Emory Alzheimer's Disease Research Center

埃默里阿尔茨海默病研究中心

基本信息

批准号：
10212233
负责人：
Ken W Hepburn
金额：
$ 21.55万
依托单位：
EMORY UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2020
资助国家：
美国
起止时间：
2020-07-15 至 2025-04-30
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10212233
关键词：
Address Advocacy Affect African American Aging Alzheimer&apos s Disease Area Basic Science Brain Caregivers Caring Clinic Clinical Research Clinical Services Collaborations Communities Consultations Continuing Education Dementia Development Diagnosis Diagnostic Diagnostic Services Disease Distance Learning E-learning Education Education and Outreach Employee Assistance Program (Health Care)Etiology Event Faculty Family Family Caregiver Frontotemporal Dementia Funding Goals Health Personnel Health system Heterogeneity Home Impaired cognition Incubated Incubators Individual Institution Interdisciplinary Study Lead Lesbian Gay Bisexual Transgender Lewy Body Dementia Link Medical Memory Nurses Online Systems Participant Patients Persons Positioning Attribute Primary Care Physician Provider Public Health Nursing Recruitment Activity Research Research Activity Research Personnel Resources Services System Technology Testing Training Training Activity Training and Education Translational Research Underrepresented Populations Vascular Dementia Videoconferencing Work aging brain brain health care systems caregiving cohort design disability education research empowerment family support implementation research improved innovation interest learning strategy member memory care mild cognitive impairment novel outreach programs recruit research and development response rural area rural families service providers skills social stigma web site

项目摘要

SUMMARY/ABSTRACT – OUTREACH,RECRUITMENT & ENGAGEMENT CORE The Outreach, Recruitment, and Engagement (ORE) Core works with all ADRC Cores, with other initiatives of the Emory Brain Health Center, and with interdisciplinary colleagues at other ADRCs to advance the overall goals of the Goizueta ADRC in support of the national plan to address Alzheimer’s disease (AD) and related disorders (ADRD). The ORE Core will pursue three main aims and one developmental aim: Aim 1, Provide outreach and educational programs to promote recruitment into research and brain donation with particular emphasis on reaching a wide variety of dementing illnesses and caregiving situations; Aim 2, Target educational programs and consultation to clinicians and academics, including those engaged in in training activities in the Research Education Component, to promote research recruitment and interdisciplinary research; Aim 3, Engage with community and academic partners in providing recruitment-related, innovative educational programs, including extending the ORE Core reach to rural locations, particularly those linked to the Georgia Memory Net, using videoconferencing and other distance approaches; Developmental Aim, Expand networking activities at Emory and partnering ADRCs to enhance care services for persons living with dementing illnesses. As a part of a fully-integrated ADRC, the ORE Core works collaboratively with other cores to perform four main functions: disseminate ADRC activities to partners and potential research participants; reach out to a broad network of service providers, advocacy groups, and researchers to strengthen our dissemination and recruitment capacities; expand education and training offerings to individuals and professionals, especially in the great heterogeneity of dementing illnesses and caregiving situations; and lead and collaborate in the development of responses to unmet research and service needs of those living with dementing illnesses and their family caregivers. The Core builds on strong partnerships with academic, provider, and advocacy groups, including with Georgia Memory Net (GMN), a new statewide initiative to provide diagnostic, treatment, and care planning services to Georgia. Our connection with the Emory’s Mild Cognitive Impairment Empowerment Center (MCIEP), deepens our capacity to educate and recruit this large group of cognitively impaired individuals and their family caregivers. Going forward, the ORE core will offer the kind of large-scale outreach and education programs that have proved to successful in the past and will broadcast many of these. Additionally, we will sponsor or co-sponsor at least three programs targeted to various aspects of the heterogeneity of care situations. In support of Aims 2 and 3, we will provide at least educational programs for providers, focused on issues of diagnosis, management, and support of family caregivers and will collaborate in provider training in the GMN. We will expand our linkages with partners in the MCIEP, the Emory Brain Health Center, and Emory’s dementia-specific medical home, to explore needs related to and innovations in care services to persons living within a wide variety of dementia situations.

摘要/摘要 – 外展、招聘和参与核心外展、招聘和参与 (ORE) 核心与所有 ADRC 核心以及 ADRC 的其他举措合作埃默里脑健康中心以及其他 ADRC 的跨学科同事共同推进整体戈伊苏埃塔 ADRC 支持解决阿尔茨海默病 (AD) 及相关疾病的国家计划的目标 ORE 核心将追求三个主要目标和一个发展目标：目标 1，提供外展和教育计划，以促进研究和脑捐赠的招募，特别是重点关注各种痴呆症疾病和护理情况；目标 2，目标；向教师和学者（包括从事培训的人员）提供教育计划和咨询研究教育部分的活动，以促进研究招募和跨学科研究；目标 3，与社区和学术合作伙伴合作，提供与招聘相关的创新服务教育计划，包括将 ORE 核心覆盖范围扩大到农村地区，特别是那些与乔治亚记忆网，使用视频会议和其他远程方法；扩大埃默里大学的网络活动并与 ADRC 合作，以加强对活着的残疾人的护理服务作为完全集成的 ADRC 的一部分，ORE 核心与其他疾病协作。核心执行四个主要功能：向合作伙伴传播 ADRC 活动和潜在研究参与者；接触广泛的服务提供商、倡导团体和研究人员网络，加强我们的传播和招聘能力；扩大对个人的教育和培训服务和专业人员，特别是在痴呆症和护理情况的巨大异质性方面；领导和合作制定应对措施，以满足患有艾滋病毒的人未得到满足的研究和服务需求痴呆症患者及其家庭护理人员建立在与学术界、提供商和倡导团体，包括佐治亚记忆网 (GMN)，这是一项新的联邦倡议，旨在我们与埃默里温和医院的联系，为乔治亚州提供诊断、治疗和护理计划服务。认知障碍赋权中心 (MCIEP) 加深了我们教育和招募这一大型人员的能力未来，ORE 核心将为认知障碍人士及其家庭护理人员提供服务。过去已被证明是成功的大规模外展和教育计划，并将继续此外，我们将赞助或共同赞助至少三个针对这些主题的节目。为了支持目标 2 和 3，我们将至少提供护理情况异质性的各个方面。针对提供者的教育计划，重点关注家庭的诊断、管理和支持问题我们将扩大与 GMN 合作伙伴的联系。 MCIEP、埃默里脑健康中心和埃默里痴呆症特异性医疗之家，探索需求与生活在各种痴呆症情况下的人有关的护理服务和创新。