Advancing trial readiness in recessive ataxias: Documenting metrological properties of the SARA

推进隐性共济失调的试验准备：记录 SARA 的计量特性

• 批准号: 411228
• 负责人: Bourcier Dax
• 金额: $ 1.27万
• 依托单位: Universit de Sherbrooke
• 依托单位国家: 加拿大
• 项目类别: Studentship Programs
• 财政年份: 2018
• 资助国家: 加拿大
• 起止时间: 2018-12-01 至 2019-12-01
• 项目状态: 已结题
• 来源: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=411228&lang=en
• 关键词: Metrological Properties; Autosomal Recessive Spastic Ataxia Of Charlevoix-Saguenay; Cerebellar Ataxia; Construct Validity; Global Impression Of Change; Motor Impairments; Outcome Measures; Prepare Registry; Scale For The Assessment And Rating Of Ataxia; T

Providing proper care and offering therapeutic possibilities for patients with autosomal recessive spastic ataxia of Charlevoix-Saguenay (ARSACS) is the end goal. The highest worldwide incidence of ARSACS is in Saguenay-Charlevoix, Quebec, home to our res

最终目标是为患有常染色体隐性遗传性夏勒瓦-萨格奈痉挛性共济失调 (ARSACS) 的患者提供适当的护理并提供治疗的可能性。全球 ARSACS 发病率最高的地区是魁北克省萨格奈-沙勒瓦，这里是我们研究中心的所在地