The Residential Care Transition Module

住院护理过渡模块

基本信息

批准号：
10168229
负责人：
JOSEPH E. GAUGLER
金额：
$ 26.25万
依托单位：
UNIVERSITY OF MINNESOTA
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-06-01 至 2022-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10168229
关键词：
Address Administrative Supplement Admission activity Alzheimer&apos s Disease Alzheimer&apos s disease related dementia Assisted Living Facilities Buffers COVID-19 COVID-19 pandemic Caregiver Burden Caregiver support Caregivers Caring Clinical Research Collection Communication Communities Competence Consultations Control Groups Coping Skills Counseling Data Dementia Dementia caregivers Emotional Enrollment Environment Evaluation Family Family Caregiver Family member Health Impaired cognition Individual Institutionalization Intervention Interview Mental Depression Mental Health Methods Modeling Nursing Homes Outcome Parents Participant Personal Satisfaction Persons Preventive Randomized Randomized Controlled Trials Reporting Research Residential Treatment Role Self Efficacy Services Stress Structure Surveys Telephone Translating Treatment/Psychosocial Effects Visit care giving burden care recipients coping depressive symptoms design effective intervention emotional distress experience family caregiving health data improved insight instrumental activity of daily living interest longitudinal analysis longitudinal dataset memory care novel pandemic disease parent grant psychoeducation psychological distress psychosocial residential care facility response skills stressor success symposium therapy design treatment as usual treatment group trial design usual care arm

项目摘要

Parent Study Abstract Emerging research on family caregiving and institutionalization has found that families do not disengage from care responsibilities following relatives’ admissions to residential long-term care settings. Families instead remain involved in a spectrum of care activities ranging from instrumental activities of daily living to emotional support. Perhaps for these reasons, a number of studies have noted that caregiving stress, depression, or other key outcomes remain stable or sometimes increase following residential long-term care (RLTC) entry for certain types of caregivers. A few interventions have attempted to increase family involvement after institutionalization, but no rigorous studies have demonstrated that these interventions are effective in helping families navigate transitions to RLTC environments. The Residential Care Transition Module (RCTM) provides 6 formal sessions of consultation (one-to-one and family sessions) over a 4-month period to those family caregivers who have admitted a relative to a RLTC setting. In this randomized controlled trial, family members who have admitted a cognitively impaired relative to a RLTC setting will be randomly assigned to the RCTM [(n = 120)] or a usual care control condition [(n = 120)]. A mixed methods analysis will be used to pursue the following aims: Specific Aim 1) Assess whether the RCTM yields statistically significant reductions in family members’ primary subjective stress and negative mental health outcomes; Specific Aim 2) Determine whether family members who receive the RCTM will indicate statistically significant decreases in secondary role strains over a 12-month period when compared to usual care controls; Specific Aim 3) Determine whether RCTM family members report statistically significant decreases in residential care stress when compared to family members in the usual care control group; and Specific Aim 4) Delineate the mechanism of action of RCTM under conditions of high and low success by “embedding” qualitative components (30 semi-structured interviews) at the conclusion of the 12-month evaluation. The proposed project will fill an important clinical and research gap by evaluating a psychosocial intervention designed for families following RLTC placement that determines whether and how the RCTM can help families better navigate the residential care transitions of cognitively impaired relatives.

家长研究摘要关于家庭护理和制度化的新兴研究发现，家庭不会脱离亲戚接纳对居民的长期护理环境的关怀责任。家庭继续参与一系列护理活动，从日常生活的工具活动到情感支持。也许由于这些原因，许多研究指出，护理压力，抑郁或在住宅长期护理（RLTC）条目后，其他关键结果保持稳定或有时会增加某些类型的护理人员。一些干预措施试图增加家庭参与制度化，但没有严格的研究表明，这些干预措施有效地帮助家庭导航过渡到RLTC环境。住宅护理过渡模块（RCTM）提供6次正式咨询会议（一对一和家庭会议）在为期4个月的时间里，那些接受了RLTC的家庭护理人员环境。在这项随机对照试验中，接受认知障碍的家庭成员相对于 RLTC设置将随机分配到RCTM [（n = 120）]或通常的护理控制条件[（n = 120）]。混合方法分析将用于追求以下目的：具体目的1）评估是否是否 RCTM可在家庭成员的主要主观压力和负面的统计学上显着减少心理健康结果；具体目标2）确定接收RCTM的家庭成员是否会与相比通常的护理控制；特定目的3）确定RCTM家庭成员是否报告具有统计学意义与通常的护理对照组的家庭成员相比，居民护理压力的减少；和特定目的4）在高成功和低成功条件下描述RCTM的作用机理在12个月结束时，“嵌入”定性组件（30个半结构化访谈）评估。拟议的项目将通过评估社会心理来填补重要的临床和研究差距为RLTC放置后的家庭设计的干预措施决定了RCTM是否以及如何可以帮助家庭更好地在认知受损的亲戚的居民护理过渡中浏览。

项目成果

期刊论文数量（6）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Caring for a Relative With Dementia in Long-Term Care During the COVID-19 Pandemic: A Prospective Longitudinal Study.

DOI：
10.1093/geroni/igad034
发表时间：
2023
期刊：
INNOVATION IN AGING
影响因子：
7
作者：
Mitchell, Lauren L.;Horn, Brenna;Stabler, Henry;Birkeland, Robyn W.;Peterson, Colleen M.;Albers, Elle A.;Gaugler, Joseph E.
通讯作者：
Gaugler, Joseph E.

Caring for a Relative With Dementia in Long-Term Care During COVID-19.

DOI：
10.1016/j.jamda.2021.11.026
发表时间：
2022-03
期刊：
Journal of the American Medical Directors Association
影响因子：
7.6
作者：
Mitchell LL;Albers EA;Birkeland RW;Peterson CM;Stabler H;Horn B;Cha J;Drake A;Gaugler JE
通讯作者：
Gaugler JE

Transitioning to Long-Term Care: Family Caregiver Experiences of Dementia, Communities, and Counseling.

DOI：
10.1177/0898264320963588
发表时间：
2021-01
期刊：
Journal of aging and health
影响因子：
2.8
作者：
Zmora R;Statz TL;Birkeland RW;McCarron HR;Finlay JM;Rosebush CE;Gaugler JE
通讯作者：
Gaugler JE

A Qualitative Analysis of Mechanisms of Benefit in the Residential Care Transition Module: A Telehealth Intervention for Caregivers of Relatives With Dementia Living in Residential Long-Term Care.

DOI：
10.1177/00469580231217981
发表时间：
2023-01
期刊：
INQUIRY-THE JOURNAL OF HEALTH CARE ORGANIZATION PROVISION AND FINANCING
影响因子：
1.7
作者：
Albers, Elizabeth A.;Birkeland, Robyn W.;Louwagie, Katie W.;Yam, Hawking;Baker, Zachary G.;Mittelman, Mary S.;Gaugler, Joseph E.
通讯作者：
Gaugler, Joseph E.

Reimagining Family Involvement in Residential Long-Term Care.