NNLM All of Us Program Center

NNLM 我们所有人计划中心

• 批准号: 10489904
• 负责人: RENAE E BARGER
• 金额: $ 408.7万
• 依托单位: UNIVERSITY OF PITTSBURGH AT PITTSBURGH
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-05-10 至 2026-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10489904
• 关键词: Address; All of Us Research Program; Area; Award; Awareness; Biomedical Research; Clinical Research; Collaborations; Communities; Community Health; Comprehension; Country; Data; Decision Making; Development; E-learning; Ecosystem; Ensure; Environment; Evaluation; Foundations; Funding; Goals; Health; Healthcare; Human Resources; Individual; Information Resources; Institution; Iowa; Language; Learning; Libraries; Linguistics; Maintenance; Medicine; Methods; Monitor; Population; Program Development; Program Effectiveness; Public Health; Publications; Recording of previous events; Reproduction; Research; Resources; Role; Science; Secure; Services; Specialist; Technology; Time; Training; Training Support; Training and Education; Underrepresented Populations; United States National Institutes of Health; United States National Library of Medicine; Universities; Work; base; community based participatory research; community engagement; community organizations; design; digital; digital health; diversity and equity; effectiveness evaluation; experience; health literacy; human centered design; improved; innovation; interest; learning strategy; literacy; member; novel; precision medicine; programs; skills; tool

The proposed “Network of the National Library of Medicine (NNLM) All of Us Program Center (NAPC)” will leverage a multi-year history of productive collaboration between two primary institutions, the University of Pittsburgh and the University of Iowa, to employ an enhanced “team science” approach to address the community engagement, training, and education needs of the NNLM All of Us Program. The NAPC serves a critical role in coordinating engagement, programs, partnerships, activities, and training offered by NNLM in support of the NIH All of Us Research Program. NAPC will develop and distribute a robust portfolio of community-based programs and services, create opportunities for national and regional engagement, and build relationships within NNLM and the All of Us Ecosystem. In doing so NAPC ensures that NNLM members can build capacity to improve health, digital, and research literacy in their communities, and that individuals, particularly populations underrepresented in biomedical research (UBR), will have access to the knowledge, resources, and skills necessary to understand precision medicine and participate in All of Us. As previous NNLM All of Us pilot program awardees, the University of Pittsburgh and the University of Iowa bring a unique understanding of the complexity of the program, quality and experienced personnel, and existing professional relationships with NNLM, the All of Us Ecosystem, public libraries, and community organizations. Together, these two institutions will create a dynamic and collaborative research environment, provide high-quality innovative program deliverables, and implement innovative workflows, mechanisms, and initiatives to grow the NNLM All of Us Program. The NAPC will continue to build on the work of the NNLM All of Us pilot by using data-informed methods and tools to identify new opportunities to reach diverse communities and organizations with little previous engagement. We will increase capacity, programming, and engagement opportunities around health, digital, and research literacy. We will continue to assess and support the training and education needs of the All of Us consortium and advance the science of engagement, community-based participatory research, and human-centered design through training, publications, presentations, and other modes of dissemination so that others can incorporate NAPC best practices into their training and community engagement programs. The NAPC has three overarching aims to accomplish the goals of the NNLM All of Us Program: 1. Increase All of Us learning options for a wide variety of audiences in cooperation with community partners, NNLM, the All of Us Consortium Training Board, and the All of Us Ecosystem. 2. Raise awareness of and interest in All of Us. 3. Build capacity to improve the public’s knowledge, resources, and skills to make informed decisions about health, contribute to research, and engage with digital health information and research.

拟议的“国家医学图书馆 (NNLM) 所有人计划中心 (NAPC) 网络”将 利用两个主要机构之间多年富有成效的合作历史， 匹兹堡和爱荷华大学采用增强的“团队科学”方法来解决 NNLM 我们所有人计划的社区参与、培训和教育需求 NAPC 服务于： 在协调 NNLM 提供的参与、计划、伙伴关系、活动和培训方面发挥着关键作用 NIH 全体研究计划的支持将开发和分发强大的产品组合。 基于社区的计划和服务，为国家和区域参与创造机会，并建立 NNLM 和 All of Us 生态系统内的关系 NAPC 以此确保 NNLM 成员能够。 建设能力以提高社区的健康、数字和研究素养，并且个人， 特别是在生物医学研究（UBR）中代表性不足的人群，将有机会获得知识， 了解精准医学和参与“我们所有人”所需的资源和技能。 作为之前的 NNLM All of Us 试点计划获奖者，匹兹堡大学和爱荷华大学 对项目的复杂性、质量和经验丰富的人员有独特的理解，并且 与 NNLM、All of Us 生态系统、公共图书馆和社区的现有专业关系 这两个机构将共同创造一个充满活力的协作研究环境， 提供高质量的创新项目成果，实施创新的工作流程、机制和 NAPC 将继续以 NNLM All of Us 的工作为基础。 我们通过使用基于数据的方法和工具进行试点，以确定接触多元化社区的新机会 我们将增加能力、规划和参与度。 我们将继续评估和支持培训。 和我们所有人联盟的教育需求，并推进参与科学、基于社区的 通过培训、出版物、演示和其他方式进行参与式研究和以人为本的设计 传播方式，以便其他人可以将 NAPC 最佳实践纳入他们的培训和社区 参与计划。 NAPC 有三个总体目标来实现 NNLM 所有人计划的目标： 1. 与社区合作伙伴合作，为广大受众增加“我们所有人”的学习选择， NNLM、All of Us 联盟培训委员会和 All of Us 生态系统。 2. 提高对我们所有人的认识和兴趣。 3. 建设能力以提高公众的知识、资源和技能，以做出明智的决策 健康，为研究做出贡献，并参与数字健康信息和研究。