Core E: Outreach and Recruitment Core

核心 E：外展和招聘核心

• 批准号: 10264292
• 负责人: Andrew Budson
• 金额: $ 28.15万
• 依托单位: BOSTON UNIVERSITY MEDICAL CAMPUS
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-15 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10264292
• 关键词: Address; Affect; Alzheimer' s Disease; Awareness; Biological Markers; Books; Boston; Brain; Brain Concussion; Cities; Clinic; Clinical; Clinical Data; Clinical Research; Clinical Trials; Cognitive; Collaborations; Communities; Community Actions; Country; Data; Diagnosis; Disclosure; Disease; Educational workshop; Enrollment; Ensure; Event; Family; Foundations; Funding; Genetic; Genetic Markers; Goals; Health Professional; Healthcare Systems; Individual; Knowledge; Lead; Massachusetts; Medical Genetics; Memory; Methods; Military Personnel; New Hampshire; Newsletter; Pamphlets; Paper; Participant; Patient Recruitments; Pharmacology; Population Study; Positron-Emission Tomography; Precision Health; Procedures; Professional Education; Race; Registries; Research; Research Project Grants; Sampling; Series; Spinal Puncture; Standardization; Students; Translational Research; Underrepresented Populations; United States National Institutes of Health; Universities; Veterans; Work; aging brain; base; catalyst; chronic traumatic encephalopathy; clinical center; cognitive change; cohort; community center; data management; education research; effectiveness evaluation; genetic testing; head impact; health disparity; high risk; innovation; insight; lectures; neuropathology; novel; outreach; participant retention; precision medicine; prevent; programs; recruit; social media; statistics; symposium; web site

The Outreach, Recruitment, and Engagement (ORE) Core of Boston University Alzheimer's Disease Research Center (ADRC) will pursue three main aims: (1) to outreach to, engage with, and inform Boston communities regarding Alzheimer's disease (AD) and AD related disorders (ADRD) through traditional and novel initiatives, (2) to facilitate the recruitment and retention of participants in the ADRC Clinical Core (CC) cohort, research registry, and affiliated research projects, and (3) to collaborate with the Research Education Component (REC) in developing innovative print materials, courses, workshops, and programs for healthcare professionals, REC and other trainees, and the public that will lead to new participant referrals to our center, enhance expert and lay knowledge of AD/ADRD, and can be used in other ADRCs. By providing participants who can participate in the CC cohort and ADRC affiliated studies, the ORE core facilitates National Alzheimer's Project Act (NAPA) milestones related to Translational & Clinical Research; and Biomarkers & Diagnosis. The ORE core also ensures adequate numbers of Black participants enroll in our CC cohort and affiliated local and national studies, addressing NAPA milestone, Population Studies, Precision Medicine & Health Disparities. The ORE Core team will continue to collaborate with our Data Management and Statistics (DMS) core to characterize and track participants, and help the Clinical, Genetic, Biomarker, and Neuropathology cores by creating materials to explain research procedures including lumbar punctures, PET scans, genetic tests, and brain donation. To achieve NAPA goals, Expand Supports for People with AD and Their Families, and Enhance Public Awareness and Engagement, the ORE core partners with local organizations including our BU ADRC Community Action Council, the Massachusetts ADRC, the Alzheimer's Association of MA/NH, the Boston VA, the Bedford VA, the Concussion Legacy Foundation, the City of Boston, and other groups. To enroll participants, we will use innovative programs: recruitment coordinators as Navigators; aiding recruitment while educating with Student Ambassadors; educating, retaining, and guiding participants into research with our AgeWISE program; educating and recruiting participants with our 7 Steps Talks; and our books. Additional outreach, recruitment, retention, and engagement strategies include our key partnerships, website, social media, brochures, newsletters, talks, memory screenings, clinic recruitment, seminars, participation at community events, “Thank You” retention brunch, and disclosure of genetic and biomarker information. Referrals to our center are generated by our ADRC Lecture Series and other professional education talks, CTE Conference, as well as relevant research and review papers. We will work with the DMS core to evaluate the effectiveness of our recruitment efforts and alter our efforts accordingly.

波士顿大学阿尔茨海默病的外展、招募和参与 (ORE) 核心 研究中心 (ADRC) 将追求三个主要目标：(1) 接触、参与并提供信息 波士顿社区通过以下方式了解阿尔茨海默病 (AD) 和 AD 相关疾病 (ADRD) 传统和新颖的举措，(2) 促进 ADRC 参与者的招募和保留 临床核心 (CC) 队列、研究注册和附属研究项目，以及 (3) 与 研究教育部分（REC）开发创新印刷材料、课程、 为医疗保健专业人员、REC 和其他学员以及公众举办的研讨会和计划 引导新的参与者转介到我们的中心，增强 AD/ADRD 的专家和非专业知识，以及 可以通过提供可以参加 CC 队列和 ADRC 的参与者来用于其他 ADRC。 附属研究显示，ORE 核心促进了国家阿尔茨海默病项目法案 (NAPA) 相关里程碑 ORE 核心还确保了转化和临床研究；以及生物标志物和诊断。 有足够数量的黑人参与者参加我们的 CC 队列以及附属的地方和国家研究， 解决 NAPA 里程碑、人口研究、精准医学和健康差异 ORE。 核心团队将继续与我们的数据管理和统计 (DMS) 核心合作， 描述和跟踪参与者，并帮助临床、遗传学、生物标志物和神经病理学 通过创建材料来解释研究程序（包括腰椎穿刺、PET 扫描、 为了实现 NAPA 目标，扩大对 AD 患者的支持和 他们的家人，并增强公众意识和参与度，ORE 核心合作伙伴与当地 组织，包括我们的 BU ADRC 社区行动委员会、马萨诸塞州 ADRC、 马萨诸塞州/新罕布什尔州阿尔茨海默病协会、波士顿 VA、贝德福德 VA、脑震荡遗产 为了招募参与者，我们将使用创新方法。 计划：招聘协调员作为导航员；在与学生一起教育的同时协助招聘； 大使；教育、保留和指导参与者参与我们的 AgeWISE 计划的研究； 通过我们的 7 步骤讲座和我们的书籍来教育和招募参与者； 招聘、保留和参与策略包括我们的主要合作伙伴、网站、社交媒体、 小册子、时事通讯、讲座、记忆筛查、诊所招聘、研讨会、参加 社区活动、“谢谢”保留早午餐以及遗传和生物标志物信息的披露。 我们中心的推荐是通过我们的 ADRC 讲座系列和其他专业教育产生的 我们将与 DMS 合作进行讲座、CTE 会议以及相关研究和评论论文。 评估我们招聘工作的有效性并相应地改变我们的工作的核心。