Mobile Self-Management of Irritable Bowel Syndrome for Adolescents

青少年肠易激综合症的移动自我管理

• 批准号: 8900428
• 负责人: Elizabeth Anna Donovan
• 金额: $ 22.5万
• 依托单位: BODIMOJO, INC
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-04-10 至 2016-09-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8900428
• 关键词: 3-Dimensional; Abdominal Pain; Absenteeism; Adherence; Adolescent; Adopted; Adult; Age; Anxiety; Applications Grants; Behavior; Behavioral; Candy; Car Phone; Caregivers; Cellular Phone; Childhood; Chronic; Cognitive; Cognitive Therapy; Common Cold; Complement; Complex; Computational algorithm; Development; Devices; Diarrhea; Direct Costs; Disease; Emotional; Empathy; Facilities and Administrative Costs; Family; Fright; Functional disorder; Funding; Future; Goals; Habits; Health; Health Care Costs; Health Care Reform; Health Promotion; Health behavior; Health behavior change; Health system; Healthcare Systems; Home environment; Intervention; Interview; Intestines; Irritable Bowel Syndrome; Lead; Learning; Life; Loneliness; Medical; Mental Depression; Mind-Body Intervention; Modeling; Monitor; Nausea and Vomiting; North America; Outcome; Pain; Parents; Patients; Performance; Phase; Physicians; Population; Positioning Attribute; Prevalence; Provider; Public Health; Quality of Care; Quality of life; Randomized Controlled Trials; Regimen; Research; Resources; Schools; Self Care; Self Management; Shame; Small Business Innovation Research Grant; Social Functioning; Social isolation; Solutions; Symptoms; Technology; Teenagers; Testing; Time; Training; adolescent patient; base; cost; cost effective; design; evidence base; experience; health organization; improved; innovation; interdisciplinary treatment approach; mHealth; meetings; mindfulness; mobile application; programs; prototype; psychosocial; public health relevance; skills; social; social attachment; tool; virtual; web site; willingness

 DESCRIPTION (provided by applicant): The BodiMojo Buddy mobile app for adolescents with Irritable Bowel Syndrome (IBS) represents a significant new self-management tool that will educate adolescents, build self-care skills and complement patient-physician interactions. IBS is a common digestive condition among adolescents that has profound effects on adolescent quality of life. IBS and related functional bowel disorders have been ranked as a common cause of illness-related absenteeism, second only to the common cold (Cain et al., 2006). IBS is a complex, chronic, functional disorder that has no cure and is characterized by abdominal pain/discomfort and altered bowel habits; other symptoms may include nausea, vomiting, and bloating. Despite the fact that IBS is quite common-prevalence estimates in North America for adults and adolescents are between 10- 15 percent-there is remarkably little available to adolescents to help them self-manage the symptoms of IBS. The goal of this application is to develop a mobile self-management support intervention for adolescents living with IBS that can serve to increase patient engagement through interactive skill-building, self-care, and mindfulness- based cognitive behavioral activities. Evidence-based self-management support will be delivered to adolescents with IBS through a virtual coach or "embodied conversational agent" (ECA). Virtual coaches offer a number of advantages when incorporated into technology-based health interventions, such as: (1) creating empathy and social bonds that can serve to increase adherence to health regimens that are encouraged by the virtual coach; (2) they may be effective for maintaining a number of health behavior changes over a period of time; and (3) they may be well-suited to groups who experience shame about their medical condition, social isolation, and harbor worries about fitting in. This approach, therefore, may be especially helpful for adolescents with IBS. The specific goals of the proposed program are to enhance self-management of IBS through a virtual coach, the BodiMojo Buddy, and help caregivers reinforce their adolescent's self-care with support and health promotion materials. The feasibility of this intervention will be developed and evaluated through these specific aims: (1) conduct in-depth interviews to gather input from adolescents with IBS, caregivers, and providers to inform design and content of the mobile-based intervention; (2) create an educational content plan and emotional modeling technical specifications for the virtual coach; (3) develop the mobile app prototype and parent video tutorials; (4) conduct a pilot test of the BodiMojo Buddy prototype with adolescents who have IBS; (5) conduct acceptance testing with caregivers and providers.

 描述（由申请人提供）：BodiMojo Buddy 移动应用程序适用于患有肠易激综合症 (IBS) 的青少年，它是一种重要的新型自我管理工具，可教育青少年、自我培养护理技能并补充 IBS 的常见病患互动。青少年的消化系统疾病对青少年的生活质量有着深远的影响，IBS 和相关的功能性肠道疾病已被列为疾病相关缺勤的常见原因，仅次于普通感冒（Cain 等，2017）。 IBS 是一种复杂的慢性功能性疾病，无法治愈，其特征是腹痛/不适和排便习惯改变；尽管 IBS 相当严重，但其他症状可能包括恶心、呕吐和腹胀。北美成人和青少年的普遍患病率估计在 10% 到 15% 之间 - 很少有可供青少年自我管理 IBS 症状的方法。该应用程序的目标是开发一款移动设备。针对 IBS 青少年的自我管理支持干预，可以通过互动技能培养、自我护理和基于正念的认知行为活动来提高患者的参与度。虚拟教练或“具身对话代理”(ECA) 当纳入基于技术的健康干预措施时，虚拟教练具有许多优势，例如：(1) 建立同理心和社会纽带，有助于提高对健康养生法的依从性。受到虚拟教练的鼓励； (2) 它们可能在一段时间内有效地维持一些健康行为的改变；(3) 它们可能非常适合那些对自己的健康状况、社会孤立感感到羞耻并担心融入的群体；因此，这种方法可能特别有帮助。 该计划的具体目标是通过虚拟教练 BodiMojo Buddy 增强 IBS 的自我管理，并通过支持和健康促进材料帮助护理人员加强青少年的自我护理。将通过以下具体目标来制定和评估：(1) 进行深入访谈，收集患有 IBS 的青少年、护理人员和提供者的意见，为基于移动设备的干预措施的设计和内容提供信息；(2) 制定教育内容计划；和情感建模技术虚拟教练的规范；(3) 开发移动应用程序原型和家长视频教程；(4) 对患有 IBS 的青少年进行 BodiMojo Buddy 原型的试点测试；(5) 与护理人员和提供者进行验收测试。

项目成果

Pediatric Irritable Bowel Syndrome: Perspectives on Pain and Adolescent Social Functioning.

小儿肠易激综合症：疼痛和青少年社会功能的观点。

• 发表时间: 2019
• 作者: Donovan, Elizabeth;Martin, Sarah R;Lung, Kirsten;Evans, Subhadra;Seidman, Laura C;Cousineau, Tara M;Cook, Elizabeth;Zeltzer, Lonnie K
• 通讯作者: Zeltzer, Lonnie K