ELSI Biennial Congress

ELSI 双年度大会

• 批准号: 10418730
• 负责人: Mildred K. Cho
• 金额: --
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-15 至 2024-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10418730
• 关键词: Address; Affect; American; Bioethics; Biomedical Research; Budgets; Collaborations; Communities; Congresses; Databases; Department of Energy; Development; Discipline; Emerging Technologies; Engineering; Ethics; Family; Feedback; Funding; Generations; Genetic; Genetic Research; Genomics; Goals; Grant; Growth; Health; Human Genetics; Humanities; Individual; Investments; Journals; Knowledge; Laboratories; Laws; Leadership; Medical Genetics; Medicine; Methods; Mission; National Human Genome Research Institute; National Institute of Child Health and Human Development; Natural Sciences; Participant; Publications; Reporting; Research; Research Personnel; Research Project Grants; Research Training; Resources; Schedule; Social Sciences; Societies; Speed; Training; Training Programs; Translations; Underrepresented Populations; United States National Institutes of Health; Universities; Work; base; clinical care; design; disability; ethical legal social implication; experience; falls; improved; innovation; medical schools; meetings; multidisciplinary; next generation; outreach; programs; racial and ethnic; response; symposium; translational genomics

PROJECT SUMMARY For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for individuals, families and communities and supported the growth of a generation of ELSI researchers. ELSI research has developed into a multidisciplinary field that spans the humanities, social sciences, natural sciences, engineering, medicine and law. Despite these developments, opportunities for ELSI researchers to present their research to their ELSI colleagues have been limited, as there is no regularly scheduled conference dedicated to ELSI research. Current opportunities are limited to ad hoc sessions in related professional meetings, and tend to be few in number and do not include the range of research or researchers conducting ELSI studies nor offer the depth of exchange and dialogue that a dedicated meeting would provide. To address the need for a regularly scheduled ELSI Congress, we propose to organize biennial ELSI Congresses in 2020, 2022, and 2024. Our multi-disciplinary team brings over two decades of experience in leading ELSI funded research and training programs and engaging a broad range of stakeholders in ELSI research and translational genomics. Guided by the principles of inclusion, diversity and access, the specific aims of this proposal are: 1. To organize three biennial Congresses (2020, 2022, 2024) that highlight high-quality, high-impact ELSI research. 2. To achieve diversity of perspectives and approaches represented in the Congresses towards the goal of increasing the rigor and expanding the intellectual base of ELSI research. 3. To use feedback from Congress organizers and participants to develop improved approaches and features with each subsequent meeting.

项目摘要 近三十年来，国家人类基因组研究所（NHGRI）支持了 研究个体的遗传和基因组研究的道德，法律和社会含义（ELSI）， 家庭和社区，支持一代ELSI研究人员的成长。 Elsi Research拥有 发展成一个跨越人文，社会科学，自然科学的多学科领域， 工程，医学和法律。尽管有这些发展，但Elsi研究人员的机会 他们向ELSI同事的研究受到限制，因为没有定期的会议 致力于Elsi研究。当前的机会仅限于相关专业的临时会议 会议，数量很少，并且不包括研究范围或研究人员 进行ELSI研究，也不提供敬业会议的交流和对话深度 提供。 为了满足定期安排的ELSI大会的需求，我们建议组织双年展ELSI 2020年，2022年和2024年的国会。我们的多学科团队带来了二十年的经验 领先的ELSI资助的研究和培训计划，并参与ELSI的广泛利益相关者 研究和转化基因组学。在包容性，多样性和获取原则的指导下，具体 该提案的目的是： 1。组织三个两年一次的大会（2020，2022，2024），突出了高质量的高质量Elsi 研究。 2。要实现国会代表的观点和方法的多样性 增加严格和扩大ELSI研究的智力基础。 3。使用国会组织者和参与者的反馈来开发改进的方法， 随后的每个会议的功能。