Full Project 1: WeCanManage: An mHealth self-management tool to empower survivors with disabilities due to the long-term effects of cancer and its treatment

完整项目 1：WeCanManage：一种移动医疗自我管理工具，为因癌症及其治疗的长期影响而致残的幸存者提供帮助

• 批准号: 10082864
• 负责人: David Victorson
• 金额: $ 6.07万
• 依托单位: NORTHWESTERN UNIVERSITY AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-09-24 至 2023-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10082864
• 关键词: Address; Affective; Anxiety; Cancer Intervention; Cancer Patient; Cancer Survivor; Cancer Survivorship; Chicago; Chronic; Classification; Clinical; Clinical Trials; Cognitive; Collection; Communities; Comprehensive Cancer Center; Computers; Data; Development; Disabled Persons; Distal; Evaluation; Fatigue; Foundations; Future; Grant; Health; Illinois; Intervention; Knowledge; Lead; Long-Term Effects; Malignant Neoplasms; Mindfulness Training; Mobile Health Application; Moods; Occupational Therapist; Pain; Patient Outcomes Assessments; Pattern; Phase; Pilot Projects; Plant Roots; Poaceae; Population; Practice Guidelines; Preparation; Problem Solving; Process; Psychologist; Randomized Clinical Trials; Research; Research Personnel; Research Project Grants; Sampling; Scientist; Self Efficacy; Self Management; Social Environment; Stress; Survivors; Symptoms; Technology; United States; Universities; World Health Organization; arm; behavior change; biopsychosocial; built environment; cancer care; community based participatory research; design; disability; evidence base; experience; health disparity; health equity; health related quality of life; innovation; international health organization; mHealth; member; mindfulness intervention; prototype; psychologic; research and development; response; satisfaction; self-management program; skills; smartphone Application; social; social cognitive theory; social engagement; social learning; symptom management; tool; usability; user centered design

ABSTRACT There are an estimated 16.9 million cancer survivors in the United States. Approximately 40% of cancer survivors live with long-term physical, cognitive, psychological and social consequences of cancer and its treatment, which can in turn lead to long-term disability. Research indicates that self-management interventions can help people, including those with cancer, acquire the knowledge and skills needed to manage symptoms like pain, fatigue, anxiety and decreased mood. Delivering self-management interventions via smartphone applications (also called mHealth apps) can get self-management tools in the hands of people who need them the most, including cancer survivors with disabilities. To date, no mHealth self-management apps have been developed to meet the needs of cancer survivors with disabilities. The purpose of this research and development study is to develop an innovative mHealth app, called WeCanManage (WCM), to empower cancer survivors with disabilities to proactively manage cancer and its consequences as a chronic condition. This community-based participatory research project will proceed in two phases. In phase I, we will use a user- centered design process to develop the WeCanManage tool in partnership with a team of survivor scientists (members of the grass-roots cancer survivor community) who will engage with the research team as co- researchers and co-developers of the WCM tool. In phase II, we will evaluate the feasibility, acceptance, and user satisfaction with a 4-week engagement period with the WeCanManage app among cancer survivors with disabilities (n=60). This rigorous development and evaluation process will lay the foundation for future clinical trial research. People with disabilities are an unrecognized health disparities population and are often excluded from the cancer health equity agenda. Indeed, cancer survivors indicate that their long-term disability needs are inadequately addressed across the cancer care and survivorship continuum. The WCM research project is an opportunity to enhance the cancer community’s understandings of this population and to develop evidence- informed interventions to better meet the needs of people with the ‘double whammy’ of cancer and disability. Rigorous research with people at the intersection of cancer and disability expands the Chicago Cancer Health Equity Collaborative’s impact on under-served communities and distinguishes it as a leader in inclusion and equity for all people, even those marginalized by their disability status.

抽象的 美国估计有1690万个癌症存活。大约40％的癌症 幸存者生活在癌症及其的长期身体，认知，心理和社会后果 治疗又可能导致长期残疾。研究表明自我管理干预措施 可以帮助人们，包括癌症患者，获得管理符号所需的知识和技能 像疼痛，疲劳，焦虑和情绪改善。通过智能手机提供自我管理干预措施 应用程序（也称为MHealth应用程序）可以在需要它们的人手中获得自我管理工具 最多的，包括残疾癌的生存。迄今为止，还没有MHealth自我管理应用程序 开发以满足癌症幸存者残疾的需求。这项研究的目的以及 开发研究是为了开发一个创新的MHealth应用程序，称为Wecanmanage（WCM），以增强癌症的能力 残疾的幸存者积极管理癌症及其作为慢性疾病的后果。这 基于社区的参与研究项目将分为两个阶段。在第一阶段，我们将使用用户 - 与幸存者科学家团队合作开发Wecanmanage工具的中心设计过程 （基层癌症生存社区的成员）将与研究团队互动 WCM工具的研究人员和共同开发人员。在第二阶段，我们将评估可行性，接受性和 在癌症存活中与Wecanmanage应用程序进行为期4周的订婚期间的用户满意度与 残疾（n = 60）。这种严格的发展和评估过程将为未来的临床奠定基础 试验研究。残疾人是未认可的健康差异人群，通常被排除在外 来自癌症健康公平议程。确实，癌症的存活表明他们的长期残疾需求是 在癌症护理和生存连续体中不充分解决。 WCM研究项目是 增强癌症界对该人群的理解并发展证据的机会 - 明智的干预措施，以更好地满足癌症和残疾的“两倍”人的需求。 在癌症与残疾人交汇处与人的严格研究扩大了芝加哥癌症健康 公平协作对服务不足社区的影响，并将其作为包容性领导者和 所有人的股权，甚至是那些因残疾状况而边缘化的人。