Autism Spectrum Disorder in Rural Georgia: Education and Resources

乔治亚州农村的自闭症谱系障碍：教育和资源

• 批准号: 10513842
• 负责人: Sarah Elizabeth Rotschafer
• 金额: $ 14.25万
• 依托单位: MERCER UNIVERSITY MACON
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-08-01 至 2025-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10513842
• 关键词: Address; Adult; Advertisements; Affect; Age; Area; Autism Diagnosis; Awareness; Cellular Phone; Child; Child health care; Clinical Trials; Code; Communities; County; Databases; Dentists; Diagnosis; Diagnostic; Disadvantaged; Disease; Early Intervention; Failure; Family; Feedback; Focus Groups; Geography; Goals; Health; Health Personnel; Health Resources; Home; Impairment; Income; Independent Living; Individual; Information Resources; Intervention; Knowledge; Language; Link; Literature; Maps; Medical Students; MedlinePlus; Mission; Newsletter; Pamphlets; Parents; Patient Care; Patients; Physicians; Pre-Post Tests; Process; Provider; Psyche structure; PubMed; Reading; Research; Resources; Rural; Rural Community; Rural Health; Services; Severities; Signs and Symptoms; Social support; Support Groups; Symptoms; Testing; Therapeutic; Therapeutic Intervention; Thinking; Time; Training; United States National Library of Medicine; Universities; Urban Community; autism spectrum disorder; autistic children; base; biomedical resource; commune; continuing medical education; diagnostic criteria; education resources; evidence base; executive function; experience; health care availability; individuals with autism spectrum disorder; innovation; insight; language impairment; literacy; medical schools; medically underserved; meetings; member; online course; prevent; programs; repetitive behavior; rural area; rural counties; rural families; sensory processing disorder; service providers; sixth grade; social; social communication; socioeconomic disadvantage; symptomatic improvement; telehealth; tool; treatment center; underserved community; usability; web page; web site

PROJECT SUMMARY Autism spectrum disorder (ASD) is a condition characterized by atypical social communication, rigid thinking, and repetitive behavior that is becoming increasingly prevalent, with 1 in every 54 children meeting the diagnostic criteria. ASD signs and symptoms can vary broadly in their presentation, from relatively mild impairments to symptoms severe enough that they prevent individuals with ASD from living independently. Social support and early intervention therapies however can significantly ameliorate the severity of several ASD symptoms. Notably, the younger children are when therapies and interventions are begun, the more effective they will ultimately be. While children can be reliably diagnosed with ASD at as young as 18 months, the average age at time of diagnosis is 4.5 years which means that children with ASD often miss therapeutic opportunities for lack of a diagnoses. Delayed diagnoses are especially common in children from rural communities. Research that investigated possible causes for delayed ASD diagnoses in rural communities found lack of parental knowledge about ASD, hesitancy among clinicians to diagnose young children with ASD, and a lack of knowledge regarding steps to take to have a child tested for ASD to be significant factors. In order to address ASD-related disparities in rural communities, we created a webpage dedicated to helping families and individuals effected by ASD navigate the diagnostic process. Our webpage directs users to ASD “on-boarding’ organizations, and also has resources for finding early intervention therapy centers near their home communities, provides links to financial resources, and links to community based support organizations. We would like to expand our webpage into an online ASD ToolKit that will be reviewed by rural families who have a child with ASD. Our ToolKit will also give families opportunities to direct content creation by soliciting families’ input through user feedback questions and focus groups. The goal of the ASD ToolKit is to create an easy to use guide for living with and managing ASD in rural Georgia that has been shaped insights from families affected by ASD. We will also create an online course about ASD diagnosis and resources for rural physicians that will be informed by input from families affected by ASD. We will invite feedback from our targeted physicians though user feedback questions and an ASD resources quiz. Ultimately, we will use the physician input we receive on the course to develop a continuing medical education (CME) program that will be available through Project ECHO.

项目概要 自闭症谱系障碍（ASD）是一种以非典型社交沟通为特征的疾病， 僵化思维和重复行为日益普遍，每人就有 1 人 54 名符合自闭症谱系障碍 (ASD) 体征和症状的儿童的症状和体征可能存在很大差异。 表现，从相对轻微的损伤到严重到足以预防的症状 自闭症谱系障碍患者独立生活的社会支持和早期干预治疗。 然而，可以显着改善几种 ASD 症状的严重程度。 开始治疗和干预时，儿童年龄越小，效果越好 虽然儿童在 18 个月大时就可以被可靠地诊断出患有自闭症谱系障碍 (ASD)，但 诊断时的平均年龄为 4.5 岁，这意味着患有自闭症谱系障碍 (ASD) 的儿童经常会漏诊 因缺乏诊断而导致的治疗机会延迟在以下国家尤其常见。 来自农村社区的儿童的研究调查了延迟自闭症谱系障碍的可能原因。 农村社区的诊断发现，家长缺乏对自闭症谱系障碍 (ASD) 的了解，家长之间犹豫不决 支持者诊断患有自闭症谱系障碍的幼儿，并且缺乏有关应采取的步骤的知识 对孩子进行 ASD 测试是解决 ASD 相关问题的重要因素。 为了解决农村社区的差异，我们创建了一个网页，致力于帮助家庭和 受自闭症谱系障碍 (ASD) 影响的个人可以浏览诊断过程。 “入职”组织，也有寻找早期干预治疗的资源 靠近其家乡社区的中心，提供财务资源的链接以及 我们希望将我们的网页扩展为在线支持组织。 ASD 工具包将由有 ASD 孩子的农村家庭进行审查。 还为家庭提供了通过征求家庭意见来指导内容创作的机会 用户反馈问题和焦点小组的目标是创建一个易于使用的工具包。 使用乔治亚州农村自闭症谱系障碍 (ASD) 生活和管理指南，该指南的见解来自于 我们还将创建一个有关 ASD 诊断和治疗的在线课程。 我们将根据受自闭症谱系障碍 (ASD) 影响的家庭的意见为农村医生提供资源。 将通过用户反馈问题和 ASD 邀请我们的目标医生提供反馈 最终，我们将使用我们在课程中收到的医生意见来开发。 将通过 ECHO 项目提供继续医学教育 (CME) 计划。