和 YPLWH 以及那些拥有快速扩展能力和资源的伙伴之间的合作伙伴关系 使用社区参与研究 (CEnR) 方法将科学发现付诸实践。我们有 集中所有三项研究的招募、参与、保留和评估职能 将这些职能归入这一资源核心，这比将这些职能移交给 像通常所做的那样，单独的项目。从一开始，CEC 就会让 YPLWH 和主要利益相关者参与进来 开发：1) 定制广告和 Instagram 故事，发布在目标社交媒体网站和同性恋约会网站上 促进对三项研究的兴趣和招募的应用程序：2) 电子知情同意书； 3）分享 网站; 4) 审查评估措施和入职程序。主要活动 利益相关者的参与将是： 1) 与利益相关者一起完善项目协议，以确保 公平的 CEnR 背景； 2) 管理基于网络的双向通信门户，以确保公平 CEnR 流程； 3) 通过评估利益相关者来评估我们的 CEnR 流程： a) 对 CEC 活动的看法； b) 通过 CEC 参与产生的新指​​导方针和政策； c) 感知到的挑战和 参与的好处； 4）支持招募体现自身特点的参与者 佛罗里达州的 YPLWH。因此，CEC 对 SHARE P01 的总体目标是作为 参与者和利益相关者在研究过程中的参与和保留，并衡量其影响 本 P01 中所有三个项目的 CEnR 方法。 CEC 有两个具体目标： 目标 1. 直接和 管理与实施相关的招聘、参与、保留和评估活动 本 SHARE P01 中提出了三个项目。目标 2：管理和评估支持的动态流程 我们的利益相关者（即社区利益相关者组织）的持续参与和积极参与 和青年咨询委员会）参与 SHARE P01 的研究和传播工作。预期的 结果是，持续的社区投入和协作议程设定将产生证据和 针对所研究的环境和人群量身定制的干预措施，从而使其更容易被研究人员接受 那些社区。