Enhancing Participation of Historically Minoritized Groups in Alzheimer Disease and Related Dementias Research

加强历史上少数群体对阿尔茨海默病和相关痴呆症研究的参与

• 批准号: 10752461
• 负责人: JOHN MORRIS
• 金额: $ 4.96万
• 依托单位: WASHINGTON UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-08-01 至 2024-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10752461
• 关键词: Address; Adopted; Advocate; African American; Alaska Native; Alzheimer' s Disease; Alzheimer' s disease related dementia; American Indians; Area; Asian; Behavioral; Biologic Characteristic; Black race; COVID-19 pandemic; Clergy; Clinical; Clinical Research; Committee Members; Communities; Data; Diagnosis; Disease; Educational workshop; Enrollment; Ensure; Ethnic Origin; Foundations; Funding; Health; Health Disparities Research; Heterogeneity; Hispanic; Individual; Language; Latina; Latino; Latinx; Leadership; Letters; Life Cycle Stages; Link; Literature; Minority Groups; Minority Recruitment; Missouri; Names; National Institute on Aging; Not Hispanic or Latino; Outcome; Participant; Persons; Phase; Prevention strategy; Process; Race; Recommendation; Research; Risk; Site; Socioeconomic Status; Translating; Translational Research; United States; Universities; Washington; Woman; Work; cohort; community engagement; demented; design; diversity and inclusion; ethnic difference; experience; follow-up; health equity; improved; member; minority communities; minority engagement; programs; racial difference; recruit; social determinants; social health determinants; structural health determinants; support network; symposium; volunteer

Project Summary/Abstract The national Conference, entitled “Enhancing Participation of Historically Minoritized Groups in Alzheimer Disease and Related Dementias Research”, proposed in this application represents the intentional (but COVID pandemic-delayed) follow-up to the 2018 national Workshop, “African American Participation in Alzheimer Research: Effective Strategies”, held at Washington University (WU) in St. Louis on October 10th, 2018. The Workshop was funded by R13 AG059415 (JC Morris, PI) and was hosted by WU’s Knight Alzheimer Disease Research Center (ADRC). The audience for the 2018 Workshop included representatives from national (e.g., the National Institute on Aging, the Alzheimer’s Association, and the AfricanAmericansAgainstAlzheimer’s Network) and St. Louis community (e.g., the African American Advisory Board for the Knight ADRC, the St. Louis Clergy Coalition, and the St. Louis Chapter of the Links, Inc.) organizations that are committed to improving diversity in research efforts to understand, reliably diagnose, and effectively treat Alzheimer Disease and Related Dementias (ADRD). However, the primary audience was the leadership of each of the NIA- funded ADRCs as the ADRC network supports the clinical cohorts that are recruited, enrolled, assessed, and longitudinally followed to provide the data and biospecimens that are essential for scientific studies in ADRD. The proposed Conference will be held at Washington University in St. Louis on October 12-13, 2023, to address the continuing lack in the ADRCs of coordinated strategies to ensure the appropriate recruitment, engagement, and retention of research participants from historically minoritized populations. There are four Conference objectives: 1) to have the ADRC network adopt uniform definitions, terms, and language for use for minoritized populations in ADRD research; 2) to review new batteries that obtain data on the social determinants of health that contribute to racial and ethnic differences in ADRD; 3) to encourage the ADRC network to address community-initiated research topics; and 4) to have the ADRC network incorporate a uniform framework to enhance the recruitment, engagement, and retention of persons from minoritized groups in ADRD research. To date, the proposed Conference has acceptances from 6 Moderators (2 women; 3 Black, 1 Asian; 1 Hispanic/Latinx) and 22 speakers (15 women; 8 Black, 3 Asian, 1 American Indian/Alaska Native; 2 Hispanic/Latino/x/a). The effective strategies developed by the Conference will be used by the ADRC network but also disseminated to the scientific community at large.

项目摘要/摘要 全国会议题为“增强了阿尔茨海默氏症历史少数团体的参与 疾病和相关痴呆症研究”，在本应用中提出的是有意的（但共同 大流行延误）2018年国家研讨会的后续活动，“非裔美国人参加阿尔茨海默氏症 研究：有效的策略”，2018年10月10日在圣路易斯华盛顿大学（WU）举行。 研讨会由R13 AG059415（JC Morris，PI）资助，由WU的骑士阿尔茨海默氏病主持 研究中心（ADRC）。 2018年研讨会的观众包括来自国家的代表（例如 美国国家老化研究所，阿尔茨海默氏症协会和非洲人裔美国人纳斯塔尔兹海默氏症 Network）和圣路易斯社区（例如。 路易斯·克莱尔吉联盟（Louis Clergy Coalition）和Links，Inc。的圣路易斯分会）致力于 改善研究工作的多样性，以理解，可靠地诊断和有效治疗阿尔茨海默氏病 和相关痴呆症（ADRD）。但是，主要听众是每个NIA-的领导 资助ADRC作为ADRC网络支持招募，招募，评估和 纵向遵循，以提供对ADRD科学研究至关重要的数据和生物测量。 拟议的会议将于2023年10月12日至13日在圣路易斯华盛顿大学举行 解决协调策略的持续缺乏，以确保适当的招聘， 参与并保留历史少数人群的研究参与者。有四个 会议目标：1）让ADRC网络采用统一的定义，术语和语言用于 ADRD研究中的少数人口； 2）查看获得有关社交数据的新电池 健康的决定因素会导致ADRD的种族和种族差异； 3）鼓励ADRC 解决社区发起的研究主题的网络； 4）让ADRC网络合并 统一的框架，以增强少数团体中人们的招聘，参与和保留 在ADRD研究中。迄今为止，拟议的会议有6位主持人（2名妇女； 3个）接受。 黑色，1个亚洲人； 1个西班牙裔/拉丁裔）和22位发言人（15名女性； 8个黑色，3个亚洲人，1个美洲印第安人/阿拉斯加 本国的; 2西班牙裔/拉丁裔/X/A）。会议制定的有效策略将由 ADRC网络，但也传播到整个科学界。