ELSI Biennial Congress

ELSI 双年度大会

基本信息

批准号：
10655458
负责人：
Mildred K. Cho
金额：
$ 15万
依托单位：
COLUMBIA UNIVERSITY HEALTH SCIENCES
依托单位国家：
美国
项目类别：
财政年份：
2019
资助国家：
美国
起止时间：
2019-07-15 至 2025-06-30
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10655458
关键词：
Address Affect American Bioethics Biomedical Research Budgets Centers of Research Excellence Collaborations Communities Congresses Databases Dedications Department of Energy Development Discipline Emerging Technologies Engineering Ethics Ethnic Origin Family Feedback Funding Generations Genetic Genetic Research Genomics Goals Grant Growth Health Human Genetics Humanities Individual Institution Investments Journals Knowledge Laboratories Laws Leadership Medical Genetics Medicine Methods Mission National Human Genome Research Institute National Institute of Child Health and Human Development Natural Sciences Participant Publications Race Reporting Research Research Personnel Research Project Grants Resources Schedule Social Sciences Societies Speed Training Training Programs Translations Underrepresented Populations United States National Institutes of Health Universities Work base clinical care design disability ethical, legal, and social implication experience falls improved innovation legal implication live stream medical schools meetings multidisciplinary next generation outreach programs response social implication symposium translational genomics

项目摘要

PROJECT SUMMARY For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for individuals, families and communities and supported the growth of a generation of ELSI researchers. ELSI research has developed into a multidisciplinary field that spans the humanities, social sciences, natural sciences, engineering, medicine and law. Despite these developments, opportunities for ELSI researchers to present their research to their ELSI colleagues have been limited, as there is no regularly scheduled conference dedicated to ELSI research. Current opportunities are limited to ad hoc sessions in related professional meetings, and tend to be few in number and do not include the range of research or researchers conducting ELSI studies nor offer the depth of exchange and dialogue that a dedicated meeting would provide. To address the need for a regularly scheduled ELSI Congress, we propose to organize biennial ELSI Congresses in 2020, 2022, and 2024. Our multi-disciplinary team brings over two decades of experience in leading ELSI funded research and training programs and engaging a broad range of stakeholders in ELSI research and translational genomics. Guided by the principles of inclusion, diversity and access, the specific aims of this proposal are: 1. To organize three biennial Congresses (2020, 2022, 2024) that highlight high-quality, high-impact ELSI research. 2. To achieve diversity of perspectives and approaches represented in the Congresses towards the goal of increasing the rigor and expanding the intellectual base of ELSI research. 3. To use feedback from Congress organizers and participants to develop improved approaches and features with each subsequent meeting.

项目概要近三十年来，国家人类基因组研究所 (NHGRI) 一直支持研究遗传和基因组研究对个人的伦理、法律和社会影响（ELSI），家庭和社区，支持了一代 ELSI 研究人员的成长。 ELSI 研究有发展成为涵盖人文科学、社会科学、自然科学、工程、医学和法律。尽管取得了这些进展，ELSI 研究人员仍有机会展示他们对 ELSI 同事的研究有限，因为没有定期安排的会议致力于ELSI研究。目前的机会仅限于相关专业的临时会议会议的数量往往很少，并且不包括研究或研究人员的范围进行 ELSI 研究，也无法提供专门会议所无法提供的深度交流和对话提供。为了满足定期举行 ELSI 大会的需要，我们建议每两年举办一次 ELSI 大会将于 2020 年、2022 年和 2024 年举行。我们的多学科团队在以下方面拥有二十多年的经验领导 ELSI 资助的研究和培训计划，并让广泛的利益相关者参与 ELSI 研究和转化基因组学。在包容性、多样性和可及性原则的指导下，具体该提案的目的是： 1. 组织三届两年一度的大会（2020、2022、2024），突出高质量、高影响力的 ELSI 研究。 2. 实现大会代表的观点和方法的多样性以实现目标提高 ELSI 研究的严谨性并扩大其知识基础。 3. 利用大会组织者和参与者的反馈来制定改进的方法和后续每次会议的特点。