iCanConnect: Using mHealth to Connect Physically Disabled Breast Cancer Patients with Matched Disabled Survivors

iCanConnect：利用移动医疗将身体残疾的乳腺癌患者与匹配的残疾幸存者联系起来

基本信息

批准号：
9044501
负责人：
David Victorson
金额：
$ 7.55万
依托单位：
NORTHWESTERN UNIVERSITY AT CHICAGO
依托单位国家：
美国
项目类别：
财政年份：
2015
资助国家：
美国
起止时间：
2015-09-24 至 2018-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9044501
关键词：
Address Advanced Malignant Neoplasm Affect Architecture Breast Cancer Patient Breast Cancer survivor Cancer Center Cancer Survivor Chicago Clinics and Hospitals Communities Control Groups Decision Making Development Devices Diagnosis Disabled Persons Distress Documentation Educational Activities Enrollment Family Feedback Focus Groups Friends Goals Health Illinois Individual Informatics Institutional Review Boards Intervention Interview Life Logistics Malignant Neoplasms Mediating Medical Staff Mentors Newly Diagnosed Outcome Outcome Assessment Paper Participant Patient Outcomes Assessments Patient Preferences Patients Personal Satisfaction Persons Phase Physically Handicapped Physicians Pilot Projects Population Psychosocial Factor Randomized Research Research Infrastructure Research Personnel Research Support Resources Review Literature Risk Sampling Secure Self Efficacy Services Social support Solutions Supportive care Survivors Tablet Computer Technology Testing Training Underserved Population Universities Visual Woman Work abstracting base cancer health disparity cancer therapy design disability experience functional disability health disparity health equity health related quality of life improved information gathering mHealth malignant breast neoplasm organizational structure outcome forecast peer physical conditioning preference programs prototype psychosocial quality assurance satisfaction skills social tool touchscreen treatment as usual treatment center usability user centered design

项目摘要

PROJECT SUMMARY/ABSTRACT BACKGROUND: Cancer and its treatment can significantly impact health-related quality of life (HRQOL), including psychosocial distress. This is particularly true for people with disabilities with breast cancer, an unrecognized health disparities population who already live with a thinner margin of health. People with the double whammy of pre-existing disability and breast cancer are at even greater risk for decreased physical well-being and HRQOL. One-to-one peer support has shown to be an effective way to address needed supports, and tailored mHealth technologies may offer a viable solution. OBJECTIVE: To build and pilot test a new mHealth support tool called “iCanConnect”, which will enable one-to-one peer support between women with physical disabilities who recently have been diagnosed with breast cancer (mentees) with matched breast cancer survivor peers (mentors). “I” represents the informatics component, “can” represents both cancer and ability, and “connect” is the purpose of the tool The goal of this study is to examine the preliminary efficacy of this support tool to improve the psychosocial wellbeing, social connectedness, treatment decision-making support, and HRQOL of women with existing physical disabilities who have been recently diagnosed with breast cancer. STUDY DESIGN: We will conduct our study in 4 distinct phases: During Phase 1, we will develop the collaborative capacity of the investigators and programs so that we acquire the skills and develop the organizational structure to conduct this work. During Phase 2, we will engage the disability and cancer communities. This includes a literature review, expert interviews (n=8), and patient focus groups (n=30) with the purpose exploring patient preferences and needs for supportive services, as well as potential barriers to mHealth use. During Phase 3, we will develop the iCanConnect intervention based on information gathered from the literature review, expert interviews, and focus groups. We will conduct usability test (n=10) and use the feedback to develop a more complete prototype to test in a small beta study (n=10). Finally, we will pilot test the complete tool with a small mixed sample of women (n=40) with pre-existing physical disabilities and recently diagnosed with cancer, to examine its feasibility, usability, acceptance, and satisfaction.

项目摘要/摘要背景：癌症及其治疗可以显着影响与健康相关的生活质量（HRQOL），包括社会心理困扰。对于患有乳腺癌残疾人的残疾人尤其如此无法识别的健康差异人群已经生活在健康边界较薄的地方。与人在一起的人预先存在的残疾和乳腺癌的双重打击甚至更大的身体风险幸福和hrqol。一对一的同伴支持已证明是解决所需的有效方法支持和量身定制的MHealth技术可能会提供可行的解决方案。目的：建立和试点测试新的MHealth支持工具称为“ icanconnect”，该工具将使女性之间一对一的同伴支持最近被诊断出患有乳腺癌的乳腺癌（受训者）的身体疾病癌症生存同龄人（导师）。 “ i”代表信息的组成部分，“ can”既代表癌症，又代表能力，“连接”是该工具的目的，该研究的目标是检查初步效率这种支持工具，以改善社会心理健康，社会联系，治疗决策支持，以及最近被诊断出患有身体疾病的妇女的HRQOL 乳腺癌。研究设计：我们将以4个不同的阶段进行研究：在第1阶段，我们将发展调查人员和计划的协作能力，以便我们获得技能并发展进行这项工作的组织结构。在第2阶段，我们将参与残疾和癌症社区。这包括文献综述，专家访谈（n = 8）和患者焦点小组（n = 30）目的探讨患者的偏好和支持服务的需求，以及潜在的障碍 MHealth使用。在第3阶段，我们将根据收集的信息开发Icanconnect干预措施摘自文献综述，专家访谈和焦点小组。我们将进行可用性测试（n = 10）并使用在小型Beta研究中开发更完整的原型的反馈（n = 10）。最后，我们将驾驶用一小部分妇女样本（n = 40）测试完整的工具，并具有现有的身体疾病和最近被诊断出患有癌症，以检查其可行性，可用性，接受性和满意度。