Refining a Driving Cessation Management Intervention for Person with Dementia and their Family Caregivers: CarFreeMe

为痴呆症患者及其家庭护理人员完善戒酒管理干预措施：CarFreeMe

• 批准号: 9975386
• 负责人: JOSEPH E. GAUGLER
• 金额: $ 19.5万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-05-15 至 2022-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9975386
• 关键词: Accidents; Address; Adult; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Australia; Automobile Driving; Automobiles; Behavioral; Caregiver Burden; Caregiver research; Caregivers; Caring; Clinical Trials Design; Cognitive; Collaborations; Collection; Communities; Consultations; Data; Data Element; Dementia; Dementia caregivers; Development; Disease; Elderly; Enrollment; Ensure; Environment; Evaluation; Family; Family Caregiver; Family dynamics; Future; Grief reaction; Healthcare Systems; Impaired cognition; Individual; International; Internet; Intervention; Joints; Measures; Memory Loss; Methods; Minnesota; Outcome; Personal Satisfaction; Persons; Phase; Population; Positioning Attribute; Prevalence; Provider; Psychosocial Assessment and Care; Queensland; Randomized; Randomized Controlled Trials; Readiness; Recommendation; Research; Research Personnel; Resources; Risk; Safety; Sampling; Self Efficacy; Symptoms; Telephone; Testing; Transportation; United States National Institutes of Health; Universities; base; care providers; care systems; dementia care; depressive symptoms; design; effective intervention; evidence base; family support; flexibility; improved; interest; novel; programs; prototype; psychosocial; response; social; social engagement; symposium

Project Summary/Abstract The loss of one’s ability to drive during the course of Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) may adversely influence sense of identity as well as independence, and descriptive research has emphasized the need for more individualized intervention approaches that emphasize relationships and support, family dynamics, grief, and community access options. However, there remain few rigorously designed or effective interventions that assist families navigate the challenges of driving cessation. Researchers from the University of Queensland (UQ) in Australia have developed a prototype driving cessation intervention for persons with AD/ADRD and their family caregivers called “CarFreeMe.” CarFreeMe is a seven- module program that is flexibly delivered either in-person or via telephone and is currently under evaluation in Australia. This proposed R21 will feature an international collaboration between the University of Minnesota and UQ to tailor and examine the feasibility of a novel adaption of CarFreeMe in the U.S to assist persons with AD/ADRD and their family caregivers manage the driving cessation transition in joint fashion. The Specific Aims are: 1) to develop and revise CarFreeMe among 20 persons with AD/ADRD and their caregivers in the U.S. A convergent parallel mixed methods design will be utilized to examine the administration of CarFreeMe for 20 family caregivers and persons with AD/ADRD over a 3-month period in Phase I. The findings will help to refine CarFreeMe, with a particular emphasis on tailoring the content for U.S. users; and 2) pilot-test a revised version of CarFreeMe over a 6-month period. A sequential explanatory mixed methods design will be utilized to pilot test CarFreeMe in Phase II. We will enroll 50 person with AD/ADRD and family caregiver dyads to participate in the intervention over a 6-month period. We will determine whether CarFreeMe is carried out as intended and is deemed feasible, acceptable, and useful over a 6-month period. Identifying persons with AD/ADRD and family caregivers in the community struggling with driving cessation and enhancing access to professionals who offer consultation during this care transition address multiple national recommendations. If successful, the proposed R21 will position CarFreeMe for a subsequent randomized controlled evaluation and later as a flexible, much-needed evidence-based resource that healthcare systems and other providers could offer families during and after the driving cessation transition.

项目摘要/摘要 在阿尔茨海默氏病和阿尔茨海默氏病有关的过程中，一个人驾驶能力的丧失 痴呆症（AD/ADRD）可能会对身份和独立性和描述性影响不利 研究强调了强调更个性化的干预方法的必要性 人际关系和支持，家庭动态，贪婪和社区访问选择。但是，还有第二 严格设计或有效的干预措施，可以帮助家庭应对驾驶停止的挑战。 澳大利亚昆士兰州大学（UQ）的研究人员开发了一种原型驾驶暂停 为AD/ADRD及其家庭护理人员的干预称为“ Carfreeme”。 Carfreeme是一个七 模块程序可以灵活地面对面或通过电话进行，目前正在评估中 澳大利亚。拟议的R21将以明尼苏达大学之间的国际合作为特色 以及UQ量身定制和研究Carfreeme新颖适应的可行性，以帮助人们 AD/ADRD及其家庭护理人员以联合方式管理驾驶停止过渡。具体 目的是：1）在有20名广告/ADRD及其护理人员的人中开发和修改Carfreeme 美国将利用收敛的平行混合方法设计来检查Carfreeme的给药 在第1阶段的3个月内，有20位家庭护理人员和广告/ADRD的人 精炼Carfreeme，特别强调为美国用户定制内容； 2）试点测试 在6个月内的Carfreeme版本。顺序挖掘的混合方法设计将用于 II阶段的飞行员测试Carfreeme。我们将注册50名广告/ADRD和家庭护理人员二元组的人 在6个月内参加干预措施。我们将确定是否执行Carfreeme 在六个月的时间内，有意并被认为是可行的，可接受的和有用的。认同人 广告/adrd和社区中的家庭护理人员努力驾驶停止并增强进入 在此护理过渡期间提供咨询的专业人员介绍了多个国家建议。如果 成功的R21成功将Carfreeme定位为随后的随机对照评估和 后来，作为医疗保健系统和其他提供商可以的灵活，急需的循证资源 在驾驶停止过渡期间和之后为家庭提供。