Community Core

社区核心

基本信息

批准号：
8426018
负责人：
CHRISTINE Makosky DALEY
金额：
$ 10.03万
依托单位：
UNIVERSITY OF KANSAS MEDICAL CENTER
依托单位国家：
美国
项目类别：
财政年份：
资助国家：
美国
起止时间：
至
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/8426018
关键词：
Address Adherence American Indians Annual Reports CCR Communities Community Health Community Networks Community Outreach Data Analyses Data Collection Education Ensure Extramural Activities Future Goals Government Agencies Health Health Services Accessibility Individual Institution Kansas Knowledge Lead Learning Malignant Neoplasms Medical Medical Research Medical Students Medical center Methods Modeling Monitor Newsletter Process Qualitative Methods Qualitative Research Reporting Research Research Design Research Methodology Research Personnel Research Project Grants Research Technics Resources Solid Students System Training Tribes Trust United States Universities Youth base burden of illness community based participatory research community organizations dissemination research health disparity high school meetings member outreach programs research study success university student web site

项目摘要

American Indians (AI) suffer some of the greatest cancer-related health disparities in the United States and are some of the least likely to participate in medical research. Barriers to participation include mistrust of the medical system, limited access to care, and limited culturally-appropriate resources. Effective research programs in AI communities often rely on a collaborative network of community and academic organizations, using community-based participatory research (CBPR) methods. A strong CBPR team based in the AI community and focused on reducing their disproportionate burden of disease has developed over the past four years at the University of Kansas Medical Center, the Program in American Indian Community Health. Our partnership with community organizations has been so successful that we have now formally created an alliance of partners, including tribes, community organizations, academic institutions, and corporations/government agencies, the American Indian Health Research and Education Alliance (AIHREA). We share a long-term goal of reducing health disparities in Al communities through quality participatory research. The primary goals of the Community Engagement Core are to ensure fidelity to the principles of CBPR and to ensure the rigor and validity of the qualitative research conducted through the CPC-AIHD. Our secondary goal is to ensure dissemination of research results, both positive and negative, to the community. The Community Engagement Core will address the following specific aims: 1) To monitor research conducted within the CPC-AIHD for adherence to the principles of CBPR; 2) To maintain longitudinal CABs to guide center activities; 3) To create a newsletter and an interactive web site for community members and researchers to communicate, disseminate information, and aid in recruitment; 4) To hold community research forums annually to bring researchers and community members together; 5) To bring 4 high school students, 4 undergraduate college students, and 4 graduate/medical students into research through our youth ambassadors programs in each year; 6) To provide rigorous qualitative data collection and analysis for all studies conducted in the AIHREA-CCR; and 7) To provide guidance on qualitative and formative research techniques and study design to all researchers associated with the CPC-AIHD.

美洲印第安人（AI）遭受了美国与癌症相关的一些最大的健康差异，并且是一些参与医学研究的可能性最小的。参与的障碍包括对医疗系统的不信任，有限的护理机会以及有限的文化资源。 AI社区的有效研究计划通常使用基于社区的参与性研究（CBPR）方法依赖社区和学术组织的协作网络。一支基于AI社区的强大CBPR团队，专注于减轻其疾病负担不成比例的负担在堪萨斯大学医学中心（University Center of Anter Indish Community Health）的堪萨斯大学医学中心四年。我们与社区组织的合作关系非常成功，以至于我们现在正式建立了一个合作伙伴联盟，包括部落，社区组织，学术机构以及公司/政府机构，美洲印第安人健康研究与教育联盟（AIHREA）。我们有一个长期目标，即通过质量参与性研究来减少AL社区的健康差异。社区参与核心的主要目标是确保忠于CBPR原则，并确保通过CPC-AIHD进行的定性研究的严格和有效性。我们的次要目标是确保向社区传播积极和负面的研究结果。社区参与核心将解决以下具体目标：1）监测CPC-AIHD中进行的研究以遵守CBPR原则； 2）维护纵向驾驶室以指导中心活动； 3）创建新闻通讯和一个互动网站，供社区成员和研究人员沟通，传播信息并帮助招聘； 4）每年举行社区研究论坛，以将研究人员和社区成员聚集在一起； 5）每年通过我们的青年大使计划带来4名高中生，4名大学生和4名研究生/医学生的研究生； 6）为AIHREA-CCR中进行的所有研究提供严格的定性数据收集和分析； 7）为与CPC-AIHD相关的所有研究人员提供有关定性和形成性研究技术和研究设计的指导。