Enhancing American Indian Caregiver Mastery through a Savvy Caregiver Peer Program

通过精明的护理人员同伴计划提高美洲印第安人护理人员的掌握程度

• 批准号: 10806587
• 负责人: JORDAN Paul LEWIS
• 金额: $ 71.1万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-30 至 2028-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10806587
• 关键词: Address; Adherence; Adverse event; Aging; Alzheimer' s Disease; American Indians; Buffers; Caregiver research; Caregiver support; Caregiver well-being; Caregivers; Caring; Communities; Control Groups; Coping Skills; Country; Data; Dementia; Dementia caregivers; Development; Disease Management; Dissemination and Implementation; Education; Educational Curriculum; Educational Materials; Effectiveness; Elements; Empathy; Enrollment; Ensure; Exercise; Family Caregiver; Feeling; Future; Goals; Health; Health behavior; Home; Hour; Hybrids; Indigenous; Infrastructure; Intervention; Knowledge; Learning; Literature; Measures; Mediating; Mediation; Medical; Memory; Mental Depression; Mentorship; Minnesota; Modeling; Outcome; Participant; Personal Satisfaction; Persons; Pilot Projects; Play; Population; Preparation; Productivity; Protocols documentation; Quality of Care; Quality of life; Randomized; Randomized, Controlled Trials; Recommendation; Reporting; Research; Resources; Role; Safety; Self Efficacy; Social support; Stress; Structure; Support Groups; Testing; Time; Training; Training and Education; Uncertainty; White Earth; Work; acceptability and feasibility; arm; behavior change; caregiver education; caregiver interventions; caregiving; community based participatory research; community engagement; community living; cost effective; cultural values; design; effectiveness evaluation; evidence base; expectation; experience; health care availability; improved; indigenous community; insight; interest; intergenerational; knowledge translation; member; peer; peer coaching; peer support; physical conditioning; programs; prototype; psychoeducation; psychoeducational; psychoeducational intervention; psychosocial; randomized, clinical trials; recruit; skills; social; social cognitive theory; theories; transmission process; uptake

Enhancing American Indian Caregiver Mastery through a Savvy Caregiver Program-Peer addresses the growing number of American Indian caregivers with limited knowledge of dementia. The high level of burden associated with providing care for those with dementia, along with uncertainty about managing disease conditions, problems with different psychosocial aspects of care, lack of culturally responsive training and education materials results in caregivers reporting feelings of isolation and depression. Despite the unique needs of American Indian caregivers, few resources support this group in a culturally appropriate way. The Savvy Caregiver Program is a multi-component, psychoeducational program consisting of 6 weekly 2-hour sessions for family caregivers of people living with dementia at home. Informed by Stress Mediation and Social Cognitive Theories, the Savvy Caregiver Program was developed to alleviate caregiving strains and strengthen knowledge, skills, and outlook through classes, interactive exercises, and home assignments. This study will use a community-based participatory research framework to enhance the Savvy Caregiver Program by adding a peer-based educational and support component, referred to as the Savvy Caregiver Peer Program, that incorporates Stress Mediation and Generativity Theories. Six sequential talking circles will be held with 5-8 previous American Indian dementia caregivers who are enrolled members of White Earth Nation (Aim 1) to develop the Savvy Caregiver Peer Program prototype. Participants will review the Savvy Caregiver Program curriculum and discuss the roles and expectations of peer mentors in the program, including peer selection, training, and a management structure to oversee peer mentors and caregiver engagement. The 6 planning and design talking circles will gather strategic, culturally appropriate information to (1) provide the peer mentors with an opportunity to directly define their role and expectations as part of the Savvy Caregiver Peer Program; (2) educate peers on the Savvy Caregiver Program core elements and their role in supporting the materials; and (3) gather insights about the peer mentor material to be provided to the caregiver. Upon completion of the sequential talking circles and development of the Savvy Caregiver Program-Peer training materials and infrastructure, a parallel arm randomized clinical trial of 30 caregivers (20 to intervention, 10 to control group) will be conducted for 12 weeks (6 biweekly sessions) (Aim 2). Qualitative and quantitative data from peer mentors and caregivers will be collected to assess the feasibility and acceptability of recruitment, randomization, intervention adherence, and administration of caregiver measures. During Year 4 (Aim 3), we will host talking circles to engage caregivers and peer mentors in the refinement and improvement of the Savvy Caregiver Program-Peer in preparation for testing in a larger, subsequent randomized clinical trial. This study will contribute cultural and contextual knowledge to inform the eventual development of caregiver interventions grounded in cultural values to improve the quality of life and outcomes for American Indian dementia caregivers.

通过精明的护理人员计划来加强美洲印第安人的护理人员，以解决 越来越多的美洲印第安人护理人员对痴呆症的了解有限。高水平的负担 与为患有痴呆症患者提供护理，以及管理疾病的不确定性 条件，护理的不同心理社会方面的问题，缺乏文化反应迅速的培训和 教育材料导致护理人员报告孤立和抑郁的感觉。尽管有独特的需求 在美洲印第安人的看护人中，很少有资源以适当的文化方式支持该群体。精明的 护理人员计划是一项多功能，心理教育计划，由6个每周2小时的课程组成 家里患有痴呆症的人的家庭护理人员。通过压力调解和社会认知来告知 理论，精明的护理人员计划是为了减轻护理人物和加强知识， 通过课堂，互动练习和家庭作业的技能和前景。 这项研究将使用社区的参与研究框架来增强精明的照顾者 通过添加基于同行的教育和支持组成部分的程序，称为精明的照顾者同伴 程序，结合了应力调解和发电性理论。将举行六个顺序的会话 有5-8个以前的美国印度痴呆症护理人员，他们是怀特地球国家的成员（AIM 1）开发精明的护理人员同行计划原型。参与者将审查精明的护理人员计划 课程并讨论同伴导师在计划中的角色和期望，包括同行选择， 培训以及管理同伴导师和照料者参与的管理结构。 6计划和 设计会话圈子将收集战略性，文化适当的信息，以（1）为同伴导师提供 有机会直接定义自己的角色和期望，作为精明的照顾者同伴计划的一部分； （2） 教育同龄人关于精明的照顾者计划核心要素及其在支持材料中的作用； （3） 收集有关提供给护理人员的同伴导师材料的见解。顺序完成后 说话的圈子和精明的照顾者计划培训材料和基础设施的发展， 将进行30名护理人员的平行手臂随机临床试验（20至对照组10） 12周（6个每两周一次）（目标2）。来自同伴导师和看护人的定性和定量数据 将收集以评估招聘，随机化，干预依从性的可行性和可接受性， 和护理人员措施的管理。在第4年（AIM 3）期间，我们将主持谈话圈子以吸引护理人员 和对等导师在精明的护理人员计划中的改进和改进，以准备 在较大的随后的随机临床试验中进行测试。这项研究将贡献文化和背景 知识以告知最终以基于文化价值为基础的护理人员干预措施的发展 美洲印第安痴呆症护理人员的生活质量和成果。