Video Information Provider for HIV-Associated Non-AIDS (VIP-HANA) Symptoms

HIV 相关非艾滋病 (VIP-HANA) 症状视频信息提供者

• 批准号: 9111067
• 负责人: Rebecca Schnall
• 金额: $ 43.99万
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-07-16 至 2020-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9111067
• 关键词: 20 year old; AIDS related cancer; AIDS/HIV problem; Acquired Immunodeficiency Syndrome; Activities of Daily Living; Acute; Address; Adherence; Affect; Age; Area; Asthma; Cardiovascular Diseases; Cessation of life; Chronic Disease; Chronic Obstructive Airway Disease; Collaborations; Development; Diabetes Mellitus; Disease; Drug user; Emotional; Enabling Factors; Epidemic; Evaluation; Face; Focus Groups; Frequencies; Gender; Goals; HIV; HIV Seropositivity; Health; Health Care Visit; Immune; Individual; Intervention; Knowledge; Learning; Life; Liver diseases; Manuals; Measures; Modeling; Morbidity - disease rate; Online Systems; Osteoporosis; Outcome; Outcome Measure; Paper; Participant; Patient-Focused Outcomes; Perception; Persons; Phenotype; Pilot Projects; Population; Predisposing Factor; Provider; Quality of life; Recruitment Activity; Reinforcing Factor; Reporting; Research; Self Care; Self Management; Severities; Surveys; Symptoms; System; Testing; Work; antiretroviral therapy; arm; associated symptom; base; comparative efficacy; disability; experience; frailty; improved; innovation; medication compliance; primary outcome; reduce symptoms; resilience; social networking website; symptom management; symptom self management; symptomatic improvement; therapy adherence; uptake; usability; web app

 DESCRIPTION (provided by applicant): Video Information Provider for HIV-Associated Non-AIDS (VIP-HANA) Symptoms AIDS-related malignancies and death were hallmark features of the HIV epidemic until the mid-1990s. Today, a 20-year-old HIV-positive non-injection drug user in the US can expect to live to age 65. As a result, people living with HIV/AIDS (PLWHA) face new challenges from HIV-Associated Non-AIDS (HANA) conditions such as cardiovascular disease, osteoporosis, COPD, and diabetes. Since treatment does not fully restore immune health and multi-morbidity is high, PLWHA, especially those with HANA conditions, often experience re- occurring symptoms from both the disease and its treatment, making long-term management of symptoms critical for improved health outcomes. An individual's ability to self-manage the symptoms of his or her HIV illness has been shown to decrease symptom severity, improve quality of life, reduce disability, increase medication adherence, and promote health. The proposed research expands upon our innovative pilot work that developed and tested a web-based symptom reporting and self-management system, Video Information Provider (VIP) for PLWHA. The goal of the work in this proposed study is to develop and test an intervention, the VIP-HANA system, a web application that delivers self-care strategies tailored to symptom reporting, HANA condition(s) and gender. To address the needs of the growing population of PLWHA with HANA conditions, the aims of our study are to: (1a) Identify the most prevalent symptoms and self-care strategies of PLWHA with HANA conditions in order to modify the VIP system into the VIP-HANA system; (1b) Evaluate the VIP-HANA system for violations of usability principles; (2) Compare the efficacy of VIP-HANA to a control arm for ameliorating symptom frequency and intensity and secondary health outcomes in 100 PLWHA with HANA conditions over 6 months; and (3) Understand PLWHA's perceptions of the predisposing, enabling, and reinforcing factors for VIP-HANA use with theoretically-guided focus group sessions. Our study activities are focused on identifying the symptom experience and self-care strategies for PLWHA with HANA conditions and enhancing an existing web application for HIV symptom self-management. The proposed project focuses on the development and evaluation of VIP-HANA, an intervention aimed at improving symptom status, enhancing quality of life, increasing functional capacity, and reducing frailty in PLWHA. The proposed study is consistent with FOA: PA 13-210 "development, adaptation, or testing interventions aimed at identifying and managing symptoms related to HIV-Associated Non-AIDS (HANA) conditions, specifically functional capacity and frailty and increasing self-care of HIV-infected persons with HANA conditions." Findings from this study will increase knowledge of HANA symptoms, self-care strategies used to manage these symptoms, and the usability and efficacy of the VIP-HANA system.

 描述（由适用提供）：与HIV相关的非AID（VIP-HANA）症状有关的视频信息提供者AIDS与死亡和死亡有关，直到1990年代中期，艾滋病毒流行一直是HIV流行的标志性特征。如今，在美国，一名20岁的HIV阳性非注入毒品使用者可以期望活到65岁。结果，患有艾滋病毒/艾滋病（PLWHA）的人面临着来自HIV相关的非AID（HANA）疾病（例如心血管疾病，骨质骨质疾病，骨质骨质疾病，COPD，COPD和DIABETES）的新挑战。由于治疗不能完全恢复免疫健康和多医生，因此PLWHA，尤其是患有HANA状况的人，通常会经历这种疾病及其治疗的症状，从而长期治疗对改善健康结果至关重要的症状。事实证明，一个人自我管理自己的艾滋病毒疾病症状的能力可减轻症状严重程度，改善生活质量，减少残疾，增加药物依从性并促进健康。拟议的研究扩展了我们创新的试点工作，该工作开发和测试了基于网络的症状报告和自我管理系统，PLWHA的视频信息提供商（VIP）。在这项拟议的研究中，该工作的目的是开发和测试干预措施，即VIP-HANA系统，Vip-Hana系统，该应用程序提供了针对Sym Reporting，Hana状况和性别量身定制的自我护理策略。为了满足PLWHA不断增长的HANA条件下的需求，我们研究的目的是：（1A）确定PLWHA最普遍的症状和HANA条件下的自我保健策略，以便将VIP系统修改为VIP-HANA系统； （1B）评估违反可用性原则的VIP-HANA系统； （2）将VIP-HANA与对照组的效率进行比较，以减轻100个PLWHA的症状频率和强度以及在6个月内具有HANA状况的效率； （3）了解Plwha对vip-hana使用的诱人，启用和增强因素在理论引导的焦点小组会议中的看法。我们的研究活动的重点是在HANA条件下确定PLWHA的症状经验和自我护理策略，并增强现有的Web应用程序以进行HIV症状自我管理。拟议的项目着重于VIP-HANA的开发和评估，这是一种旨在改善症状状况，增强生活质量，增加功能能力以及减少PLWHA脆弱性的干预措施。拟议的研究与FOA：PA 13-210一致。“开发，适应或测试干预措施，旨在识别和管理与HIV相关的非AID（HANA）条件有关的症状（HANA）条件，特定功能能力和脆弱性和较大的HANA艾滋病毒感染者的自我保护。这项研究的结果将增加对HANA症状的了解，用于管理这些症状的自我护理策略以及VIP-HANA系统的可用性和效率。