Roybal Translational Research Center to Promote Context-Specific Caregiving of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders

皇家转化研究中心将促进对患有阿尔茨海默病或相关疾病的社区居民进行具体护理

• 批准号: 10668367
• 负责人: Ken W Hepburn
• 金额: $ 27.76万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10668367
• 关键词: Address; Alzheimer' s Disease; Award; Basic Science; Caregiver support; Caregivers; Center for Translational Science Activities; Collaborations; Communities; Consumer Participation; Contracts; Country; Creativeness; Development; Discipline of Nursing; Disease; Documentation; Education; Educational workshop; Elderly; Ensure; Evaluation; Goals; Hand; Heterogeneity; Human Resources; Incubated; Institution; Interest Group; Intervention; Leadership; Letters; Link; Mentors; Modeling; National Institute on Aging; Newsletter; Outcome; Output; Paper; Persons; Pilot Projects; Play; Process; Reporting; Research; Research Personnel; Role; Schedule; School Nursing; Science; Services; Structure; Testing; Travel; United States National Institutes of Health; Valverde; Voice; Work; care recipients; caregiving; clinical center; design; effective intervention; experience; informal caregiver; informal caregiving; innovation; interest; intervention program; meetings; member; public health research; senior faculty; success; successful intervention; symposium; therapy development; webinar

Abstract. The goal of our proposed Roybal Center for Translational Research to Promote Context-Specific Caregiving Mastery for Informal Caregivers of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders is to identify, support, and advance intervention programs that effectively address caregiving challenges across a broad range of heterogeneous caregiving contexts and to strengthen informal caregiving mastery within these contexts. The Administrative Core will play three key roles. It will play a development role in implementing and managing structures and processes that ensure an ample flow of pilot intervention proposals grounded in genuine participatory dialogue with caregiver and care recipient consumers, the effective selection support, oversight, and stage advancement of pilot interventions, and the advancement of the science of intervention development. The Core will coordinate the activities of the two national Research Interest Groups (RIG) that will be pivotal in stimulating pilot ideas and drawing interest to the Center's theme of the need to develop interventions targeted to the heterogeneity of caregiving contexts. It will be responsible for quarterly newsletters and webinars highlighting Center pilots and the discourse emanating from the RIGs and the implementation of the pilots. The Core will also be the nexus for all of the linkages the Center will maintain and expand over the course of the project, building on the Dual-PI's linkages with the NIA Alzheimer's Disease Centers and the VA Geriatric Research, Education, and Clinical Centers as well as the documented links to other national centers from which ideas and pilot researchers are expected to be drawn. The Core will play a management role. Supported by the pre- and post-award capabilities of Emory's Nursing and Public Health Research Administration Service, the Core will assume the central management role in the Center, providing administrative and financial oversight to the Pilot Core and the Center's pilot projects to enable pilot project investigators to advance successful interventions to the next stage of development. It will coordinate the activities of the Consumer, External, and Local Advisory Boards and the Center's Design Studio, and it will be responsible for the scheduling, conduct, and documentation of the variety of meetings, including an Annual Meeting, meant to keep the Center and the pilots on track. In this role, the Administrative Core will also provide linkage and coordination with the National Institute on Aging and with the Roybal Coordinating Center, ensuring timely reports, collaboration, and participation in Roybal Center national meetings. The Administrative Core will play a key role in activities designed to promote the sustainability of the Center. It will be responsible for the conduct and analysis of the Center's evaluation plan and for taking any steps identified by the evaluation to advance Center success. Finally, the Administrative Core will drive Center dissemination activities, organizing pre-conference workshops at national meetings, promoting reports of pilot findings, and developing annual White Papers on the advancement of the science of intervention development.

抽象的。我们提议的皇家转化研究中心的目标是促进特定环境 社区居住的阿尔茨海默病患者或非正式护理人员的护理掌握 相关疾病是为了识别、支持和推进有效解决护理问题的干预计划 应对广泛的异质护理环境中的挑战并加强非正式护理 掌握这些背景。行政核心将发挥三个关键作用。将会起到一个发展的作用 在实施和管理确保充足的试点干预流程的结​​构和流程中的作用 提案以与护理者和接受护理的消费者进行真正的参与性对话为基础， 有效的选择支持、监督和试点干预措施的阶段性推进，以及 干预发展的科学。该核心将协调两个国家研究中心的活动 兴趣小组 (RIG) 在激发试点想法和吸引人们对中心主题的兴趣方面将发挥关键作用 需要针对护理环境的异质性制定干预措施。它将负责 季度通讯和网络研讨会重点介绍中心试点以及 RIG 和 试点的实施。核心也将成为该中心将维持的所有联系的纽带 并在项目过程中进行扩展，以 Dual-PI 与 NIA 阿尔茨海默病的联系为基础 中心和 VA 老年研究、教育和临床中心以及记录在案的链接 预计将从中汲取想法和试点研究人员的其他国家中心。核心将扮演 管理角色。得到埃默里大学护理和公共卫生部门授予前和授予后能力的支持 研究管理服务核心将承担中心的中央管理作用，提供 对试点核心和中心试点项目进行行政和财务监督，以实现试点项目 研究人员将成功的干预措施推进到下一发展阶段。它将协调 消费者、外部和当地咨询委员会以及中心设计工作室的活动， 负责各种会议的安排、进行和记录，包括年度会议 会议旨在让中心和飞行员保持在正轨上。在此角色中，行政核心还将 与国家老龄化研究所和皇家协调中心建立联系和协调， 确保及时报告、协作和参与皇家中心全国会议。行政部门 Core 将在旨在促进中心可持续性的活动中发挥关键作用。将会负责 进行和分析中心的评估计划并采取中心确定的任何步骤 评估以促进中心的成功。最后，行政核心将推动中心传播 活动，在国家会议上组织会前研讨会，推广试点结果报告，以及 制定关于干预发展科学进步的年度白皮书。