Children's Oncology Group NCI Community Oncology Research Program (NCORP) Research Base Grant

儿童肿瘤学组 NCI 社区肿瘤学研究计划 (NCORP) 研究基地拨款

基本信息

批准号：
10818193
负责人：
BRAD H POLLOCK
金额：
$ 17.89万
依托单位：
PUBLIC HEALTH INSTITUTE
依托单位国家：
美国
项目类别：
财政年份：
2014
资助国家：
美国
起止时间：
2014-08-01 至 2025-07-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10818193
关键词：
Acute Lymphocytic Leukemia Adolescent Affect Cancer Center Cancer Patient Characteristics Child Childhood Cancer Treatment Clinical Collaborations Communities Community Clinical Oncology Program Coping Behavior Equity Ethnic Origin Family Family Characteristics Financial Hardship Funding Future Goals Grant Inpatients Institution Intervention Knowledge Language Latina Latinx Malignant Childhood Neoplasm Minority National Cancer Institute Newly Diagnosed Outpatients Parents Participant Pediatric Oncology Group Physicians Population Protocols documentation Quality of life Reporting Research Risk Risk Factors Scientist Services Site Treatment Protocols Underserved Population United States Universities Visit base bilingualism cancer care cancer health disparity cancer site cancer therapy care delivery career experience financial toxicity forest improved medical schools programs psychological distress recruit screening tool treatment adherence

项目摘要

NCI Diversity Supplement Abstract This application is a diversity supplement to the Children’s Oncology Group (COG) National Cancer Institute (NCI) Community Oncology Research Program (NCORP) Research Base Grant (UG1CA189955). Financial distress in parents/guardians (“parents”) of children and adolescents undergoing treatment for ALL is being evaluated by the NCI approved protocol ACCL20N1CD that is funded under the COG NCORP Research Base Grant. This COG parent protocol leverages the NCORP network to collaborate with Community and Minority/Underserved pediatric cancer institutions across the U.S. to recruit diverse participants and improve the generalizability of the research findings. Financial distress is the psychological distress related to money resulting from harmful financial burden of cancer care. ALL is the most common type of childhood cancer with treatment requiring over two years of frequent outpatient and inpatient visits. This prolonged and complicated treatment regimen contributes to financial toxicity and financial distress. Financial distress may then precipitate financial coping behaviors that negatively impact cancer treatment adherence. Certain family characteristics, such as Latinx ethnicity or preferred language other than English, are associated with a greater risk of financial distress. The knowledge of Latinx ethnicity or preferred language other than English as risk factors for financial distress and the overall clinical impact of financial distress in childhood cancer is limited. Joanna Robles, MD, is a bilingual Latina early career physician scientist at Wake Forest University School of Medicine, with a background in pediatric cancer disparities and a long-term goal of improving equitable cancer care delivery and quality of life for underserved populations. As a diversity supplement to the parent protocol, she proposes to: 1) To qualitatively explore the experiences of language and cultural barriers on Latinx and/or Spanish-speaking parents regarding financial burden including financial distress screening and financial navigation services provided during their child’s treatment for ALL, 2) To describe characteristics of financial distress screening and financial navigation at NCORP sites that serve pediatric cancer patients. Our hypothesis is that pediatric cancer sites serving higher percentages of Latinx and Spanish-speaking populations will be less likely to provide financial distress screening and navigation services and Latinx and/or Spanish-speaking parents will report financial distress is increased by cultural and language barriers. The findings from this supplement will highlight potential opportunities for future interventions targeting financial distress in Latinx families of children undergoing pediatric cancer treatment.

NCI多样性补充摘要该应用是儿童肿瘤学小组（COG）国家癌症研究所的多样性补充（NCI）社区肿瘤研究计划（NCORP）研究基础赠款（UG1CA189955）。金融的正在接受治疗的儿童和青少年的父母/监护人（“父母”）的困扰由NCI批准的协议ACCL20N1CD评估，该协议由COG NCORP研究基础资助授予。该COG父母协议利用NCORP网络与社区合作，并美国各地的少数民族/服务不足的小儿癌症机构招募潜水员参与者并改善研究结果的普遍性。财务困境是与有害金融伯恩（Burnen）造成的金钱有关的心理困扰癌症护理。所有这些都是最常见的儿童癌类型，需要两年以上的治疗经常门诊和住院访问。这种延长且复杂的治疗方案有助于财务毒性和财务困境。然后，财务困扰可能会促成财务应对行为负面影响癌症治疗依从性。某些家庭特征，例如拉丁裔种族或除英语以外的首选语言与更大的财务困扰风险有关。知识拉丁人种族或英语以外的首选语言作为财务困扰的风险因素和整体财务困扰对儿童癌症的临床影响有限。医学博士Joanna Robles是Wake Forest University的双语Latina早期职业生涯科学家医学院，具有儿科癌症差异的背景以及改善的长期目标服务不足的人群的公平癌症护理和生活质量。作为多样性补充父母协议，她提出：1）定性探讨语言和文化障碍的经验关于拉丁裔和/或讲西班牙语的父母关于财务燃烧，包括财务困扰筛查以及在孩子的所有人治疗期间提供的金融导航服务，2）描述特征在为儿科癌症患者服务的NCORP网站上进行财务困扰筛查和财务导航的范围。我们的假设是，小儿癌症网站为拉丁裔和讲西班牙语的比例更高人口不太可能提供财务困扰筛查和导航服务以及拉丁裔和/或讲西班牙语的父母将通过文化和语言障碍增加财务困扰。这这种补充的发现将突出针对财务的未来干预措施的潜在机会接受小儿癌症治疗的儿童的拉丁裔家庭的困扰。