TeenMigraineConnection: Web-based self-management training for adolescents with m

TeenMigraineConnection：针对偏头痛青少年的基于网络的自我管理培训

基本信息

批准号：
8000212
负责人：
Elizabeth Anna Donovan
金额：
$ 26.47万
依托单位：
INFLEXXION, INC.
依托单位国家：
美国
项目类别：
财政年份：
2010
资助国家：
美国
起止时间：
2010-08-17 至 2011-07-16
项目状态：
已结题

项目摘要

DESCRIPTION (provided by applicant): Headache is a frequent health problem in children and adolescents (Winner & Rothner, 2001). The greatest impact on a child and caregiver is from migraine which can have a significant impact on disability (Hershey, et al., 2001), as well as quality of life (Powers, et al., 2004). For example, adolescents with migraine have lower grades at high school and are less likely to graduate from high school and attend college than adolescents without migraine (Rees & Sabia, 2009). Despite its prevalence and impact, pediatric migraine has received remarkably little attention and is commonly undiagnosed or misdiagnosed (Hershey & Winner, 2005). A number of health behavior changes can reduce migraine attack frequency, decrease the risk of migraine progression (Bigal, 2009) and significantly improve quality of life (Cottrell et al., 2007). Yet, little is available for this age group. We propose to develop an innovative, interactive, online pain self-management program for adolescents who suffer from migraines. This online health intervention, TeenMigraineConnection, will provide clinically reliable information about diagnosis, treatment, and management of migraine. Moreover, the use of Web 2.0 technology will enable the development of innovative features such as a headache diary that can be accessed through a mobile device to facilitate real-time updates; motivational, tailored information to increase self-efficacy for self-management behaviors, as well as video-based testimonies and social networking to enhance social support. On the caregiver side of the program, articles, lessons and tools will provide tailored information to help caregivers to reinforce adolescent self-management behaviors. Our review of websites suggests that no site currently offers this combination of empirically derived self-management features and cutting edge technologies. We believe the program will have a significant public health impact. With the overall total cost of migraine estimated at 13 to 15 billion dollars annually (Stewart, 2003), the program may improve quality of life for millions of adolescents while addressing risk factors for progression into adulthood, thus lowering this considerable cost. The content of this on-line health intervention will be developed and evaluated through the following specific aims: (1) Gather Input from Adolescents with Migraine, Caregivers, and Migraine Experts about Design and Content of the Website and the Mobile Application; (2) Develop Content, Design, and Technology Development Plans; (3) Develop Rapid Flash Prototype of Website and Paper-Prototyping of Mobile Application; (4) Conduct Usability and Acceptance Tests with Adolescent Patients and Caregivers, and (5) Conduct Acceptance Tests with Experts. PUBLIC HEALTH RELEVANCE: We propose to develop an interactive, online pain self-management program for adolescents with migraine and their caregivers. The program will include innovative features, including a headache diary that can be accessed through a mobile device to facilitate real-time updates; motivational, tailored information to increase self-efficacy for self-management behaviors, as well as video-based testimonies and social networking to enhance social support. Overall, TeenMigraineConnection represents a significant innovation that has the potential to have a dramatic public health impact by improving quality of life for millions of adolescents while addressing risk factors for progression into adulthood.

描述（由申请人提供）：头痛是儿童和青少年常见的健康问题（Winner & Rothner，2001）。对儿童和看护者影响最大的是偏头痛，它会对残疾（Hershey 等人，2001 年）以及生活质量（Powers 等人，2004 年）产生重大影响。例如，与没有偏头痛的青少年相比，患有偏头痛的青少年在高中的成绩较低，高中毕业和上大学的可能性也较小（Rees & Sabia，2009）。尽管小儿偏头痛很普遍，影响也很大，但它却很少受到关注，并且通常未被诊断或误诊（Hershey & Winner，2005）。许多健康行为的改变可以减少偏头痛发作频率，降低偏头痛进展的风险（Bigal，2009）并显着提高生活质量（Cottrell 等，2007）。然而，适合这个年龄段的东西却很少。我们建议为患有偏头痛的青少年开发一种创新、互动、在线疼痛自我管理计划。这种在线健康干预措施 TeenMigraineConnection 将提供有关偏头痛诊断、治疗和管理的临床可靠信息。而且，利用Web 2.0技术将能够开发创新功能，例如可以通过移动设备访问头痛日记，以方便实时更新；激励性的定制信息可提高自我管理行为的自我效能，以及基于视频的证词和社交网络可增强社会支持。在该计划的看护者方面，文章、课程和工具将提供量身定制的信息，帮助看护者加强青少年的自我管理行为。我们对网站的审查表明，目前没有网站提供这种根据经验得出的自我管理功能和尖端技术的组合。我们相信该计划将对公共卫生产生重大影响。由于偏头痛每年造成的总费用估计为 13 至 150 亿美元（Stewart，2003 年），该计划可以改善数百万青少年的生活质量，同时解决进入成年的风险因素，从而降低这一相当大的费用。该在线健康干预的内容将通过以下具体目标进行开发和评估： (1) 收集偏头痛青少年、护理人员和偏头痛专家对网站和移动应用程序的设计和内容的意见； (2) 制定内容、设计和技术开发计划； (3) 开发网站快速Flash原型和移动应用纸质原型； (4) 与青少年患者和护理人员一起进行可用性和验收测试，以及 (5) 与专家一起进行验收测试。公共健康相关性：我们建议为患有偏头痛的青少年及其照顾者开发一个交互式在线疼痛自我管理计划。该程序将包括创新功能，包括可通过移动设备访问以方便实时更新的头痛日记；激励性的定制信息可提高自我管理行为的自我效能，以及基于视频的证词和社交网络可增强社会支持。总体而言，TeenMigraineConnection 代表了一项重大创新，有可能通过改善数百万青少年的生活质量同时解决进入成年的风险因素来产生巨大的公共健康影响。