Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10439583
• 负责人: JOSHUA CHODOSH
• 金额: $ 26.18万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-05-01 至 2025-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10439583
• 关键词: African American; Alzheimer' s Disease; Alzheimer' s disease related dementia; Attention; Biological Markers; Black race; Clinical; Clinical Services; Clinical Trials; Collaborations; Communication; Communities; Community Health Aides; Community Services; Confidentiality of Patient Information; Cultural Diversity; Data; Detection; Disease; Disease Progression; Education; Educational workshop; Effectiveness; Electronic Health Record; Ensure; Evaluation; Event; Face; Feedback; Funding; Funding Opportunities; Goals; Growth; Health Fairs; Incidence; Institution; Investigation; Laboratories; Latino; Learning; Link; Mission; National Institute on Aging; New York; Outreach Research; Participant; Patients; Play; Population; Population Heterogeneity; Positioning Attribute; Prevalence; Program Development; Psychosocial Assessment and Care; Recruitment Activity; Registries; Relationship-Building; Research; Research Activity; Research Subject Recruitments; Research Subjects; Resources; Role; Services; Social Work; Students; System; Technology; Therapeutic Trials; Training; United States National Institutes of Health; Universities; Workforce Development; animation; base; biomedical referral center; clinical biomarkers; clinical center; cohort; community organizations; disease heterogeneity; education research; effective therapy; experience; human subject; improved; innovation; interest; meetings; member; neighborhood disadvantage; neuropathology; novel; outreach; peer; population based; prevent; programs; psychosocial; recruit; research and development; research study; response; underserved community

The growing incidence of Alzheimer's Disease and Alzheimer's disease Related Dementia (AD/ADRD) and the current demand and anticipated increase in the number of therapeutic trials and other ongoing investigations demands for more effective and efficient outreach, recruitment, and engagement. Consistent with the major goals of this FOA (RFA-AG-20-004), the AD/ADRD scientific and clinical community, and the New York University (NYU) Alzheimer's Disease Research Center (ADRC) for early disease detection, identification of disease heterogeneity, and developing effective therapies to prevent or delay disease progression, the Outreach, Recruitment and Engagement (ORE) Core is well positioned to serve as the outward face of the NYU Alzheimer's Disease Research Center (ADRC). The ORE Core will continue its collaboration with other NYU Centers, ADRCs, and the larger scientific community in support of disseminating ADRC-related discoveries from the Clinical, Biomarker, Neuropathology and Data and Statistical Cores. The ORE Core will also continue in its primary mission as the vehicle for recruitment and retention of research participants in the Clinical Core and affiliated AD/ADRD studies through community-based recruitment activities, through collaboration with NYU clinical services especially within disadvantaged neighborhoods, and through deployment of several new strategies to enhance recruitment and retention. To be most effective, we will develop innovative approaches that may increase the effectiveness and efficiency of recruitment and retention activities. This is particularly important for a culturally diverse population and will require multiple community organization collaborations and deployment of community health workers who are culturally concordant with those we seek to recruit. We will also utilize the myriad of Epic resources to conduct population-based recruitment through background analytics within the electronic health record system as well as messaging of potential patient subjects through Epic's MyChart while protecting patient confidentiality and avoiding the usual human subjects' requirements. We will rely heavily on our growing registry to ensure a larger “study-ready” population through a well-characterized group of subjects who may have specific participation interests and whose attention will be sustained by regular messages and dissemination of new research developments. The ORE core will also serve as a learning laboratory for these efforts to understand what is most effective and why. We will support national efforts in AD/ADRD research through close collaboration with the National Institute on Aging's Alzheimer's and related Dementias Education and Referral (ADEAR) Center by sharing our recruitment infographics, educational handouts, and video animations. The ORE Core will facilitate expansion of AD/ADRD research activities through engagement across the NYU campus and collaborating institutions, through research presentations and training sessions with professionals, and student-in-training workshops, while building relationships in underserved communities through community-located health fairs and related events.

阿尔茨海默氏病和阿尔茨海默氏病有关的痴呆症（AD/ADRD）和 当前的需求和预期的治疗试验数量和其他正在进行的调查的数量增加 要求更有效，有效的外展，招聘和参与。与专业一致 该FOA的目标（RFA-AG-20-004），AD/ADRD科学和临床社区以及纽约 大学（纽约大学）阿尔茨海默氏病研究中心（ADRC）用于早期疾病检测，鉴定 疾病异质性，并开发有效的疗法以预防或延迟疾病进展，外展， 招聘和参与（矿石）核心良好地成为纽约大学阿尔茨海默氏症的外表 疾病研究中心（ADRC）。矿石核心将继续与其他纽约大学中心合作， ADRC和更大的科学界支持向ADRC与ADRC相关的发现传播 临床，生物标志物，神经病理学以及数据以及统计核心。矿石核心也将继续 主要任务是招募和保留研究参与者在临床核心的工具和 通过基于社区的招聘活动，通过与纽约大学的合作，会员广告/ADRD研究 临床服务，尤其是在处境不利的社区内，并通过部署几个新的 加强招聘和保留的策略。为了最有效，我们将开发创新的方法 这可能会提高招聘和保留活动的有效性和效率。尤其是 对于文化多样化的人群至关重要，将需要多个社区组织的合作和 在文化上与我们寻求招募的社区卫生工作者的部署。我们将 还利用无数史诗般的资源通过背景分析进行基于人群的招聘 在电子健康记录系统中以及通过EPIC的潜在患者受试者的消息传递 Mychart在保护患者机密性并避免通常的人类受试者的要求的同时。我们将 严重依靠我们不断增长的注册表来确保通过良好的特征 可能具有特定参与兴趣并且将受到定期的注意力的主题群体 消息和新研究发展的传播。矿石核心也将作为学习 这些努力的实验室，以了解最有效的和原因。我们将支持国家努力 广告/ADRD研究通过与国家老年人的阿尔茨海默氏症及相关的国家研究所密切合作 通过分享我们的招聘信息图，教育，教育教育和转诊（ADEAR）中心 讲义和视频动画。矿石核心将通过 通过研究演示和培训，在纽约大学校园和合作机构进行合作 与专业人员和培训学生讲习班的会议，同时在服务不足的情况下建立关系 通过社区社区的健康展览会和相关活动的社区。