Comparing Game Facilitated Interactivity to Genetic Counseling for Prenatal Screening Education

比较游戏促进的互动与产前筛查教育的遗传咨询

基本信息

批准号：
10491261
负责人：
ERIN ROTHWELL
金额：
$ 75.39万
依托单位：
UNIVERSITY OF UTAH
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-09-20 至 2025-06-30
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10491261
关键词：
Address Age American American College of Obstetricians and Gynecologists Appointment Area Birth Chromosome abnormality Clinic Clinic Visits Clinical Complex Conflict (Psychology)Couples Decision Making Discipline of obstetrics Education Educational Background First Pregnancy Trimester Genetic Genetic Counseling Genetic Risk Genetic Screening Healthcare Heritability Hour Individual Intervention Interview Knowledge Linguistics Measures Medical Methods Obesity Outcome Pamphlets Participant Patient Education Patients Perception Persons Pharmaceutical Preparations Play Population Pregnancy Pregnant Women Prenatal Genetic Counseling Prenatal care Professional counselor Provider Randomized Research Risk Rural Rural Population Sampling Site Surveys Technology Testing Thinness Time Underrepresented Populations Video Games Woman base boys care providers compare effectiveness design diabetes management effectiveness evaluation frontier group intervention health literacy high risk improved innovation novel preference pregnant prenatal prenatal testing recruit risk perception rural area satisfaction screening shared decision making telehealth theories tool treatment as usual uptake urban area

项目摘要

PROJECT SUMMARY Advancements in prenatal genetic screening have significantly improved the identification of chromosomal abnormalities and heritable conditions during pregnancy, yet current standards for patient education in this domain are largely ineffective. Further, the American College of Obstetricians and Gynecologists recommends prenatal care providers offer all women prenatal genetic screening in the first trimester of pregnancy, regardless of age or genetic risk status. This has moved the focus of prenatal screening from a subset of higher risk couples to all pregnant couples. Classically, information in the clinic has been transferred by written materials and discussions with providers. This approach has a number of weaknesses, including limited time, biases presented by provider perceptions of risk level, and limited genetic knowledge of clinicians. These factors may also contribute to disparities in screening uptake among under-represented populations during pregnancy. The most effective approach to education about prenatal screening, is one-on-one genetic counseling, but due to the limited number of counselors this is not feasible, especially in rural and frontier areas. New innovative education games offer promise to more effectively address gaps in healthcare decision- making. About 59% of all Americans play video games and most of them play for at least three hours per week. In fact, women age 18 or older represent a significantly greater portion of the game-playing population (44%) than boys 18 or younger (17%). Game technology can display complex information in a culturally and linguistically appropriate format to individuals of diverse educational backgrounds that make them ideal for clinical settings especially among low health literacy populations. Aim 1: To compare the effectiveness of a prenatal screening education game to improve knowledge and reduce decisional conflict among underrepresented women with a diverse range of health literacy levels of pregnant women. Aim 2: To assess the effectiveness of the prenatal screening education game to promote shared decision making with providers compared to enhanced usual care (an interactive pdf of the clinic's brochure) or one-on-one genetic counseling (in-person or tele-health). Aim 3: To compare the effectiveness of a prenatal screening education game to improve knowledge and reduce decisional conflict among partners of pregnant women.

项目概要产前基因筛查的进步显着提高了染色体的鉴定怀孕期间的异常和遗传性疾病，但目前这方面的患者教育标准域基本上无效。此外，美国妇产科学院建议产前护理提供者在怀孕的前三个月为所有女性提供产前基因筛查，无论年龄或遗传风险状况如何。这将产前筛查的重点从较高级别的子集转移到了所有怀孕夫妇都有风险。传统上，诊所中的信息是通过书面形式传输的材料以及与提供商的讨论。这种方法有很多缺点，包括时间有限、提供者对风险水平的看法以及临床医生有限的遗传知识所带来的偏见。这些一些因素也可能导致代表性不足的人群在筛查接受率方面存在差异。怀孕。最有效的产前筛查教育方法是一对一的遗传筛查咨询，但由于咨询师数量有限，这是不可行的，特别是在农村和边境地区。新的创新教育游戏有望更有效地解决医疗保健决策中的差距制作。大约 59% 的美国人玩电子游戏，其中大多数人每次玩电子游戏至少三个小时星期。事实上，18 岁或以上的女性在游戏人口中所占比例要大得多 (44%) 高于 18 岁或以下的男孩 (17%)。游戏技术可以以文化和文化的方式展示复杂的信息语言上适合不同教育背景的个人的格式，使他们成为理想的选择临床环境，尤其是健康素养较低的人群。目标 1：比较方法的有效性产前筛查教育游戏，以提高知识并减少决策冲突孕妇健康素养水平参差不齐。目标 2：评估产前筛查教育游戏促进与提供者共同决策的有效性与强化常规护理（诊所手册的交互式 PDF）或一对一遗传咨询相比（亲自或远程医疗）。目标 3：比较产前筛查教育游戏与提高孕妇伴侣之间的知识并减少决策冲突。