Communic-Aid

通讯援助

• 批准号: 7393942
• 负责人: CYNTHIA D BAKER
• 金额: $ 10万
• 依托单位: DANYA INTERNATIONAL, INC.
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-04-10 至 2009-04-09
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7393942
• 关键词: Anxiety; Awareness; Books; Caring; Cessation of life; Child; Childhood; Clinical; Communication; Development; Effectiveness; Environment; Evaluation; Face; Family; Family member; Feasibility Studies; Field Reports; Film; Focus Groups; Goals; Health Personnel; Hospice Care; Hospitals; Institute of Medicine (U.S.); Institution; International; Intervention; Life; Life Experience; Literature; Medical; Multimedia; Needs Assessment; Palliative Care; Pamphlets; Parents; Pediatric Hospitals; Pediatric Nurse Specialist; Phase; Principal Investigator; Professional counselor; Provider; Psychologist; Purpose; Quality of life; Regrets; Research; Research Personnel; Research Project Grants; Research Proposals; Resources; School-Age Population; Services; Siblings; Small Business Innovation Research Grant; Social Workers; Structure; Suggestion; Taxes; Techniques; Therapeutic; Work; advocacy organizations; base; coping; design; guidebooks; hospice environment; improved; innovation; member; prevent; programs; prototype; tool

DESCRIPTION (provided by applicant): In this Phase I SBIR grant, Danya International, Inc., proposes the development and evaluation of the Communic-Aid program, a practical, innovative, and comprehensive resource for parents, group facilitators, and direct care providers to support engagement of family communication with a school-age child with a life threatening illness (LTI). Parents of children with LTI face many significant and important questions; one of these questions-should I, or should I not, talk about death with my child?-is the central concern of this proposed work. Therefore, the goal of this project is to develop and evaluate a family-centered intervention that will increase positive communication among family members about LTIs, death, and dying. The proposed product will be designed as a multimedia program, including: a parent guidebook that can be used as a self directed support tool by parents or as a facilitator-led, group-based tool; a children's activity book; a video/DVD; an accompanying booklet for institutions and direct care providers; and a facilitator's guide for providers (e.g., child life specialists, pediatric nurses, psychologists, social workers) implementing the program in a group setting. During the Phase I period, the research team will complete intensive formative research through input from our partners, Content Advisors and Advisory Panel members; a needs assessment with various hospice and hospital programs; and formative research focus groups with parents. Content will be developed for the first two modules, "In the Beginning" and "Collaborating with Medical Teams," of the parent guidebook. Outlines for the child's activity book and the provider facilitator's guide will also be developed. A feasibility study will be conducted to determine the appropriateness and viability of the prototype. Phase II will involve the completion of content for the parent guidebook and child activity book, filming the video/DVD component, development and completion of the provider booklet and facilitator's guide, as well as a full-scale evaluation of the Communic-Aid product to assess its effectiveness in improving family communication. Open family communication is a critical and widely recommended support mechanism for families enduring the difficulty of LTIs in children. This practical and innovative program will fill an unmet need in the pediatric hospice and palliative care field.

描述（由申请人提供）：在这一第一阶段SBIR Grant，Danya International，Inc。，提议开发和评估通信辅助计划，该计划是一种实用，创新的和全面的资源，用于父母，团体主持人和直接护理提供者，以支持与家庭年龄段儿童的家庭交流（LTI）（LTI）（LTI）。 LTI儿童的父母面临许多重大而重要的问题；这些问题之一我应该和我的孩子谈论死亡吗？ - 这是这项拟议工作的核心关注点。因此，该项目的目的是开发和评估以家庭为中心的干预措施，该干预措施将增加家庭成员在LTI，死亡和垂死的家庭成员之间的积极沟通。拟议的产品将被设计为多媒体程序，包括：父母可以用作父母或以促进者为基础的基于团体的工具的父母指南；儿童活动书；视频/DVD;一本机构和直接护理提供者的小册子；以及为提供者（例如，儿童生活专家，儿科护士，心理学家，社会工作者）实施该计划的提供者的主持人指南。 在第一阶段期间，研究团队将通过我们的合作伙伴，内容顾问和咨询小组成员的意见来完成深入的形成性研究；各种临终关怀和医院计划的需求评估；以及与父母的形成性研究焦点小组。内容将针对前两个模块开发，即“一开始”和“与医疗团队合作”的父母指南。还将开发有关儿童活动书和提供商主持人指南的概述。将进行一项可行性研究，以确定原型的适当性和可行性。第二阶段将涉及完成父母指南和儿童活动簿的内容，拍摄视频/DVD组件，提供商小册子和主持人指南的开发和完成，以及对通信产品的全面评估，以评估其在改善家庭沟通方面的有效性。 开放家庭交流是一种至关重要的，广泛建议的支持机制，用于承受儿童LTI困难的家庭。这个实用和创新的计划将满足儿科临终关怀和姑息治疗领域的未满足需求。